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Traditional Tick Bite Treatment

Posted on May 13, 2017 in Blog |

The following is an excerpt written by Dr. B. Robert Mozayeni from our book Lyme Savvy: Treatment Insights for Lyme Patients and Practitioners. Traditional Tick Bite Treatment Diagnosis for Lyme Disease is not simple and neither is treatment. Let’s move out three months from the original tick bite and classic ECM rash. Now we have a patient who is ill and the antibody tests are still not clearly positive. In the meanwhile, that person has already had the standard two weeks of doxycycline because a practitioner wanted to allay the patient’s concerns even though the Western blot done in the beginning was negative. Let’s assume the Western blot has slightly changed, but not in any way that convinces anyone. In other words, they might have one new IgG band or maybe the total antibody, or the EIA, is now slightly positive or weakly positive. Now we have this symptom complex and it is not clear. In other words, there is no other explanation and we cannot prove it is from the original event. At this point, doctors who believe that only a two-week protocol is necessary to start calling this post-Lyme syndrome. They may not call it that until it is a few more months out. They might give the person up to 30 days of doxycycline. They might even add another antibiotic if that didn’t work. But to those who believe antibiotics are uniformly 100% effective against Borrelia there is no other explanation other than calling the problems the patients is experiencing post-Lyme syndrome. Other physicians are apt to believe it is common sense that this patient still has Lyme Disease because the patient originally had the tick bite with the diagnostic ECM rash. At this point, because there is no other explanation, we need to simply intensify or extend the treatment for chronic Borreliosis. The point to make about this debate is it can exist only in the absence of good information. You can have this argument over what it is and what it isn’t because you really don’t have any way to disprove or prove either theory. So people argue over whose evidence is bigger and...

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How Did I Heal?

Posted on May 12, 2017 in Blog |

Every patient heals differently. There is no one way to treat this disease. And depending on what combination of co-infections you may have, the treatment course can vary. For me, some of the primary ingredients to my healing included (not necessarily in this order): long term use of oral antibiotics and anti-malarials, pharmaceutical grade supplementation, being an active team member with my LLMD’s practice including remaining compliant in my treatment protocol more than 95% of the time, acupuncture, reiki, EMDR therapy for PTSD, therapeutic rest, Hyper-bariac Oxygen Therapy (HBOT), ketamine infusions for depression and grief, physical therapy, laser therapy and dry needling for trigger points, radical changes in my work/life balance, marriage counseling, regular body massages for pain control and fascia release, establishing boundaries with friends and family members, prayer and meditation, walking in nature on a consistent basis, learning to say no without explanation or guilt, creating art, and always putting my health as my #1 priority on a daily basis. This is not a simple, self-limiting disease with a quick treatment protocol. Get tested, find a reputable LLMD, and get treatment. Share...

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Finding a Reputable Lyme Doctor

Posted on May 11, 2017 in Blog |

If you have Lyme disease, you need to be treated by a Lyme Literate Medical Doctor, also known as an LLMD. You can’t just Google them. A good place to start looking is through the ILADS.org website. They can direct you to physicians in your area who have taken courses through their organization. Or even better, look for physicians who have taught the courses. They are the ones who see the most patients, have the most experience with effective treatment, and hold the most wisdom for healing their patients. There are not many LLMDs in the world. You may have to travel a great distance to see a qualified LLMD. Do not cut corners on this aspect of your healing. All LLMDs are NOT created equal. Most LLMDs now require an “application” process. They are literally so overloaded with patient caseloads, that they can pick and choose which patients they will see. While this process may seem absurd from the patient’s point of view, I can tell you now (from the other side), that the physician wants to make this a win/win experience. They want to match up well with each patient to make this a healing experience. If you don’t click with your physician, if you don’t feel you can work as a team, the treatment will not work. So find someone you trust, someone you can align your beliefs with. A few questions you may want to ask your possible physician are: Do you test for co-infections? If so, which labs do you use? How long does your average treatment protocol last? (none of them like this question) What is your philosophy concerning antibiotic treatment? Do you prefer PICC lines or oral antibiotics? Why? Do you treat other conditions such as thyroid and adrenal issues? Or do you focus on only Borrelia and co-infections? How often do you see patients? Some physicians set monthly appointments, others every six weeks. How do I contact the office when I have a problem that cannot wait until the next appointment or if I have an emergency? What is the best way to communicate with office staff and with you between...

