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Rebecca Wells on Lyme Disease

Posted on Jul 26, 2015 in Blog |

This story was written i think back in 2005, but i found it most helpful. Dear Readers, I have advanced neurological Lyme disease. It affects the way I think, move, write, read, eat—every aspect of my life. During the same time in 1998-1999 that my novels, Divine Secrets of the Ya-Ya Sisterhood and Little Altars Everywhere introduced the Ya-Yas to millions of readers, I was becoming very sick and did not know it. At first I thought I just had a recurring case of bronchitis. I didn’t foresee the difficult journey that lay ahead of me. Things went from one weird symptom to the next, then a whole cocktail of symptoms kept developing. I stopped saying, “Things can’t get any worse than this.” Because they did, again and again. Years went by in which I did not know what was wrong with me. I was told maybe I had a brain tumor, perhaps epilepsy; maybe I had dystonia, maybe if I took the latest miracle anti-depressant all my symptoms would magically disappear. (Pause very carefully if ANYone tells you that.) In the last seven years, my symptoms have included respiratory infections, intense muscular skeletal pain, severe fatigue, Multi-Chemical Sensitivity (MCS), hunger for air, extreme sensitivity to light and sound, seizure-like events, and freezing hands and feet (probably due to peripheral neuropathy). Weakness in my lower limbs has been one of the most dangerous symptoms because it can—and does—lead to falling down. At times I was so deeply fatigued while writing Ya-Yas in Bloom that I could not lift my hands. I often had to use a wheelchair to get to the door of my writing room, then be lifted by my husband into my writing chair because the door was not wide enough for the wheelchair to get through. To finish Ya-Yas in Bloom I had to accept the situation I was in and find ways to work that respected my limitations. I realized that I was being given small packets of energy to be used wisely. Once I accepted this, I was able to complete the book. Like any act of creation, whether baking a pie or chopping wood, creativity can dispel the dark. Ya-Yas in Bloom reminds me...

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The ABCs of Ticks

Posted on Jul 9, 2015 in Blog |

Note from Sharon: I don’t personally care for the Mayo Clinic’s way of diagnosing and treating Lyme disease, but I do think the following link has some good information and an interesting way of presenting the information. Thank you to Carol Pearson for sending this to me! From the Mayo Clinic: http://news.mayomedicallaboratories.com/ticks/ Share...

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Death of My Uncle

Posted on May 23, 2014 in Blog |

George “Troup” Brazelton III died suddenly on Thursday, May 1, 2014.  Troup was my uncle. Born on October 26, 1940 in Bessemer Alabama, he graduated from Parrish High School in Selma, Alabama in 1959 and graduated from Auburn University in 1968. Troup was an affable man. He diffused warmth and friendliness with anyone he came into contact with.  He could find a way to connect with anyone, whether he met you in a coffee shop or tailgating at an Auburn University football game.  He could initiate a conversation with anyone, any age, and find something in common within minutes of striking up the conversation.  It was a special talent Troup had that put people at ease- usually making them smile within minutes of meeting him.  He was quick witted and honest. You can tell a lot about a man about how he treats the women around him.  Troup treated his mother and his mother-in-law with great respect, honor, and genuine love.  He took them for drives to see the blooming crepe myrtles and azaleas. He shelled pecans with them. Troup often sat in a chair watching the television – he loved sports and the news shows.  He had opinions and welcomed debate with those that disagreed with him.  He wasn’t a loud or gregarious man; he was quiet in tone.  But he made people laugh.  His statements of the obvious could have been good enough for a stand-up comedy routine sometimes.  But his ability to make others laugh was in a “sneak up behind you and tap you on the shoulder” sort of subtlety. My first soul connection with Troup came in 2000 as he cared for Aunt Betty during her last years of declining health.  What started as a “reaction to suntan lotion” later evolved into a diagnosis of Lupus, to ALS, but was finally found to be Lyme Disease. During Betty’s last 24 months, Troup spent every moment caring for her, researching her symptoms, contacting physicians, doing everything in his power to save her life.  They had found the right diagnosis, and she was getting the right treatment, but it was simply too late.  The Lyme had ravaged too much of her...

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Random Thoughts from Random Discussions with Lyme Patients

Posted on Jan 4, 2014 in Blog |

I talked with a few Lyme patients yesterday. People call me asking for input, my perception, advice, or just validation. A few things I find myself often saying: I’m not a physician and I don’t know what you have merely by you telling me your symptoms. I don’t know what treatment you should be getting or what meds you should be taking. I can only share my experience. But that doesn’t mean my experience will work for you. No, I don’t know how you got infected. I can make some guesses, but that’s all they are; guesses. I will tell you that after having cats for 50 years, I will never get a cat again because the risk of re-infection of Bartonella is too high for me. It’s not something I am willing to go through again. Yes, cats can be successfully treated for Bartonella, but they can become reinfected again with the next mouse or shrew they catch. I don’t know which symptoms necessarily go with each co-infection. I had symptoms for 30 years. Some are better now that I am clear of Bartonella, but some are the same or worse. They might be symptoms of Bartonella AND Protomyxzoa Rheumatica. I don’t know. And honestly, in the end, I don’t think it matters. With the development of incredible testing these past few years, I think it is better to rely on solid data for diagnosing co-infections. Galaxy Diagnostics (www.galaxydx.com) is the world’s best lab for testing for Bartonella. The three day blood draw is 90% accurate and they will PCR the blood and tell you what strains of Bartonella you have. No more guessing. Fry Labs (www.frylabs.com) in Arizona is the best for finding that pesky Protomyxzoa Rheumatica and its variants. The PR 1953 panel is very enlightening. You will see the buggers light up. It’s quite remarkable. If your LLMD says he doesn’t have time to do research and to keep up on the latest data, find a new LLMD. This field needs our best and brightest to keep researching, to keep trying new things. What worked five years ago is NOT what should be used now....

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The Herxheimer Reaction

Posted on May 22, 2013 in Blog |

Day 22– May is Lyme Disease Awareness Month What is a Herx? The Jarisch-Herxheimer Reaction, or more commonly known as ”herx,” is a detoxification reaction your body has from die off of bacteria. It is the worsening of symptoms before getting better. As the body detoxifies, or tried to get rid of dead bacteria and toxins, it is not uncommon to experience flu-like symptoms including headache, joint and muscle pain, body aches, sore throat, general malaise, sweating, chills, fever, nausea, hives or other symptoms. This is a normal reaction when starting a treatment for Lyme Disease, Syphillis, or Candida, and some other infections. It indicates that parasites, fungus, viruses, bacteria or other pathogens are being effectively killed off. The Herxheimer Reaction is an immune system reaction to the toxins that are released when large amounts of pathogens are being killed off, and the body does not eliminate the toxins quickly enough. Simply stated, it is a reaction that occurs when the body is detoxifying and the released toxins,(endotoxins) released from the cell walls of dying bacteria due to effective treatment, either exacerbate the symptoms being treated or create new symptoms. The important thing to note is that worsening symptoms do not indicate failure of the treatment in question; in fact, usually just the opposite. There are ways to help you get through your Herxheimer reaction. This entails proper detoxification. To read on Biotoxin Illness and ways to detox click here: http://whatislyme.com/biotoxin-illness-and-detoxing/ Thank you to Lisa Hilton for her amazing website that is a great place for those with Lyme and co-infections. Lisa is a great Lyme warrior and it is an honor to know her. Share...

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