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Testing for Co-Infections of Lyme Disease

Posted on May 21, 2017 in Blog |

The following is an excerpt written by Dr. B. Robert Mozayeni in our book Lyme Savvy: Treatment Insights for Lyme Patients and Practitioners. When we talk about Borrelia, we must talk about other infections called co-infections. I don’t know if there really is anything “co” about these infections. I think they are called co-infections because as Lyme patients’ symptoms didn’t respond to treatment, people started looking at other infections. So which germs really cause Lyme Disease? Co-infections found in patients include Babesia, Ehrlichia, Anaplasma infection, Bartonella or other proteobacteria, or Mycoplasma. One study done in New Jersey found by PCR, which is not as sensitive as enrichment culture followed by PCR, approximately a third of the ticks carry Borrelia, a third carry Bartonella, 2% carry Ehrlichia and 8% carry Babesia. The positive rate for Bartonella, could have been higher if the study had been done with enrichment culture followed by PCR – a method developed later. Researchers started recognizing the gut of a tick is not a place where the tick only selectively carries Borrelia. Ticks, like other insects, can carry various microbes. However, it is not proven that these microbes are transmitted by ticks; and it is not proven that they are not transmitted by ticks. It should not take a lot of research to determine this. If a tick is feeding off a variety of mammals why wouldn’t the gut of the tick have a whole bunch of different things in it? But it does create some interesting questions. For example, we have never really had a good Bartonella test until recently. How can we be really sure the ECM rash is only from Borrelia? What if the ECM rash is from both Borrelia and Bartonella? That is an interesting potential study. Is there some combination of microbe inoculation that has to occur in order for someone to get sick from a germ? Does it have to be Protozoa plus bacteria? Would the same person get as sick if they had only one of those? These are some of the questions related to these infections. The complexity goes up exponentially because now we have to go further...

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Disease Transmission to Humans

Posted on May 16, 2017 in Blog |

The following is an excerpt from Lyme Savvy: Treatment Insights for Lyme Patients and Practitioners. We open this section talking about Bartonella, but Lyme disease is also discussed. Keep reading to find out more. Disease Transmission to Humans Dr. Mozayeni There are many ways to get Bartonella, including from your cat. When infected, cats have a million fold higher circulating level of Bartonella. If they are indoor/outdoor cats or feral cats, 80% or more carry Bartonella. The numbers are probably higher but even the sickest cats will have four-to-five days of the month during which they will no detectable Bartonella in their blood. There are many ways to get Bartonella: from fleas, cats, and potentially other biting insects strongly suspected but not strictly proven. So it becomes a much more prevalent infection. The other Protozoa infections probably follow the same pathways in terms of the ways they are spread. Vectors are agents that transmit the various Protozoa that makes people sick. Protozoa get into and on red cells that can be transmitted by mosquitoes, known transmitters of Protozoa. It stands to reason, then, that Babesia and Babesia-like things can be transmitted by mosquitoes. Mosquitoes may be the principle vector. Here we all are worried about deer ticks and most patients with Lyme Disease cannot remember a deer tick bite. But everyone I know can remember a mosquito bite. Everyone I know has probably run into fleas more often than they have run into deer ticks. There are all kinds of fleas. There are sand fleas at the beach. There are fleas on your cat, fleas on your dog. Nine percent of dogs carry Bartonella but when they do, their blood levels are a lot lower so I don’t think they represent as big a reservoir or a risk as cats do. The landscape of chronic infection is far bigger than just Borrelia. This probably explains why patients with these chronic symptoms will all classify their condition as Lyme Disease; it punches their card into a support system. It is a way to describe what they have. But it retards scientific progress because the term is too broad, given the...

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Lyme, Borrelia, Bartonella, Protozoa

Posted on May 14, 2017 in Blog |

The following is an excerpt Dr. Mozayeni wrote from our book Lyme Savvy: Treatment Insights for Lyme Patients and Practitioners I think when Borrelia is present, it tends to be associated with joint pain and sometimes joint swelling because the lining of the joints is very vascular; it is getting its nourishment from the vessels of connective tissue. The lining itself of the joints is the synovium and the synovial tissue is highly vascular. That is why there is a lot of action and a lot of symptoms related to synovial inflammation with all of these chronic infections, Bartonella and Protozoa included. Given this new perspective, the question then becomes: How does this realization shift the diagnostic and therapeutic emphasis? You have to look at Bartonella with the best available test. You have to look at the Protozoa with the best available test, and You have to understand – It is a far stronger form of evidence when you have molecular proof of these infections using these new tests than having a few antibody bands on a Western blot. We need to use molecular tests to succeed more with our therapies. Share...

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Getting the RIGHT Tests for Lyme Disease

Posted on May 6, 2017 in Blog |

In the Commonwealth of Virginia, physicians are required by law to give you a piece of paper stating that if your ELISA Lyme test comes back negative, that does not necessarily mean you don’t have Lyme. The test is so inaccurate that physicians have to tell you that you might still be infected. I do not understand why, then, they order this test. And, the test tells you nothing about whether or not you might have any of the co-infections of Lyme. If you want an accurate start to testing for Lyme disease, you might want to order the Lyme panel from Igenex Labs in San Diego, CA. Because of the ‘popularity’ of Bartonella, I also strongly urge you to get the three-day blood draw from Galaxy Diagnostics in North Carolina. Fry Labs in Arizona also offers state of the art testing for newfound protozoa that causes many patients’ Lyme disease tests to pop positive. If interested you can order the FL1953 panel from Fry Labs. And, if you have a physician who tries to bully you or tell you these labs are unreliable or “just in it for the money,” find a new physician who will help you find a cause for your symptoms. Share...

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Our Secrets – What’s Mine? What’s Yours?

Posted on Dec 18, 2015 in Blog |

I’m sitting on my living room couch with tears streaming down my face proving that I am tired, stressed, and emotional. I have a pretty good idea of what’s causing it, but it’s something I haven’t been ready to talk to many people. This is a BIG pity pot I am sitting on right on. In the 12 Step Recovery program that I participate in, one of our slogans is: We are only as sick as our secrets. I have been keeping this a secret and it’s making me sick. As most of you know, I started treatment for Bartonella, a bacterial co-infection of Lyme disease about six years ago. I finished treatment four years ago and have tested negative for Bartonella since then. SUCCESS. I then was at a plateau for a few months, undergoing more testing, trying to figure out why I was still experiencing many symptoms. I had originally tested positive for Babesia, a parasitic co-infection of Lyme Disease. Its symptoms are likened to malaria. This is when we discovered I had Protomyxzoa Rheumatica FL 1953, a parasitic co-infection of Lyme Disease. We were thinking that this new protozoa might be causing a false positive on the Babesia test. The protozoa had been discovered by Dr. Stephen Fry only a few months prior. Imagine just finding the parasite and then trying to figure out how to treat it or kill it. Look at how long we have known about cancers and the continuing search for a cure. Luckily, I have a brilliant physician who tried a few things and they seem to have worked. If all goes as planned, next week will be my last IV for treatment for the PR FL 1953 and the multiple variants that had taken up residence in my blood. Four months ago, I started developing new symptoms and other symptoms were worsening. That’s a scary place to be when you are supposedly healing. Dr. M sat me down and explained me that all my new symptoms were typical Babesia symptoms. He said the Protozoa didn’t give me a false positive. He reminded me of when he had put me on the...

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