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Interview with Dr. Mozayeni at NorVect Conference 2015

Posted on Nov 11, 2015 in Blog |

I like this interview for numerous reasons: He explains what his experience was in the practice and what he was seeing that didn’t fit in with borrelia – which led him to Bartonella He explains the difference between #Borrelia and #Bartonella He talks about big data and genome sequencing coming soon at a cheaper rate He talks about biofilms He talks about the other diseases that are confused with Bartonella – just a set of symptoms, not a diagnosis. Love that. He emphasizes the importance of finding the root cause. He talks about not being able to sleep at night until he can fix the problem – that’s very comforting to the patients. Shows how much compassion and drive he has. He places emphasis on personalizing the healing process for each patient. He talks about the politics and if we do it the “old way” the patients would have to wait 17-21 years for something to change. Great ending. Share...

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The ABCs of Sharon Rainey

Posted on Jun 25, 2015 in Blog |

Here are mine; feel free to send me yours! A – Alcoholics Anonymous – a program that saved my life and my sanity from the age of 25 and forward. B – Bartonella – the co-infection of Lyme disease that controlled my life for too many years. C – Cavalier King Charles dogs – We have four of them. With the puppies that Lola had, we were housing 10 dogs in our house this year for about 5 months. CRAZY. D – Depression; a disease I suffered from for too many years. E – Email; it’s the best way to communicate with me. F – Facebook; my newest way to connect with people. Yes, it can be a timewaster, but it has given me so many new friendships, insights, connections. G – Glasses since I was three I think. Tried contacts and scratched my cornea three times. Glasses it is. Colorful glasses. I like them in pink, turquoise, and purple. H – Hair – long because that’s how my husband loves it. Blonde to cover the gray and always with a surprise color underneath. Today’s color: raspberry pink! I – Introverted. In a big way. I could be very happy living in the southwest, seeing no one and just staying connected via email. J – Jeffrey; my best friend, my husband, my lover – married 24.5 years. K – Knitting and counted cross stitch and needlepoint – hobbies that keep me focused and calm. L – Lyme disease – a disease that killed my aunt and sickened too many members of my family. M – – my creation, my business, my way of connecting with my Neighbors without having to dress up every day.. N – North – an area I am not too familiar with and don’t feel a need to be. Just keep me in the southwest with deserts and open vistas. Better yet, just take me to White Sands again. O – Organic food; I used to think it was a scam for consumers; now I try to eat only organic food. It has helped me heal. P – Pearls – my favorite jewelry and...

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Getting Through the Rough Times with Lyme Disease

Posted on Oct 3, 2014 in Blog |

I received this wonderful note (below) today from a friend who also battles Lyme disease. Both she and her boyfriend have been in treatment for a few years. I bring this to light not to brag, but rather I wanted to contrast it with a chapter that Jeff wrote that will be going into Lyme Savvy. Realistic or not, numerous people have assumed that Jeff and I have always been “on the same page” together and that we have always been 100% supportive of one another. When someone mentions this to us, we try to give a realistic picture of our relationship. We don’t want to be on a pedestal. We have spent years struggling to keep it together. We just happen to be in a really great place right now. So now you can see the big picture: the good, the bad, the ugly, and the profoundly amazingly wonderful. It was very hard for me to read through the first part of Jeff’s chapter. Those moments are still stuck inside me in a very tender place. Even knowing where we are now, it is hard to take that look back and remember. But remembering allows me to cherish how far we have come. If you are struggling in a relationship, know that if you both want it to work and you both are willing to do whatever it takes to make it work, you CAN make it work and you can succeed as a couple. Hang in there. “I wanted you to know, that X and I would not have made it through much of the “bad days” (or months, or years?!!) without your loving advice. We always looked up to you and Jeff so much as you all stuck by one another’s side through it all. All of the advice you have given us over the years has really paid off. I am so glad that you were there from the beginning to support us and encourage us to just be there with on another. Because we did that, we never thought of our “bad (physical) days” as “bad days” because we were together, doing what we...

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Death of My Uncle

Posted on May 23, 2014 in Blog |

George “Troup” Brazelton III died suddenly on Thursday, May 1, 2014.  Troup was my uncle. Born on October 26, 1940 in Bessemer Alabama, he graduated from Parrish High School in Selma, Alabama in 1959 and graduated from Auburn University in 1968. Troup was an affable man. He diffused warmth and friendliness with anyone he came into contact with.  He could find a way to connect with anyone, whether he met you in a coffee shop or tailgating at an Auburn University football game.  He could initiate a conversation with anyone, any age, and find something in common within minutes of striking up the conversation.  It was a special talent Troup had that put people at ease- usually making them smile within minutes of meeting him.  He was quick witted and honest. You can tell a lot about a man about how he treats the women around him.  Troup treated his mother and his mother-in-law with great respect, honor, and genuine love.  He took them for drives to see the blooming crepe myrtles and azaleas. He shelled pecans with them. Troup often sat in a chair watching the television – he loved sports and the news shows.  He had opinions and welcomed debate with those that disagreed with him.  He wasn’t a loud or gregarious man; he was quiet in tone.  But he made people laugh.  His statements of the obvious could have been good enough for a stand-up comedy routine sometimes.  But his ability to make others laugh was in a “sneak up behind you and tap you on the shoulder” sort of subtlety. My first soul connection with Troup came in 2000 as he cared for Aunt Betty during her last years of declining health.  What started as a “reaction to suntan lotion” later evolved into a diagnosis of Lupus, to ALS, but was finally found to be Lyme Disease. During Betty’s last 24 months, Troup spent every moment caring for her, researching her symptoms, contacting physicians, doing everything in his power to save her life.  They had found the right diagnosis, and she was getting the right treatment, but it was simply too late.  The Lyme had ravaged too much of her...

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The Roundabout Way

Posted on Apr 21, 2013 in Blog |

April 21st – I have accepted The Health Activist Writer’s Month Challenge to write daily about my disease. #HAWMC @wegohealth I just re-read my very first blog posting in 2009 about my journey to get to the Lyme Disease Diagnosis. I thought it was worth reposting . . . . The Initial Few Weeks Note from Sharon: By verge of reading this page, you know that I have been diagnosed with Late Stage Chronic Lyme Disease and not Lupus. But the initial Lupus diagnosis is part of my story, so if you want to know the story from the beginning, we have to start with Lupus this past July. . . . . July 17, 2009 Two days ago I was diagnosed with Lupus. Auto-immune is about all I knew about then. I left the endocrinologist’s office with strict instructions to see a rheumatologist as soon as possible. When I walked out of the office, the sun was beaming down, humidity was low, so the warmth wasn’t suffocating. I called my sister, the nurse, and told her. “I am so sorry, Sharon,” she offered to me. “What’s your ANA ratio?” followed quickly afterward. Yep, she’s a nurse. She needs facts, details. “1:340 with a speckled pattern. It means I’m in an active phase of Lupus,” I answered. I didn’t even know what I was saying; rather just regurgitating what I was told. I gave Gayle the other data I had and I answered a lot of her questions with “I don’t know.” It was a starting point. I called the rest of my immediate family and gave them the information. It’s still not sinking in. I find myself smiling. This means I don’t need back surgery!! I think this may be the best news I have had in weeks. It’s strange to think that Lupus is a better reply. But I will take it for now. So God, what’s my lesson with Lupus? Silence July 18th, 2009 I went to a meeting this morning and shared my diagnosis with the group. When I say, “I just found out a few days ago that I have Lupus,” it feels as...

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