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Bartonella

Posted on May 20, 2013 in Blog |

Day 20-May is Lyme Disease Awareness Month From Galaxy Diagnostics Laboratories website (www.galaxydx.com): Galaxy Diagnostics offers the most sensitive test for the detection of active Bartonella infection. Our Bartonella ePCRTM (or EnrichmentPCRTM) test combines the patented BAPGM enrichment culture with a highly sensitive molecular method to significantly increase the odds of detection. The test includes pre- and post-culture PCR results and DNA sequencing verification for all positive results to confirm the exact species of infection. Performance data indicates that this novel testing methodology is 4 to 5 times more sensitive than existing PCR tests for Bartonella and at least 2 times more sensitive than IFA serology. Bartonella are hard-to-detect, vector-borne bacteria linked to both acute and chronic disorders affecting the joints, neurological system, and vascular system. Over 25 species of Bartonella have been identified, with 10-12 species now linked to human disease. Transmission is thought to occur by way of animal bites and scratches and from contact with fleas, ticks, lice, and sand flies. Current research indicates that individuals with high levels of animal and vector contact are particularly at risk for Bartonella infection. The most common species of infection are Bartonella henselae, the key agent in Cat Scratch Disease, and Bartonella quintana, the key agent in Trench Fever. Well established as a cause of life-threatening complications in immune-compromised patients (i.e., HIV patients), Bartonella infection is one of the most important emerging infectious diseases currently under study. The diagnosis of Bartonella infection is seriously hampered by high false negative rates associated with existing testing technologies. We offer a testing methodology with significant gains in sensitivity and the highest level of certainty regarding the specificity of our test results. Our approach to providing this testing service is anchored in the emerging research on Bartonella infection and centered upon the highest possible standards of laboratory practice. Share...

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Aunt Betty

Posted on May 16, 2013 in Blog |

Day 16 – May is Lyme Disease Awareness Month On June 5, 2002, my dad called at 11:30 pm. His baby sister, Aunt Betty, had died earlier that afternoon of a pulmonary embolism. She was 57 years old. She died of complications from Lyme Disease. Exactly two years prior, Aunt Betty went to her physician in Auburn, Alabama with a classic “Lyme” EM rash on her calf. She had not seen a tick, but she had been with her horse on their five acres of land. She asked if it might be Lyme Disease. “We don’t have Lyme disease in Alabama,” he replied. “It’s an allergic reaction to sunscreen. I know PABA when I see it.” He prescribed some lotion and dismissed Aunt Betty. That fall, Aunt Betty returned with weakness in her legs. Blood tests showed positive for Lupus. Over the next few months, Aunt Betty’s health continued to decline. She experienced more weakness in left hand, cramping in left hand and in throat, muscles hurting all over body, stiff in the morning, and numbness in left foot. Doctors then changed her diagnosis to Muscular Dystrophy. Then they changed it to ALS – “Lou Gehrig’s Disease.” For a year, physicians refused to test Betty for Lyme disease. By August of 2001, a year after her initial rash appeared, Aunt Betty was using a walker. And in August, doctors finally agreed to a Lyme test from Igenex.com. The test was positive. Aunt Betty started treatment. On September 11, 2001, when most of us were watching the World Trade Center Twin Towers fall in New York, Aunt Betty was getting a PICC line. Back in 2001, they didn’t have the progressive testing they have now. But they were trying. They started Betty on Biaxin, Flagyl, Diflucan. A couple of months later, Aunt Betty was still deteriorating. They started her on Zithromax; she showed improvement. December, 2001, her Lupus test was negative. But she was in a wheelchair full time. Doctors continued her on various meds, and she was improving, but it was going to be a long recovery. Six months later, Aunt Betty died from a blood clot that had...

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Similarities Among Patients

Posted on May 15, 2013 in Blog |

Day 15 – May is Lyme Disease Awareness Month Most Lyme patients aren’t dealing with JUST Lyme disease. Every patient is different, but we have a few similarities. 1. Adrenal fatigue – When I was tested, I found out that my cortisol levels were constantly high; my body was always in the stressed phase. My adrenal functions were high in the evenings instead during the day. This seems to be common among patients. That’s why we tend to have trouble falling asleep. 2. Thyroid dysfunction – My LLMD believes that many of us suffer from Hypo-Thyroidism Type II. It’s a constant battle of regulating my thyroid meds for both T3 and T4. Luckily, he relies more on clinical symptoms than going by blood test results. 3. Fatigue – this seems to be the most common symptom among patients. I think it’s because our entire body is under attack on a daily basis. Our cells spend so much time battling the bacteria that our bodies are literally exhausted to that cellular level. 4. Multiple physical ailments – Borrelia and the co-infections can travel anywhere in the body. They are corkscrew type organisms. They can literally bore through muscle, tissue, bone; anything. For instance, three patients that I know of (including myself) have been told we need major knee surgery. I can’t remember how or why (Lyme brain), but my LLMD explained that the organisms seem to love the joints the most; and thus, create the most damage there. 5. Food allergies – This issue has gained importance over the past few years. Five years ago, finding gluten free foods was difficult at best; gluten free menus were unheard of. We’ve come a long way. Food allergies often cause inflammation in the digestive tract, thus aggravating our already present symptoms. 6. Heavy metal poisoning – when I was first diagnosed, Dr. M tested me for heavy metals as well. My arsenic levels were off the charts. We had our soil tested, water tested, etc. I even received a phone call from the county asking if I had any concerns about where I might be getting the arsenic. Based on a 2006...

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Does Your Pet Have Lyme?

Posted on May 6, 2013 in Blog |

Day 6 – May is Lyme Disease Awareness Month If your animal has tested positive for Lyme, the family should be tested for lyme and its co-infections. The ticks and fleas don’t care who they feed off of. It IS possible for cats and dogs to get co-infections. We had a cat test positive for Bartonella and Erlichiosis. Co-infections of Lyme: Colorado Tick Fever, Rocky Mountain Spotted Fever, QFever, Bartonella, Babesia, Erlichiosis, Mycoplasma, or Protomyxzoa Rheumatica Share...

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Finding an LLMD

Posted on May 5, 2013 in Blog |

Day 5 – May is Lyme Disease Awareness Month If you have Lyme disease or a co-infection of Lyme, you will probably receive the most effective treatment from a Lyme Literate Medical Doctor (LLMD). You should also check out the www.ilads.org website for more information. When searching for an LLMD, you can go to www.lymediseaseassociation.org and input your information and they will send you a brief listing. The best way to find an LLMD is to find the patients who are HEALING or HEALED and ask them who they see/saw. The proof is in the pudding, folks. Co-infections of Lyme: Bartonella, Babesia, Erlichiosis, Rocky Mountain Spotted Fever, Mycoplasma, Qfever, Colorado Tick Fever or Protomyxzoa Rheumatica Share...

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