Lyme Savvy | A one-of-a-kind collaboration between patient and doctor

Navigation Menu

Lyme Savvy Book Giveaway

Posted on Nov 13, 2017 in Blog |

We have had quite a few new people sign up for our blog postings so I thought I would just touch base. I thought I would let you know that we give away a copy of Lyme Savvy each month to a lucky winner on Facebook in the Lyme Patient Raffle group. Lyme Advise is also currently doing a give away: https://www.facebook.com/lymeadvise/. I don’t know if you heard the latest, but Dr. Mozayeni has accepted a position on the ILADS.org board and he will serve as President starting in 2018! Exciting! https://www.facebook.com/pg/natcaplyme/videos/?ref=page_internal Share...

Read More

8 Years Ago Today, My Life Changed

Posted on Sep 9, 2017 in Blog |

8 Years Ago Today: The First Appointment I lied on the 22-page “Complete History Form” Dr. Mozayeni asks all patients to fill out. I suspected if I revealed all of the symptoms I had experienced over the years, he would surely think I needed a psychiatrist rather than an LLMD. No one has that many symptoms without being a hypochondriac; even I had to begun to believe this. I focused on my major symptoms and denied the less compelling ones. I was very nervous at my first appointment with Dr. Mozayeni. Partially, because I couldn’t believe I might actually have Lyme Disease. If I did have Lyme, I didn’t want to have Aunt Betty’s outcome. And I didn’t want to have one more physician looking at my paperwork and giving me another incomplete, inaccurate diagnosis. My anxiety had reached a new peak. It wasn’t like getting a splinter in my finger. I couldn’t remember getting the splinter. I couldn’t see the splinter. I couldn’t get a pair of tweezers to excise it. I knew I felt pain and it kept getting worse. But there was no red, swollen, site with puss coming out. There was nothing to show a physician except my own perception and recording of symptoms. Even some of my lab work was faulty, skewing the puzzle more so. For years, I watched and listened as physicians provided little explanation and less treatment for pain that was increasing sometimes exponentially. Over those years, my anxiety increased, my defensiveness grew. I talked with other people, researched the Internet (not necessarily the best idea), desperately seeking answers. When I did receive a diagnosis, I thoroughly researched that condition, becoming as expert as a non-science major can become. But when I met new physicians and explained previous conditions, my knowledge base was met with skepticism and obvious discomfort. I found most physicians did not appreciate being challenged by laypeople. I discovered an ugly dimension in medicine. When the physicians could not come up with a plausible diagnosis or effective treatment, they did not like being put on the spot. They did not care for being challenged with the possibility they...

Read More

Lyme Disease Awareness Month

Posted on Apr 30, 2017 in Blog |

May has been proclaimed as Lyme Disease Awareness Month in the Commonwealth of Virginia (thank you Representative Barbara Comstock!). Each day, for 30 days, I am providing readers with information relating to Lyme Disease that you may not necessarily know, but hopefully, will find helpful. My purpose for this is threefold: My aunt died from complications of Lyme Disease in 2002 and I didn’t know much about it except that she had been bitten by a tick. There is much more to this story and I think others should hear it so they will know too. I suffered from various ailments throughout my lifetime, having no idea until 2009 that 90% of them were all related – they were all symptoms of co-infections of Lyme Disease. I want others to know what those ailments were so they don’t have to wait decades to get the right testing, an accurate diagnosis, and effective treatment. When I was initially diagnosed, I called someone in my community who was known for having the disease and would be able to connect me with the right resources. When I called her, she said she was very sorry to hear of the diagnosis, but she refused to offer me names of any physicians nor lend any support in any way. In fact, she pretty much hung up on me. What I discovered very quickly is that Lyme Disease is perceived as a psychiatric illness rather than a physical illness. It is a lonely road when trying to heal from this disease. From the moment my phone line went dead, I vowed never to let that happen to anyone I might run into who was in the same predicament I was in. As a result of that short phone conversation, once I finished treatment for the primary infection I was suffering from (Bartonella), I spent the next five years writing a book with my physician, Dr. B. Robert Mozayeni, talking about the symptoms, accurate diagnosis, and effective treatment for Lyme Disease and its co-infections. Lyme Savvy: Treatment Insights for Lyme Patients and Practitioners is available on Amazon. It is a 624 page introspective guide into effectively...

Read More

Taking Control: Focusing Through the Fog Webinar this Wednesday

Posted on Jan 30, 2017 in Blog |

Reminder – If You Haven’t Registered Yet! Taking Control: Focusing Through the Fog Wednesday, Feb 1, 2017, 3-4 pm (EST) Dr. Bob Mozayeni and Sharon Rainey will discuss ways to overcome the challenges faced by both patients and physicians when trying to diagnose chronic illness, set out a plan of treatment, and effectively manage care. This is especially confounding when patients are dealing with the cognitive impact and “brain fog” so often associated with chronic illness. They will draw on a variety of issues discussed in their new book, LYME SAVVY. Cost: $20 Follow This Link To Register Share...

Read More

Lyme Disease Webinar with Dr. B. Robert Mozayeni and Author Sharon Rainey

Posted on Jan 26, 2017 in Blog |

“Taking Control: Focusing Through the Fog” Dr. Bob Mozayeni and Sharon Rainey will discuss ways to overcome the challenges faced by both patients and physicians when trying to establish the nature of underlying causes of chronic illness, set out a plan of treatment, and effectively manage care. This is especially confounding when patients are dealing with the cognitive impact and “brain fog” so often associated with chronic illness. They will draw on a variety of issues discussed in their new book, LYME SAVVY. Date/Time: Wednesday, February 1, 2017, at 3 pm (for 1 hour). Cost: $20 About These Presentations: This discussion is part of our exciting new program to provide our patients with the information they want and need to know, to help them get better faster. These patient education webinars will be paired with corresponding programs geared toward physicians and other health providers to foster mutual understanding of the issues and help them collaborate with us in your care. In the future, we will cover advances in the treatment of Bartonella, Lyme Disease, Mast Cell Activation Syndrome, and more. We hope you can join us. Please click the link below to register. Click Here to Register at GoToTraining Webinar limited to first 50 registrants only! Sign up NOW! LYME SAVVY is a unique collaboration between a patient and doctor, offering important insights into the patient-practitioner dynamic that you need to know to live well while dealing with the disease…and move forward toward recovery. This book is rich with information, wisdom, and guidance. For more information go to LYMESAVVY.com. Share...

Read More
css.php