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I Never Thought I Would

Posted on May 19, 2013 in Blog |

Day 19 – May is Lyme Disease Awareness Month Things I never thought I would never be doing five years ago: eating almost all organic food saying “no” with no guilt considering coffee enemas drinking green smoothies trying to figure out computer software that used to be “simple” losing so many friends and being ok with that writing my second book scheduling laughter time every day scheduling meditation times giving presentations about Lyme disease participating in protest rallies against the Infectious Disease Society of America taking extra time to play with my puppies because it makes me feel good eating raw, unfiltered honey daily surrendering to fatigue without much guilt – coming home from work at 1 pm to rest laughing louder than I used to because it feels so good to laugh going without makeup for weeks at a time figuring out which method is the best way to detox my body – lemon water, Epsom salts, sauna . . . having two bumper stickers on my car that say “Eat More Kale” and “Sheldon for President” wearing no jewelry but my wedding band spending an hour every two weeks dispensing pills taking 50 pills a day and being grateful for every single one, knowing each has a specific healing task going low gluten, low dairy, low soy, low sugar; willingly inviting 100 people with Lyme disease to my house to celebrate our healing adamantly encouraging people to challenge their physicians and demand the correct testing for Lyme disease and co-infections Wearing lime green clothing Co-infections of Lyme: Erlichiosis, Mycoplasma, Bartonella, Babesia,Protomyxzoa Rheumatica, Colorado Tick Fever, Rocky Mountain Spotted Fever,QFever Share...

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Measuring in Small Increments

Posted on May 17, 2013 in Blog |

Day 17 – May is Lyme Disease Awareness Month I know I am healing when: I can unload the entire dishwasher, not just the top rack I don’t have to pay any late fees on our credit card bills – usually I forgot to pay the bills.  I would think I had, but I hadn’t . . . I make the bed in the morning. I don’t have to rest while getting ready for work in the morning. I can go to the grocery store by myself and not rely on Stephen or Jeff to pull things off the top and bottom shelves. I can work a full day. I can cook dinner by myself (and not burn anything). I remember to feed the dogs and cat. I don’t get lost while running errands. I don’t leave laundry in the washing machine for more than a day. Co-infections of Lyme: Colorado Tick Fever, Rocky Mountain Spotted Fever, QFever Protomyxzoa Rheumatica Bartonella, Babesia Erlichiosis, Mycoplasma   Share...

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Similarities Among Patients

Posted on May 15, 2013 in Blog |

Day 15 – May is Lyme Disease Awareness Month Most Lyme patients aren’t dealing with JUST Lyme disease. Every patient is different, but we have a few similarities. 1. Adrenal fatigue – When I was tested, I found out that my cortisol levels were constantly high; my body was always in the stressed phase. My adrenal functions were high in the evenings instead during the day. This seems to be common among patients. That’s why we tend to have trouble falling asleep. 2. Thyroid dysfunction – My LLMD believes that many of us suffer from Hypo-Thyroidism Type II. It’s a constant battle of regulating my thyroid meds for both T3 and T4. Luckily, he relies more on clinical symptoms than going by blood test results. 3. Fatigue – this seems to be the most common symptom among patients. I think it’s because our entire body is under attack on a daily basis. Our cells spend so much time battling the bacteria that our bodies are literally exhausted to that cellular level. 4. Multiple physical ailments – Borrelia and the co-infections can travel anywhere in the body. They are corkscrew type organisms. They can literally bore through muscle, tissue, bone; anything. For instance, three patients that I know of (including myself) have been told we need major knee surgery. I can’t remember how or why (Lyme brain), but my LLMD explained that the organisms seem to love the joints the most; and thus, create the most damage there. 5. Food allergies – This issue has gained importance over the past few years. Five years ago, finding gluten free foods was difficult at best; gluten free menus were unheard of. We’ve come a long way. Food allergies often cause inflammation in the digestive tract, thus aggravating our already present symptoms. 6. Heavy metal poisoning – when I was first diagnosed, Dr. M tested me for heavy metals as well. My arsenic levels were off the charts. We had our soil tested, water tested, etc. I even received a phone call from the county asking if I had any concerns about where I might be getting the arsenic. Based on a 2006...

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Fatigue or Diarrhea?

Posted on May 14, 2013 in Blog |

Day 14 – May is Lyme Disease Awareness Month This is one of those more “intimate” posts. I haven’t written in a few days because I have been battling with each of these symptoms. I was supposed to change my meds to a different timing and I had to go off the antibiotics (abx) for a week before restarting at a heavier dosage. While on them at this regular dosage, I had diarrhea. This particular abx hits any parasites in the gut and I think it was doing its job. When I went off, the fatigue hit. I was back in bed each afternoon by 2 pm with a two hour deep sleep. And a regular bedtime. I couldn’t take it. So, I went back on the abx at the regular dosage and the diarrhea returned. I go back to the doctor this week to see how he wants me to proceed. I don’t usually change up my routine without contacting him first, but I think I am far enough in the process that I know what my options are. In other words, if you are on a new med, or new to treatment, DON’T CHANGE YOUR MEDS WITHOUT FIRST CONSULTING YOUR LLMD. The way I have treat the next phase, with the current timing, I think it may cause some unpleasant symptoms on my weekends. And the next five weekends are quite busy for me. So, we may delay the next phase. I’ll let you know. A friend saw me on Sunday (Mother’s Day) at the grocery store and she asked how I was feeling. I said “pretty good” because I was able to be up and dressed for brunch with our family. I was grateful. I didn’t want to mention the diarrhea in the grocery store . . . I didn’t get to hang out with my friend that afternoon because I didn’t want to be searching constantly for a public bathroom. Instead, I spent the afternoon hanging out with my hubby and the puppies in our front yard. Not a bad deal. It’s trade offs. Fatigue or diarrhea? I choose diarrhea. At least I can get...

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Bizarre Symptoms

Posted on May 7, 2013 in Blog |

Day 7 – May is Lyme Disease Awareness Month Some of the weirder symptoms we Lyme patients experience . .. if you have never had Lyme or a co-infection of Lyme, you will think these symptoms are a bit far fetched. If you do have Lyme or a co-infection, you will think, ‘WOW! I’m not crazy! I’m not alone . . .’ I don’t know why we get these symptoms, but they are rather unusual. 1. Itchy ear canals – I had this for decades and through everyone else did too. When my Bartonella was cured, the itch ear canals stopped. 2. Watching my muscles twitch – last night, I literally watched my thigh muscles twitch. Any muscle can twitch. My left eye used to twitch uncontrollably and without warning. 3. I can be walking on a level ground, and without warning, my ankle will feel as though I just strained it. Nothing will have happened; it just starts to feel very painful. And then, sometimes it can switch to the other ankle. And as suddenly as it came on, it can go away. 4. Skin crawling – sometimes, I feel like there are bugs crawling out of my skin. And then, it goes away . . . 5. Sore soles of the feet, especially in the morning. Almost feels like you are walking on glass. And then, it will suddenly stop. If you experience these symptoms, you might want to be tested for Lyme disease and co-infections of Lyme disease. And feel free to call me and commiserate. It DOES get better. Co-infections of Lyme: Bartonella, Babesia, Erlichiosis, Rocky Mountain Spotted Fever, Mycoplasma, Qfever, Colorado Tick Fever or Protomyxzoa Rheumatica Share...

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