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Miscellaneous Aids During Treatment

Posted on Dec 5, 2017 in Blog |

I am reprinting this chapter from our book, Lyme Savvy: Treatment Insights for Lyme Patients and Practitioners because i think it might help you develop your own Christmas list and your own “how to survive the holiday” ideas . . . Miscellaneous Aids During Treatment Sharon I used to believe when I got sick, I could go to the doctor, get a prescription, take a pill, and I would be healed of whatever ailment had inhabited my body. I used to believe a holistic approach to health and well-being was a nice thought, a possible avenue, but something that mostly appealed to those “hippies” or those with a lot of money to throw around. I used to believe organic food was another way to rip off the customer at the checkout line. And then I got the Lyme Disease diagnosis. Dr. Mozayeni, with his credentials and research strengths, advised me at my second appointment to go “organic.” Some of my blood work came back showing I had significant levels of arsenic in my blood. I completely understand the panic and desperation late stage cancer patients’ experience. I found myself willing to try almost anything to see if it would alleviate my pain and fatigue. I believe in traditional medicine and treatment protocols, but I also now believe a holistic approach is the only way to heal from a systemic, chronic disease. We have gathered a list some patients have found helpful. What worked for some individuals may or may not work for you. And works now may not work six months from now. The point is, if you want to try it, go for it. People are constantly asking me for the “secrets” to healing. There are none. It’s a combination of ingredients unique to each patient. These are items that were simply helpful during the healing process. They are listed alphabetically. Attitude – A positive attitude is a critical element in my recovery. Even when I’m not feeling well, I know it will get better. At the most difficult and fatiguing phase of therapy, I mentioned to Dr. Mozayeni that I was trying to accept “the new normal”...

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How Did I Heal?

Posted on May 12, 2017 in Blog |

Every patient heals differently. There is no one way to treat this disease. And depending on what combination of co-infections you may have, the treatment course can vary. For me, some of the primary ingredients to my healing included (not necessarily in this order): long term use of oral antibiotics and anti-malarials, pharmaceutical grade supplementation, being an active team member with my LLMD’s practice including remaining compliant in my treatment protocol more than 95% of the time, acupuncture, reiki, EMDR therapy for PTSD, therapeutic rest, Hyper-bariac Oxygen Therapy (HBOT), ketamine infusions for depression and grief, physical therapy, laser therapy and dry needling for trigger points, radical changes in my work/life balance, marriage counseling, regular body massages for pain control and fascia release, establishing boundaries with friends and family members, prayer and meditation, walking in nature on a consistent basis, learning to say no without explanation or guilt, creating art, and always putting my health as my #1 priority on a daily basis. This is not a simple, self-limiting disease with a quick treatment protocol. Get tested, find a reputable LLMD, and get treatment. Share...

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#TBYHDC Speaker Sharon Rainey On Healing From Emotional Trauma Through Love

Posted on Oct 17, 2016 in Blog | How did you originally connect with Robin and the Take Back Your Health Conference? Robin was introduced to me when she was still in high school and just starting this journey. She had made the connection to healing from Rheumatoid Arthritis and food, and she wanted to share her experience, strength and hope with me. She led me to healthy eating. She also showed me great compassion. I was in the roller coaster part of the healing, a lot of ups and downs. One afternoon, Robin brought me an entire meal she made herself. And it was amazing. It was such an act of love to me. Not only did the food help me heal, but her love and compassion were strong healing agents as well. What will you be sharing about at the upcoming Take Back Your Health Conference? I will be sharing about the importance of healing the emotional and spiritual wounds that we hold from traumas in our life. Our doctors can only do so much, and they focus on the physical part of healing. A great doctor will help with the other aspects, but it is usually only the patient who knows the triggers, the traumas, and the willingness to find possible resolutions. If you don’t mind diving right in, can you share a couple of your main symptoms / struggles over the years? I was sick for 30+ years. If there is a symptom, I had it. It wreaked havoc throughout my entire body including stomach ulcers, a tooth killing itself, lower back pain, migraines, lipomas, joint stiffness and pain. I felt like a stone statue, or the Tin Man from the Wizard of Oz. It also included bizarre things like itchy ears and vivid nightmares. Is there one thing that you’ve learned from Robin or Take Back Your Health events that has really stuck with you? Eating is key to healing. An anti-inflammatory diet is mandatory for healing. What are a couple of lifestyle tweaks/habits have made the biggest difference for your health? Eating organic food is essential – I had arsenic poisoning when I was first diagnosed. It was from eating...