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Helpful Media Related to Lyme Disease

Posted on May 9, 2017 in Blog |

Directly Lyme Related: A Twist of Lyme: Battling a Disease that “Doesn’t Exist” by Andrea Caeser Auto-immune Illness and Lyme Disease Recovery by Katina I. Makris Beyond Lyme Disease: Healing the Underlying Causes of Chronic Illness in People with Borreliosis and Co-Infections by Connie Strasheim and Lee Cowden MD Chronic Illness as an Access to Quantum Healing by Jenny Rush Coping with Lyme Disease: A Practical Guide to Dealing with Diagnosis and Treatment by Denise Lang and Kenneth Liegner Cure Unknown: Inside the Lyme Epidemic by Pamela Weintraub “It’s All In Your Head”, Around the World in 80 Lyme Patient Stories: Valid Reasons to Debate Current Treatment by PJ Langhoff Lyme Savvy: Treatment Insights for Lyme Patients and Practitioners by Sharon E. Rainey and B. Robert Mozayeni, MD Nature’s Dirty Needle: What You Need to Know About Chronic Lyme Disease and How to Get the Help To Feel Better by Mara Williams Out Of The Woods: Healing Lyme Disease Body, Mind & Spirit by Katina Makris The Beginner’s Guide to Lyme Disease: Diagnosis and Treatment Made Simple by Nicola McFadzean N.D. and Joseph J. Burrascano Jr. M.D. If I Only Had a Brain Injury: A TBI Survivor and Life Coach’s Guide to Chronic Fatigue, Concussion, Lyme Disease by Laura Bruno Medical and Trauma Related: Invisible Heroes: Survivors of Trauma and How They Heal by Belleruth Naparstek The Anatomy of Hope by Jerome Groopman Hypothyroidism Type 2: The Epidemic by Mark Starr The Trauma Spectrum: Hidden Wounds and Human Resiliency by Robert C. Scaer Waking the Tiger: Healing Trauma: The Innate Capacity to Transform Overwhelming Experiences by Peter A. Levine, Ann Frederick Films The Living Matrix What the Bleep Do We Know (2004) Ram Dass Fierce Grace (2001) Conversations with God (2006) Under Our Skin (2009) Under Our Skin – Part 2: Emergence (2015) Websites Chronic Lyme Nutrition – www.chroniclymenutrition.com Galaxy Diagnostics – www.galaxydx.com International Lyme and Associated Diseases Society (ILADS) – www.ilads.org Beating Bartonella – www.beatingBartonella.com Fisher Wallace Laboratories – http://www.fisherwallace.com/ What is Lyme? – www.whatislyme.comweb.ncsu.edu Translational Medicine Group – www.tmgmd.com Better Health Guy – www.betterhealthguy.com Lyme Disease.org -www.lymedisease.org National Capital Lyme Disease Association – www.natcaplyme.org www.lymenet.org www.lymediseaseassociation.org www.publichealthalert.org...

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Other Diseases that Can Actually be Lyme Disease

Posted on May 5, 2017 in Blog |

It took me several years to get an accurate diagnosis. On the path to that diagnosis, my then endocrinologist tested me for Lupus and it was a positive result. I was very lucky in some regards. When my uncle heard this, he called me and urgently asked me to be tested for Lyme Disease. Aunt Betty had also tested positive for Lupus. But she had Lyme. Physicians are finding that many patients’ test results are cross reacting. There are many case studies for patients who have originally tested positive for Asthma or COPD, Lupus, Fibromyalgia, Multiple Sclerosis, Chronic Fatigue Syndrome, and ALS who, once they go through successful treatment for Lyme or a co-infection of Lyme, their ‘other’ disease disappears. After my Bartonella treatment, my Lupus test became negative. It’s worth testing. Share...

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