Lyme Savvy | A one-of-a-kind collaboration between patient and doctor

Navigation Menu

Co-infections, Co-infections, Co-infections

Posted on Oct 27, 2017 in Blog |

In the past few weeks, I have talked with several newly diagnosed individuals. Three of them had never heard the word “co-infections.” Thus, they had never heard of Bartonella, Babesia, Erlichiosis . . . and the list goes on. It can be frustrating to educate people about Lyme itself. It can be doubly frustrating to bring them up to speed about the co-infections as well as Lyme. The amount of mis-information about these diseases is overwhelming. I encourage each Lyme patient to find a Lyme Literate Medical Doctor (LLMD) to help you navigate your way to health. And work with your LLMD as a team. One thing that drives me insane: when a patient has an appointment with their LLMD, they develop a new plan for treatment, and then the patient goes on line and asks other patients their opinion of the plan. If you still have questions about your plan, ASK YOUR DOCTOR! Do NOT ask a thousand people who do not have a medical degree, are not familiar with ALL the details of your history and current state. If you feel you can’t work with your LLMD as a team, find a new doctor. I encourage you to read articles from www.whatislyme.com, galaxydx.com, lymeadvise.com, igenex.com, and other Lyme savvy websites. In Lyme Savvy: Treatment Insights for Lyme Patients and Practitioners, we cover many of these co-infections. I encourage you to read it. A note to the new readers: I originally tested positive for Lupus and Lyme. Better testing from Galaxy Diagnostics showed I was positive for Bartonella. I was then treated for Bartonella. And after that treatment, my next Lupus and Lyme tests were negative. It took a smart physician to figure out what I had and how to treat it. Share...

Read More

Multiple Sclerosis Can Actually be Lyme Disease – Case Study

Posted on May 29, 2017 in Blog |

From Galaxy Diagnostics John (age 53) – Multiple Sclerosis As a small animal veterinarian, John had daily contact with animals for more than 30 years. Starting in late 2004, he suffered numerous progressive neurological symptoms, debilitating enough that after being a runner for years, he faced the possibility of being wheelchair bound. His hands became numb, and he was constantly fighting fatigue. The buildup of symptoms over months prevented him from maintaining his practice and had him seeking medical help. John consulted with numerous physicians and was ultimately diagnosed with Multiple (MS), for which there is no identified cause or cure. Physicians began to administer interferon treatment. The treatment may have helped, but John was still concerned. He knew, as a veterinarian, he had been exposed to numerous pathogens, and the MS diagnosis did not explain all of his symptoms. John tested positive for Bartonella henselae. John was placed on a multi-drug oral antibiotic regime that lasted over a year. Progress was not immediate, but over the course of months, John regained significant use of his legs, had dramatically increased energy and saw a reduction of the neurological symptoms. John’s quality of life improved to the point he was able to increase his work hours. Share...

Read More

Finding a Reputable Lyme Doctor

Posted on May 11, 2017 in Blog |

If you have Lyme disease, you need to be treated by a Lyme Literate Medical Doctor, also known as an LLMD. You can’t just Google them. A good place to start looking is through the ILADS.org website. They can direct you to physicians in your area who have taken courses through their organization. Or even better, look for physicians who have taught the courses. They are the ones who see the most patients, have the most experience with effective treatment, and hold the most wisdom for healing their patients. There are not many LLMDs in the world. You may have to travel a great distance to see a qualified LLMD. Do not cut corners on this aspect of your healing. All LLMDs are NOT created equal. Most LLMDs now require an “application” process. They are literally so overloaded with patient caseloads, that they can pick and choose which patients they will see. While this process may seem absurd from the patient’s point of view, I can tell you now (from the other side), that the physician wants to make this a win/win experience. They want to match up well with each patient to make this a healing experience. If you don’t click with your physician, if you don’t feel you can work as a team, the treatment will not work. So find someone you trust, someone you can align your beliefs with. A few questions you may want to ask your possible physician are: Do you test for co-infections? If so, which labs do you use? How long does your average treatment protocol last? (none of them like this question) What is your philosophy concerning antibiotic treatment? Do you prefer PICC lines or oral antibiotics? Why? Do you treat other conditions such as thyroid and adrenal issues? Or do you focus on only Borrelia and co-infections? How often do you see patients? Some physicians set monthly appointments, others every six weeks. How do I contact the office when I have a problem that cannot wait until the next appointment or if I have an emergency? What is the best way to communicate with office staff and with you between...

Read More

Celiac Disease, Low Grade Fever, Hair Loss, Fatigue = Lyme?

Posted on May 10, 2017 in Blog |

Brittany, a 21-year-old attending college, arrived at the doctor’s office complaining of bloating, gas, and diarrhea. Brittany had been diagnosed with Celiac disease three years earlier in her home state of Colorado Springs, CO and successfully adhered to a gluten-free diet since then. She also stated she had started to lose more hair than ever before, increased fatigue, and a low-grade, unexplainable fever. The gastroenterologist ordered a colonoscopy and suggested she try a dairy free diet. He also drew blood to check her thyroid. The tests came back all within normal limits. No need to return, he stated. “But what about my hair falling out? The diarrhea? My fatigue?” Brittany queried. “We don’t know,” he replied. “Keep your diet gluten-free and dairy-free and you should see some gradual improvement.” “And the fever?” she asked. “You probably just had a virus. Make sure you get plenty of rest so your body can fight it off.” Brittany left, frustrated once again. Brittany’s symptoms had not restricted her lifestyle to the degree that things were impossible, but they were a major inconvenience. She didn’t go shopping with her mom because she couldn’t stand the thought of standing in lines and walking for hours. She chose her outings carefully based on their proximity to a bathroom in case diarrhea hit. Otherwise, she was a reasonably healthy 21-year-old college girl. After two hours in Dr. Mozayeni’s office, Brittany had a reasonable explanation for every symptom she was experiencing. Blood work results later proved his theory correct. Bartonella is a chronic infection. Chronic infection can cause chronic inflammation. Inflammation worsens the function of the weakest part of a person’s body. For Brittany, it was her gut. The chronic inflammation in her gut made her susceptible to allergic reactions. When you introduce grains and dairy products to an inflamed area, you are more likely to produce an allergic or aggravated response. By omitting those allergens, the response will disappear, but it still doesn’t address the cause of the inflammation. Eventually, the bacteria will find another place to attack. In Brittany’s case, it was her thyroid and metabolism. She started to lose her hair. But because she...

Read More

Getting the RIGHT Tests for Lyme Disease

Posted on May 6, 2017 in Blog |

In the Commonwealth of Virginia, physicians are required by law to give you a piece of paper stating that if your ELISA Lyme test comes back negative, that does not necessarily mean you don’t have Lyme. The test is so inaccurate that physicians have to tell you that you might still be infected. I do not understand why, then, they order this test. And, the test tells you nothing about whether or not you might have any of the co-infections of Lyme. If you want an accurate start to testing for Lyme disease, you might want to order the Lyme panel from Igenex Labs in San Diego, CA. Because of the ‘popularity’ of Bartonella, I also strongly urge you to get the three-day blood draw from Galaxy Diagnostics in North Carolina. Fry Labs in Arizona also offers state of the art testing for newfound protozoa that causes many patients’ Lyme disease tests to pop positive. If interested you can order the FL1953 panel from Fry Labs. And, if you have a physician who tries to bully you or tell you these labs are unreliable or “just in it for the money,” find a new physician who will help you find a cause for your symptoms. Share...

Read More
css.php