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When the Attitude and Fortitude Just Aren’t There

Posted on Oct 4, 2016 in Blog |

I’ve had an ear infection for almost a week now. If you have had one, you understand the pain. Today, I feel drained, exhausted, sore, and bummed. I’m sick and tired of feeling sick and tired. I return to the ENT physician tomorrow for a re-check. But this experience is a good reminder to me of the importance of “full participation in the healing process.” It’s not just what the doctor prescribes us that will heal us. We, as patients, have to do our part as well. That includes the obvious – follow doctor’s orders – REST – Don’t do anything you think your doctor (or family) might not consider good for healing – Eat healthy foods – Laugh for at least 30 minutes each day And what I consider to be most important . . . . find a best part of your day. Now, like I said, not all days are good days. Some days are just not good days. But even as my Dad was dying in the hospital, I found a best part of each day. I found gratitude for something. And finding gratitude is a key element to healing. As Dad lay dying, I found gratitude for the conversations we had, for the laughter and memories we could share, for the intimacy and love shown and felt between us. I could also find gratitude for the end of Dad’s suffering, for him making the final transition to heaven, and for a caring staff to help him in his final days. So maybe it wasn’t a good day yesterday. Maybe today won’t be a good day. But somewhere, look hard, and find the best part of your day. As you search, you might notice your overall attitude improving. And you might find yourself truly searching to find the good in each transaction throughout your day. The best part of my day yesterday, though I was teary and tired and sad, the best part of my day was being able to look through thousands of digitized photos of my family and friends, sharing memories of very special events, noticing little facial gestures that I found precious....

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How an Ear Infection is Like Chronic Illness

Posted on Oct 3, 2016 in Blog |

This past weekend, I was planning to take a girlfriend to our cabin for a weekend of wildness: you know, going braless, reading, writing, and doing needlepoint. I figured if we really got restless, we could roast marshmallows in the fire pit and take the dogs for a long stroll. Friday morning, my car was completely packed, ready to go. Except, my ear had kept me up the previous two nights with pain. I was on antibiotics for an ear infection. My LLMD saw it on Wednesday, prescribed the meds, told me if I didn’t feel better Thursday, to call in for another scrip, which I did. At 5 am Friday, I was in tears. Then, my eardrum ruptured, which usually actually feels better because the pressure is released. I felt better for about two hours and then the pain returned. I was determined to get away from the weekend. So I went to a local “doc in a box”. He took a look, even gave me a photo of the inside of my ear. He suggested we clean it out first, which he emphasized would be painful. I suggested we not. I wanted to get on the road. I had enough ear infections as a child to know what that pain would be and I wanted none of it. Can you tell I was still in a bit of denial about the severity of this issue? The doc let me go, told me to return on Monday, and he gave me a prescription for OXYCODONE. Hmmm . . . that’s when a little red flag went up that maybe I was in for a bit more pain than I anticipated. Jeff, looking incredulously at me, asked, “And what happens when you hit 3000 feet on the mountain on the way to the cabin?” Hmm . . . I hadn’t thought about that. I texted the photo of my eardrum to my LLMD, who then responded, “I’ve texted Dr. W. Call his office and they will see you now.” Dr. W is our favorite ENT physician. He added, “Abundance of caution is indicated presently,” another red flag. A little...

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