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Lyme Savvy is for SALE and AVAILABLE!

Posted on Dec 3, 2016 in Blog |

Lyme Savvy: Treatment Insights for Lyme Patients and Practitioners is NOW FOR SALE! You can order directly from https://www.createspace.com/6177142. Enter the discount code L37GVXBH to receive $4 off the retail price! This is valid only for the month of December! If you pre-ordered a copy, it will arrive in about two weeks’ time. Email me at sharon@sharonrainey.com if you have any questions. I’M SO EXCITED!!!! Lyme Savvy offers important insights into the patient-practitioner dynamic that you need to know to live well while dealing with the disease… and to move toward recovery. In this 624 page volume, rich with information, wisdom and guidance, you will find: • new insights into germs that contribute to chronic illness and small vessel disease; • observations and considerations to help you and your physician rise above the disease process; • stories of patients who have struggled and improved; • important discernments about tests to help diagnose your condition and related contributing factors – tests that many physicians do not currently utilize; • an understanding of the elements of a successful patient-physician working relationship; • therapies that may help relieve pain and suffering; • frank discussions between a Lyme sufferer and her physician, a renowned specialist in the field of Lyme diagnosis and treatment; • powerful, practical suggestions to support you in daily living and improve your quality of life. Lyme Savvy shines a bright light into a world of misinformation, in which sufferers have been stumbling, desperately grasping for help and answers. In these pages, they may finally find what they are hoping for. Share...

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Why Do I talk About Lyme So Much?

Posted on Jul 29, 2015 in Blog |

Why do I talk about Lyme so much? Am I obsessed with it? Do I think everyone I meet could have it? “What is the deal with Sharon and Lyme?” I talk about Lyme because it took me decades to get properly diagnosed and it could have been diagnosed with one test from the right lab. I don’t want others to go through what I went through. I don’t think everyone has it, but I bet 30% of the people I know have at least one DNA band that would test positive for Lyme or a co-infection of Lyme. More importantly . . . I know how easy it is to MISS Lyme Disease. In 2002, in the midst of my symptoms intensifying, my aunt Betty DIED of Lyme Disease. In the midst of her intensifying symptoms, in the midst of her fight to even be tested, I had no idea that my symptoms were similar to hers. Aunt Betty died at the age of 57. Two years before, she was a completely healthy, radiant, psychology professor teaching at Auburn University. A family member, someone I was close to, died of Lyme Disease. . . and I didn’t make the connection. Everything I had kept being explained as something else. So, I never connected it. If I missed Lyme Disease when a family member died of the disease, I worry about everyone else out there who has some of the same symptoms but doesn’t have someone staring them in the face saying, ‘Get Tested for Lyme Disease.’ Imagine my face in front of you. Get tested for Lyme Disease. And when you get tested, demand complete testing from a specialty lab (NOT LabCorp or Quest). Do not settle for just an Elisa test. Do not settle. Sharon’s Symptom History The simplest way to present my own history to you is to show you how many different types of physicians I saw, some of the major medical events that occurred, and of course, the various diagnoses I was assigned. I know many patients can probably relate to this snapshot. Physicians I saw for symptoms Often, I saw more than one...

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The Manuscript is Being Edited!

Posted on Jul 26, 2015 in Blog |

I gave my version of the manuscript to my co-author last week and he is now reading it!  I am excited beyond words!  He is happy with about 90% of the work done which is most excellent since he has only seen it twice.  We are working on graphics while he is working on edits.  I am VERY excited that we are close to the finish line!  Just wanted to keep everyone updated! Share...

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Rebecca Wells on Lyme Disease

Posted on Jul 26, 2015 in Blog |

This story was written i think back in 2005, but i found it most helpful. Dear Readers, I have advanced neurological Lyme disease. It affects the way I think, move, write, read, eat—every aspect of my life. During the same time in 1998-1999 that my novels, Divine Secrets of the Ya-Ya Sisterhood and Little Altars Everywhere introduced the Ya-Yas to millions of readers, I was becoming very sick and did not know it. At first I thought I just had a recurring case of bronchitis. I didn’t foresee the difficult journey that lay ahead of me. Things went from one weird symptom to the next, then a whole cocktail of symptoms kept developing. I stopped saying, “Things can’t get any worse than this.” Because they did, again and again. Years went by in which I did not know what was wrong with me. I was told maybe I had a brain tumor, perhaps epilepsy; maybe I had dystonia, maybe if I took the latest miracle anti-depressant all my symptoms would magically disappear. (Pause very carefully if ANYone tells you that.) In the last seven years, my symptoms have included respiratory infections, intense muscular skeletal pain, severe fatigue, Multi-Chemical Sensitivity (MCS), hunger for air, extreme sensitivity to light and sound, seizure-like events, and freezing hands and feet (probably due to peripheral neuropathy). Weakness in my lower limbs has been one of the most dangerous symptoms because it can—and does—lead to falling down. At times I was so deeply fatigued while writing Ya-Yas in Bloom that I could not lift my hands. I often had to use a wheelchair to get to the door of my writing room, then be lifted by my husband into my writing chair because the door was not wide enough for the wheelchair to get through. To finish Ya-Yas in Bloom I had to accept the situation I was in and find ways to work that respected my limitations. I realized that I was being given small packets of energy to be used wisely. Once I accepted this, I was able to complete the book. Like any act of creation, whether baking a pie or chopping wood, creativity can dispel the dark. Ya-Yas in Bloom reminds me...

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The ABCs of Sharon Rainey

Posted on Jun 25, 2015 in Blog |

Here are mine; feel free to send me yours! A – Alcoholics Anonymous – a program that saved my life and my sanity from the age of 25 and forward. B – Bartonella – the co-infection of Lyme disease that controlled my life for too many years. C – Cavalier King Charles dogs – We have four of them. With the puppies that Lola had, we were housing 10 dogs in our house this year for about 5 months. CRAZY. D – Depression; a disease I suffered from for too many years. E – Email; it’s the best way to communicate with me. F – Facebook; my newest way to connect with people. Yes, it can be a timewaster, but it has given me so many new friendships, insights, connections. G – Glasses since I was three I think. Tried contacts and scratched my cornea three times. Glasses it is. Colorful glasses. I like them in pink, turquoise, and purple. H – Hair – long because that’s how my husband loves it. Blonde to cover the gray and always with a surprise color underneath. Today’s color: raspberry pink! I – Introverted. In a big way. I could be very happy living in the southwest, seeing no one and just staying connected via email. J – Jeffrey; my best friend, my husband, my lover – married 24.5 years. K – Knitting and counted cross stitch and needlepoint – hobbies that keep me focused and calm. L – Lyme disease – a disease that killed my aunt and sickened too many members of my family. M – myNeighborsNetwork.com – my creation, my business, my way of connecting with my Neighbors without having to dress up every day.. N – North – an area I am not too familiar with and don’t feel a need to be. Just keep me in the southwest with deserts and open vistas. Better yet, just take me to White Sands again. O – Organic food; I used to think it was a scam for consumers; now I try to eat only organic food. It has helped me heal. P – Pearls – my favorite jewelry and...

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