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Sharon’s Annual Letter – a Little Late

Posted on Jan 7, 2018 in Blog |

Dearest Friends and Family, As I prepare to write each year’s letter, I reread the previous year’s letters. Rereading my 2016 letter was like reopening a fresh wound and rubbing salt in it. My grief has “improved,” lessening in intensity and frequency, but it remains constant. I have always believed that even our worst moments offer gifts, if not immediately, eventually. I know God is always with me, guiding me to my next growth opportunity. Work Jeff is continuing with Home Equity Builders (www.hebinc.com). We are readying for a big master bath renovation. I am continuing with www.myNeighborsNetwork.com. Gifts At the end of February, I was dreading the first anniversary of Dad’s admission to the hospital and the 26 days that followed. That same week, I started dreaming in images, something I have never done before in 54 years. It became so intense and obsessive, I bought some paint and brushes and try to paint what I saw in my dreams. I had never painted, drawn, or done anything artistic before that week. The entire month of March, through the first anniversary of Dad’s death, I painted. And I have not stopped. Nor have the images in dreams and visions. A friend saw my work and encouraged me to join our local Artist Studio. I did and then I participated in my debut show in the local art tour. I sold my three largest pieces and did very well. It was a fantastic start to a new passion. I have also completed commission works for individuals as far as Las Vegas, Nevada. You can see some of my pieces at www.sharonraineyart.com. I had two more successful art sales/shows in December. In the meanwhile, Jeff started perfecting his work with the camera lens. His favorite subject is a pair of bald eagles near our cabin in Maggie, VA. Though, honestly, I love his scenic pieces more so. He can capture birds in flight and sunsets on the pond. I think I have talked him into joining the local Artist group as well and participating in local events. Entertainment In September, Jeff and I saw Sting in concert at Wolftrap. Score...

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Lyme Savvy Book Giveaway

Posted on Nov 13, 2017 in Blog |

We have had quite a few new people sign up for our blog postings so I thought I would just touch base. I thought I would let you know that we give away a copy of Lyme Savvy each month to a lucky winner on Facebook in the Lyme Patient Raffle group. Lyme Advise is also currently doing a give away: https://www.facebook.com/lymeadvise/. I don’t know if you heard the latest, but Dr. Mozayeni has accepted a position on the ILADS.org board and he will serve as President starting in 2018! Exciting! https://www.facebook.com/pg/natcaplyme/videos/?ref=page_internal Share...

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Co-infections, Co-infections, Co-infections

Posted on Oct 27, 2017 in Blog |

In the past few weeks, I have talked with several newly diagnosed individuals. Three of them had never heard the word “co-infections.” Thus, they had never heard of Bartonella, Babesia, Erlichiosis . . . and the list goes on. It can be frustrating to educate people about Lyme itself. It can be doubly frustrating to bring them up to speed about the co-infections as well as Lyme. The amount of mis-information about these diseases is overwhelming. I encourage each Lyme patient to find a Lyme Literate Medical Doctor (LLMD) to help you navigate your way to health. And work with your LLMD as a team. One thing that drives me insane: when a patient has an appointment with their LLMD, they develop a new plan for treatment, and then the patient goes on line and asks other patients their opinion of the plan. If you still have questions about your plan, ASK YOUR DOCTOR! Do NOT ask a thousand people who do not have a medical degree, are not familiar with ALL the details of your history and current state. If you feel you can’t work with your LLMD as a team, find a new doctor. I encourage you to read articles from www.whatislyme.com, galaxydx.com, lymeadvise.com, igenex.com, and other Lyme savvy websites. In Lyme Savvy: Treatment Insights for Lyme Patients and Practitioners, we cover many of these co-infections. I encourage you to read it. A note to the new readers: I originally tested positive for Lupus and Lyme. Better testing from Galaxy Diagnostics showed I was positive for Bartonella. I was then treated for Bartonella. And after that treatment, my next Lupus and Lyme tests were negative. It took a smart physician to figure out what I had and how to treat it. Share...

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I Hope You Learned a Few New Things About Lyme Disease

Posted on May 30, 2017 in Blog |

I hope by now you have learned a few things about Lyme disease that you didn’t know thirty days ago. I hope you carry this information forward in case you find yourself infected or you hear from a friend who has a myriad of mysterious symptoms who can’t seem to get an accurate diagnosis. I am happy to speak with anyone regarding this disease. Please feel free to email me at Sharon@sharonrainey.com. Please consider purchasing our book, Lyme Savvy: Treatment Insights for Lyme Patients and Practitioners. Share...

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The Emotionality of Lyme Disease

Posted on May 27, 2017 in Blog |

It has been an uncomfortable month for me. I have spent each day trying to educate everyone around me about Lyme disease, about Bartonella, about chronic infections. I have tried to educate and let people know about the devastation of this set of deadly diseases. I look through pictures and realize who is gone, who died, who is too weak to participate, who has given up. My aunt Betty died in 2002 from a pulmonary embolism – she was too weak from the Lyme disease to walk, so she was wheelchair bound. She died instantly. Two years ago, while attending a Lyme rally in Arlington, I had a pulmonary embolism and didn’t know it. It was another week before I finally saw a vascular surgeon who sent me to the Emergency Room immediately. By then, the DVT (deep vein thrombosis) was from my ankle all the way up to my groin into my femoral vein. My shortness of breath that I had for two weeks was pulmonary emboli that just hadn’t killed me like they did Aunt Betty. A few months ago, I had the same shortness of breath and bloodwork revealed I had survived another DVT. Maybe I’m having a bit of survivor’s guilt. I don’t know why so many incredible loving souls have died and I remain here. I hold onto the thought that God says my work here is not complete yet, so He keeps me around to finish my job. My job isn’t just to educate you about Lyme. My job here is to love each soul as God loves us. We are all part of one great energy source that IS L O V E. I didn’t learn this until my father’s death on March 25, 2016. It took 26 days and nights of miraculous, amazing conversations, and immeasurable love with my Dad to get me to realize some of God’s gifts to my soul, to my relationships. I am grateful to have this opportunity to tell you my experience, strength, and hope in conquering Lyme disease. But I am even more grateful for the love shared among those I have opened up to...

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