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Healing from the Cellular Level and Up

Posted on Jan 1, 2016 in Blog |

I’m not a fan of resolutions. I found this on a few people’s blogs and so I am stealing it! I started the list but then my thoughts started to wander . . . A new skill I would like to learn: Well, I would like to learn how to quilt, but I think that would be the start of a new obsession/addiction. I think I have enough skills that I have learned; I just need to hone them a bit more. I hope to have two of my books published in 2016 and I have ideas for two more, so writing is what I really want to do more of. A person I hope to be more like: maybe because it is the anniversary of his death, but I want to be more like Jim Rainey b/c he was a man who exuded pure kindness. I want that. A bad habit I would like to break: Biting my nails? I wouldn’t put money on this one though. A place I would like to visit: Turks and Caicos – going there very soon! A book I would like to read: https://www.goodreads.com/review/list/2152254-sharon-rainey I have about 150 on my Want to Read list . . . I don’t think it will ever reduce to below 50. A letter I am going to write: I already wrote it. I thanked Brightview Senior Living for the care they gave my father in law during his last three months of life. It has been a year, but I wanted them to know we still appreciate all they did for him. A food I am going to try: Hmm . . . I am pretty open to trying new foods, so I guess I will have to see what comes up. Jeff is the best chef ever, so I have already tried many, many things. I am going to do better at: being patient with the healing process. Ok, I really don’t think my patience level is going to improve, but that’s what I want to improve. I will remember: That just because I can help someone doesn’t mean I have to.   Especially when it...

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The Manuscript is Being Edited!

Posted on Jul 26, 2015 in Blog |

I gave my version of the manuscript to my co-author last week and he is now reading it!  I am excited beyond words!  He is happy with about 90% of the work done which is most excellent since he has only seen it twice.  We are working on graphics while he is working on edits.  I am VERY excited that we are close to the finish line!  Just wanted to keep everyone updated! Share...

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Rebecca Wells on Lyme Disease

Posted on Jul 26, 2015 in Blog |

This story was written i think back in 2005, but i found it most helpful. Dear Readers, I have advanced neurological Lyme disease. It affects the way I think, move, write, read, eat—every aspect of my life. During the same time in 1998-1999 that my novels, Divine Secrets of the Ya-Ya Sisterhood and Little Altars Everywhere introduced the Ya-Yas to millions of readers, I was becoming very sick and did not know it. At first I thought I just had a recurring case of bronchitis. I didn’t foresee the difficult journey that lay ahead of me. Things went from one weird symptom to the next, then a whole cocktail of symptoms kept developing. I stopped saying, “Things can’t get any worse than this.” Because they did, again and again. Years went by in which I did not know what was wrong with me. I was told maybe I had a brain tumor, perhaps epilepsy; maybe I had dystonia, maybe if I took the latest miracle anti-depressant all my symptoms would magically disappear. (Pause very carefully if ANYone tells you that.) In the last seven years, my symptoms have included respiratory infections, intense muscular skeletal pain, severe fatigue, Multi-Chemical Sensitivity (MCS), hunger for air, extreme sensitivity to light and sound, seizure-like events, and freezing hands and feet (probably due to peripheral neuropathy). Weakness in my lower limbs has been one of the most dangerous symptoms because it can—and does—lead to falling down. At times I was so deeply fatigued while writing Ya-Yas in Bloom that I could not lift my hands. I often had to use a wheelchair to get to the door of my writing room, then be lifted by my husband into my writing chair because the door was not wide enough for the wheelchair to get through. To finish Ya-Yas in Bloom I had to accept the situation I was in and find ways to work that respected my limitations. I realized that I was being given small packets of energy to be used wisely. Once I accepted this, I was able to complete the book. Like any act of creation, whether baking a pie or chopping wood, creativity can dispel the dark. Ya-Yas in Bloom reminds me...

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Why I Write About My Health

Posted on Apr 1, 2013 in Blog |

As part of a task to get myself writing more regularly, I have accepted The Health Activtist Writer’s Month Challenge #HAWMC. Some of the prompts they have provided I will use. Some, I will improvise upon. I also think this will help me with complete more sections of my book Lyme Savvy. This is probably the easiest question of the entire challenge: Why do I write about my health online and what got me started. When I was first diagnosed with Lyme in September 2009, the only other person I knew (my aunt) had died from the disease seven years prior. I felt very alone. My uncle was guiding me through the process of getting the RIGHT testing and finding a Lyme Literate medical Doctor (LLMD), but I didn’t have anyone to share my experience with. Someone in our community told me about a neighbor who also had Lyme, so I contacted that person. It was not the experience I had wanted or needed. This person was almost elusive, offering me no physician suggestions, no real hope. It was WEIRD. And very isolating. Then, a phone call from a previous employee of mine (who remains a very close friend). ‘You have to meet my boss,’ she urged. ‘He has Lyme too and he has a phenomenal doctor that I think you need to meet.’ And so Dan and I met for coffee and we immediately clicked. Dan validated my entire experience both from symptoms over the years to the horrible mess of finding a good physician and appropriate treatment. Dan and I still meet for coffee about once a month to keep tabs on each other. Dan’s physician is now my physician. And I feel very, very lucky. I write about my health online because I had already started my blog, but I wanted to make sure that no one else ever experienced the loneliness and isolation that I experienced with that first individual. I want other lyme patients to know they can call, email, facebook, anything to reach me. That connection with one other person was critical to my sense of hope and my determination for healing. In...

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Sharon’s Christmas Letter 2011

Posted on Dec 8, 2011 in Blog |

Dear Loved Ones, Usually, I look forward to writing this annual letter.  It gives me a chance to capture the highlights and reflect on the low moments to see what wisdom I can gain and utilize for “the next time.”  It gives me the opportunity to openly thank those who have been especially helpful.  But this year, I have dreaded this task.  Most of you already know why, and for the rest of you, it will become clear in a few paragraphs.  I use this letter as an imprint of our memories, so there are some things I want to say first . . . 2011 was a year of changes. In January, Heather left myNeighborsNetwork after working for me for almost four years. She took a job as the salon manager at Tangerine Dream Beauty Bar.  She continues her studies at George Mason University and expects to graduate in 2012 with a BS in Mind/Body Wellness.  In the meanwhile, she also earned her yoga teaching certification.  She is currently teaching power vinyasa and flow yoga.  She is also preparing for a trauma certification course at the Kripalu Center in Stockbridge, MA in January.  She seems very happy in her life and it shows. Stephen was notified in January that he had been awarded a regional Gold Key Award for a computerized self-portrait he made (see photo to the right: that’s the winner!).  It was a big deal.  And we are very proud of him! A few days later, Stephen made it to the big 18.  We celebrated over a series of days and meals. On March 1st, Stephen was accepted into his first choice college, Old Dominion University in Norfolk, VA. Just after Valentine’s Day, Joey asked his girlfriend, Cortney Jones, to be his wife.  She accepted.  They came out over the summer for a quick trip and introduction to his East Coast family.  They are tentatively planning on a 2013 wedding in California where they are currently living (Simi Valley).  In March, Joey underwent major successful back surgery.  He is now able to work and is enjoying his new job at Milgard Windows.  Having a job in...

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