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Sharon’s Annual Letter – a Little Late

Posted on Jan 7, 2018 in Blog |

Dearest Friends and Family, As I prepare to write each year’s letter, I reread the previous year’s letters. Rereading my 2016 letter was like reopening a fresh wound and rubbing salt in it. My grief has “improved,” lessening in intensity and frequency, but it remains constant. I have always believed that even our worst moments offer gifts, if not immediately, eventually. I know God is always with me, guiding me to my next growth opportunity. Work Jeff is continuing with Home Equity Builders (www.hebinc.com). We are readying for a big master bath renovation. I am continuing with www.myNeighborsNetwork.com. Gifts At the end of February, I was dreading the first anniversary of Dad’s admission to the hospital and the 26 days that followed. That same week, I started dreaming in images, something I have never done before in 54 years. It became so intense and obsessive, I bought some paint and brushes and try to paint what I saw in my dreams. I had never painted, drawn, or done anything artistic before that week. The entire month of March, through the first anniversary of Dad’s death, I painted. And I have not stopped. Nor have the images in dreams and visions. A friend saw my work and encouraged me to join our local Artist Studio. I did and then I participated in my debut show in the local art tour. I sold my three largest pieces and did very well. It was a fantastic start to a new passion. I have also completed commission works for individuals as far as Las Vegas, Nevada. You can see some of my pieces at www.sharonraineyart.com. I had two more successful art sales/shows in December. In the meanwhile, Jeff started perfecting his work with the camera lens. His favorite subject is a pair of bald eagles near our cabin in Maggie, VA. Though, honestly, I love his scenic pieces more so. He can capture birds in flight and sunsets on the pond. I think I have talked him into joining the local Artist group as well and participating in local events. Entertainment In September, Jeff and I saw Sting in concert at Wolftrap. Score...

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Lyme Savvy Book Giveaway

Posted on Nov 13, 2017 in Blog |

We have had quite a few new people sign up for our blog postings so I thought I would just touch base. I thought I would let you know that we give away a copy of Lyme Savvy each month to a lucky winner on Facebook in the Lyme Patient Raffle group. Lyme Advise is also currently doing a give away: https://www.facebook.com/lymeadvise/. I don’t know if you heard the latest, but Dr. Mozayeni has accepted a position on the ILADS.org board and he will serve as President starting in 2018! Exciting! https://www.facebook.com/pg/natcaplyme/videos/?ref=page_internal Share...

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8 Years Ago Today, My Life Changed

Posted on Sep 9, 2017 in Blog |

8 Years Ago Today: The First Appointment I lied on the 22-page “Complete History Form” Dr. Mozayeni asks all patients to fill out. I suspected if I revealed all of the symptoms I had experienced over the years, he would surely think I needed a psychiatrist rather than an LLMD. No one has that many symptoms without being a hypochondriac; even I had to begun to believe this. I focused on my major symptoms and denied the less compelling ones. I was very nervous at my first appointment with Dr. Mozayeni. Partially, because I couldn’t believe I might actually have Lyme Disease. If I did have Lyme, I didn’t want to have Aunt Betty’s outcome. And I didn’t want to have one more physician looking at my paperwork and giving me another incomplete, inaccurate diagnosis. My anxiety had reached a new peak. It wasn’t like getting a splinter in my finger. I couldn’t remember getting the splinter. I couldn’t see the splinter. I couldn’t get a pair of tweezers to excise it. I knew I felt pain and it kept getting worse. But there was no red, swollen, site with puss coming out. There was nothing to show a physician except my own perception and recording of symptoms. Even some of my lab work was faulty, skewing the puzzle more so. For years, I watched and listened as physicians provided little explanation and less treatment for pain that was increasing sometimes exponentially. Over those years, my anxiety increased, my defensiveness grew. I talked with other people, researched the Internet (not necessarily the best idea), desperately seeking answers. When I did receive a diagnosis, I thoroughly researched that condition, becoming as expert as a non-science major can become. But when I met new physicians and explained previous conditions, my knowledge base was met with skepticism and obvious discomfort. I found most physicians did not appreciate being challenged by laypeople. I discovered an ugly dimension in medicine. When the physicians could not come up with a plausible diagnosis or effective treatment, they did not like being put on the spot. They did not care for being challenged with the possibility they...

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Lyme Disease Awareness Month

Posted on Apr 30, 2017 in Blog |

May has been proclaimed as Lyme Disease Awareness Month in the Commonwealth of Virginia (thank you Representative Barbara Comstock!). Each day, for 30 days, I am providing readers with information relating to Lyme Disease that you may not necessarily know, but hopefully, will find helpful. My purpose for this is threefold: My aunt died from complications of Lyme Disease in 2002 and I didn’t know much about it except that she had been bitten by a tick. There is much more to this story and I think others should hear it so they will know too. I suffered from various ailments throughout my lifetime, having no idea until 2009 that 90% of them were all related – they were all symptoms of co-infections of Lyme Disease. I want others to know what those ailments were so they don’t have to wait decades to get the right testing, an accurate diagnosis, and effective treatment. When I was initially diagnosed, I called someone in my community who was known for having the disease and would be able to connect me with the right resources. When I called her, she said she was very sorry to hear of the diagnosis, but she refused to offer me names of any physicians nor lend any support in any way. In fact, she pretty much hung up on me. What I discovered very quickly is that Lyme Disease is perceived as a psychiatric illness rather than a physical illness. It is a lonely road when trying to heal from this disease. From the moment my phone line went dead, I vowed never to let that happen to anyone I might run into who was in the same predicament I was in. As a result of that short phone conversation, once I finished treatment for the primary infection I was suffering from (Bartonella), I spent the next five years writing a book with my physician, Dr. B. Robert Mozayeni, talking about the symptoms, accurate diagnosis, and effective treatment for Lyme Disease and its co-infections. Lyme Savvy: Treatment Insights for Lyme Patients and Practitioners is available on Amazon. It is a 624 page introspective guide into effectively...

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Taking Control: Focusing Through the Fog Webinar this Wednesday

Posted on Jan 30, 2017 in Blog |

Reminder – If You Haven’t Registered Yet! Taking Control: Focusing Through the Fog Wednesday, Feb 1, 2017, 3-4 pm (EST) Dr. Bob Mozayeni and Sharon Rainey will discuss ways to overcome the challenges faced by both patients and physicians when trying to diagnose chronic illness, set out a plan of treatment, and effectively manage care. This is especially confounding when patients are dealing with the cognitive impact and “brain fog” so often associated with chronic illness. They will draw on a variety of issues discussed in their new book, LYME SAVVY. Cost: $20 Follow This Link To Register Share...

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