Lyme Savvy | A one-of-a-kind collaboration between patient and doctor

Navigation Menu

Co-infections, Co-infections, Co-infections

Posted on Oct 27, 2017 in Blog |

In the past few weeks, I have talked with several newly diagnosed individuals. Three of them had never heard the word “co-infections.” Thus, they had never heard of Bartonella, Babesia, Erlichiosis . . . and the list goes on. It can be frustrating to educate people about Lyme itself. It can be doubly frustrating to bring them up to speed about the co-infections as well as Lyme. The amount of mis-information about these diseases is overwhelming. I encourage each Lyme patient to find a Lyme Literate Medical Doctor (LLMD) to help you navigate your way to health. And work with your LLMD as a team. One thing that drives me insane: when a patient has an appointment with their LLMD, they develop a new plan for treatment, and then the patient goes on line and asks other patients their opinion of the plan. If you still have questions about your plan, ASK YOUR DOCTOR! Do NOT ask a thousand people who do not have a medical degree, are not familiar with ALL the details of your history and current state. If you feel you can’t work with your LLMD as a team, find a new doctor. I encourage you to read articles from www.whatislyme.com, galaxydx.com, lymeadvise.com, igenex.com, and other Lyme savvy websites. In Lyme Savvy: Treatment Insights for Lyme Patients and Practitioners, we cover many of these co-infections. I encourage you to read it. A note to the new readers: I originally tested positive for Lupus and Lyme. Better testing from Galaxy Diagnostics showed I was positive for Bartonella. I was then treated for Bartonella. And after that treatment, my next Lupus and Lyme tests were negative. It took a smart physician to figure out what I had and how to treat it. Share...

Read More

What We Need Our Friends and Families to Know

Posted on May 19, 2017 in Blog |

Patients with Lyme Disease or co-infections of Lyme Disease are NOT: lazy, faking, sensationalizing, imagining things; refusing to learn or grow, avoiding responsibility going to grow out of it crazy contagious; it is safe to hug us “just depressed”; if we are depressed, it is because of living with Lyme, not the other way around. Patients with Lyme Disease or co-infections of Lyme Disease ARE: physically ill actually, very ill overwhelmed and frustrated their body cannot work the way they need it to experiencing real pain, often excruciating unique in that we each present with different symptoms; no two patients are the same examples of what can happen to your friend, sister, cousin or boss who has been sick for a long time with no answers; we share our stories so others may find a shorter path to a correct diagnosis Patients with Lyme Disease or co-infections of Lyme Disease DON’T want to hear: You don’t look sick! Are you ever going to heal from this? (Would you ask a cancer patient this question?) But you seemed fine ten minutes ago. But I thought you rested yesterday. Oh good! Now you are better and you can go back to the way you used to live/work! Maybe you should see a psychiatrist. But you looked fine yesterday. I already told you this. Get a grip; there is nothing wrong with you. So what, I get rashes all the time. If this was real, the CDC would do something about it. I know people who have real problems. Are you sure you have a good doctor? When you are going to finally be rid of this thing? What time is dinner? Are you sure you have Lyme Disease? How can anyone have that many symptoms? Do you really need to take all those pills? Isn’t it time you get over this thing? Patients with Lyme Disease or co-infections of Lyme Disease NEED: validation they are truly ill and require treatment help accomplishing the simplest of tasks your love and your physical and emotional support to feel wanted your respect others to know we are not weak hugs loved ones to make...

Read More

Disease Transmission to Humans

Posted on May 16, 2017 in Blog |

The following is an excerpt from Lyme Savvy: Treatment Insights for Lyme Patients and Practitioners. We open this section talking about Bartonella, but Lyme disease is also discussed. Keep reading to find out more. Disease Transmission to Humans Dr. Mozayeni There are many ways to get Bartonella, including from your cat. When infected, cats have a million fold higher circulating level of Bartonella. If they are indoor/outdoor cats or feral cats, 80% or more carry Bartonella. The numbers are probably higher but even the sickest cats will have four-to-five days of the month during which they will no detectable Bartonella in their blood. There are many ways to get Bartonella: from fleas, cats, and potentially other biting insects strongly suspected but not strictly proven. So it becomes a much more prevalent infection. The other Protozoa infections probably follow the same pathways in terms of the ways they are spread. Vectors are agents that transmit the various Protozoa that makes people sick. Protozoa get into and on red cells that can be transmitted by mosquitoes, known transmitters of Protozoa. It stands to reason, then, that Babesia and Babesia-like things can be transmitted by mosquitoes. Mosquitoes may be the principle vector. Here we all are worried about deer ticks and most patients with Lyme Disease cannot remember a deer tick bite. But everyone I know can remember a mosquito bite. Everyone I know has probably run into fleas more often than they have run into deer ticks. There are all kinds of fleas. There are sand fleas at the beach. There are fleas on your cat, fleas on your dog. Nine percent of dogs carry Bartonella but when they do, their blood levels are a lot lower so I don’t think they represent as big a reservoir or a risk as cats do. The landscape of chronic infection is far bigger than just Borrelia. This probably explains why patients with these chronic symptoms will all classify their condition as Lyme Disease; it punches their card into a support system. It is a way to describe what they have. But it retards scientific progress because the term is too broad, given the...

Read More

Traditional Tick Bite Treatment

Posted on May 13, 2017 in Blog |

The following is an excerpt written by Dr. B. Robert Mozayeni from our book Lyme Savvy: Treatment Insights for Lyme Patients and Practitioners. Traditional Tick Bite Treatment Diagnosis for Lyme Disease is not simple and neither is treatment. Let’s move out three months from the original tick bite and classic ECM rash. Now we have a patient who is ill and the antibody tests are still not clearly positive. In the meanwhile, that person has already had the standard two weeks of doxycycline because a practitioner wanted to allay the patient’s concerns even though the Western blot done in the beginning was negative. Let’s assume the Western blot has slightly changed, but not in any way that convinces anyone. In other words, they might have one new IgG band or maybe the total antibody, or the EIA, is now slightly positive or weakly positive. Now we have this symptom complex and it is not clear. In other words, there is no other explanation and we cannot prove it is from the original event. At this point, doctors who believe that only a two-week protocol is necessary to start calling this post-Lyme syndrome. They may not call it that until it is a few more months out. They might give the person up to 30 days of doxycycline. They might even add another antibiotic if that didn’t work. But to those who believe antibiotics are uniformly 100% effective against Borrelia there is no other explanation other than calling the problems the patients is experiencing post-Lyme syndrome. Other physicians are apt to believe it is common sense that this patient still has Lyme Disease because the patient originally had the tick bite with the diagnostic ECM rash. At this point, because there is no other explanation, we need to simply intensify or extend the treatment for chronic Borreliosis. The point to make about this debate is it can exist only in the absence of good information. You can have this argument over what it is and what it isn’t because you really don’t have any way to disprove or prove either theory. So people argue over whose evidence is bigger and...

Read More

How Did I Heal?

Posted on May 12, 2017 in Blog |

Every patient heals differently. There is no one way to treat this disease. And depending on what combination of co-infections you may have, the treatment course can vary. For me, some of the primary ingredients to my healing included (not necessarily in this order): long term use of oral antibiotics and anti-malarials, pharmaceutical grade supplementation, being an active team member with my LLMD’s practice including remaining compliant in my treatment protocol more than 95% of the time, acupuncture, reiki, EMDR therapy for PTSD, therapeutic rest, Hyper-bariac Oxygen Therapy (HBOT), ketamine infusions for depression and grief, physical therapy, laser therapy and dry needling for trigger points, radical changes in my work/life balance, marriage counseling, regular body massages for pain control and fascia release, establishing boundaries with friends and family members, prayer and meditation, walking in nature on a consistent basis, learning to say no without explanation or guilt, creating art, and always putting my health as my #1 priority on a daily basis. This is not a simple, self-limiting disease with a quick treatment protocol. Get tested, find a reputable LLMD, and get treatment. Share...

Read More
css.php