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Co-infections, Co-infections, Co-infections

Posted on Oct 27, 2017 in Blog |

In the past few weeks, I have talked with several newly diagnosed individuals. Three of them had never heard the word “co-infections.” Thus, they had never heard of Bartonella, Babesia, Erlichiosis . . . and the list goes on. It can be frustrating to educate people about Lyme itself. It can be doubly frustrating to bring them up to speed about the co-infections as well as Lyme. The amount of mis-information about these diseases is overwhelming. I encourage each Lyme patient to find a Lyme Literate Medical Doctor (LLMD) to help you navigate your way to health. And work with your LLMD as a team. One thing that drives me insane: when a patient has an appointment with their LLMD, they develop a new plan for treatment, and then the patient goes on line and asks other patients their opinion of the plan. If you still have questions about your plan, ASK YOUR DOCTOR! Do NOT ask a thousand people who do not have a medical degree, are not familiar with ALL the details of your history and current state. If you feel you can’t work with your LLMD as a team, find a new doctor. I encourage you to read articles from www.whatislyme.com, galaxydx.com, lymeadvise.com, igenex.com, and other Lyme savvy websites. In Lyme Savvy: Treatment Insights for Lyme Patients and Practitioners, we cover many of these co-infections. I encourage you to read it. A note to the new readers: I originally tested positive for Lupus and Lyme. Better testing from Galaxy Diagnostics showed I was positive for Bartonella. I was then treated for Bartonella. And after that treatment, my next Lupus and Lyme tests were negative. It took a smart physician to figure out what I had and how to treat it. Share...

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Sharon’s Symptom History

Posted on May 17, 2017 in Blog |

The simplest way to present my own history to you is to show you how many different types of physicians I saw, some of the major medical events that occurred, and of course, the various diagnoses I was assigned. I know many patients can probably relate to this snapshot. Physicians I saw for symptoms: Often, I saw more than one each of the following: Cardiologist, Chiropractor, Dentist, Dermatologist, Endocrinologist, Gastroenterologist, Internist, Neurologist, Gynecologist, Neurosurgeon, Ophthalmologist, Optometrist, Oral Surgeon, Orthopedist, Osteopath, Otolaryngologist (ENT), Physical Therapist, Psychologist, Psychiatrist, Rheumatologist, Surgeon, Urologist Sharon’s Symptom History 1981: viral meningitis, unexplained fatigue and exhaustion 1984: diarrhea, abdominal pain, loss of appetite, mouth ulcers, grinding teeth/jaw pain 1988: elevated gastrin levels 1993: depression and anxiety 1995: migraines 1996: h.pylori infection 1999: shattered right foot 2001: recurrent sinus infections, night sweats, hot flashes, dry skin, itchy ears 2002: falling easily, pain in knees and thighs, muscle weakness, sensitivity to sunlight, memory loss 2003: clumsiness, repeated falls, muscle weakness, thigh pain, swollen joints, tooth dies 2004: gallstones, abdominal pain, fatigue, hair loss, noise sensitivity 2005: gastrin level elevated, depression, forgetfulness, trouble focusing, sticky blood 2006: diarrhea, headaches, daytime sleepiness and insomnia, elevated heart rate, word and name search, phasing out of conversations 2008: persistent, dry cough, numbness in hands and feet, chest pains, muscle twitching 2009: back pain, hip pain, occasional blurry vision, incontinence, unexplained rashes, positive Lupus test (positive ANA with speckled pattern) Other General Symptoms Allergies: seasonal allergies, chronic sinus infections Cardiovascular: low blood pressure, perspire easily, dizzy upon standing Constitutional: migraines, weight gain, fatigue, cold extremities, afternoon drowsiness, night sweats, sensitivity to chemicals Ears, Nose, Mouth & Throat: sensitivity to sounds, ringing in the ears, sinusitis, mercury/silver fillings in teeth, mouth ulcers, jaw paint/teeth grinding, dental problems, unexplained face pain Endocrine: heat intolerant, cold intolerant, thyroid disorder, low body temperature
 Eyes & Vision: dry eyes, blurred vision, floating spots, light sensitive, peripheral waves Digestive System: bloating, trouble digesting fats, hemorrhoids, ulcers, irritable bowel, diarrhea, abdominal pain, nausea/upset stomach Genito-Urinary System: incontinences, cramps, heavy flow, PMS, menstrual irregularity, menstrual pain, pelvic pain, health fluctuates with cycles, hot flashes Hematological: Anemia, leg pain with walking Immunological:...

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Other Diseases that Can Actually be Lyme Disease

Posted on May 5, 2017 in Blog |

It took me several years to get an accurate diagnosis. On the path to that diagnosis, my then endocrinologist tested me for Lupus and it was a positive result. I was very lucky in some regards. When my uncle heard this, he called me and urgently asked me to be tested for Lyme Disease. Aunt Betty had also tested positive for Lupus. But she had Lyme. Physicians are finding that many patients’ test results are cross reacting. There are many case studies for patients who have originally tested positive for Asthma or COPD, Lupus, Fibromyalgia, Multiple Sclerosis, Chronic Fatigue Syndrome, and ALS who, once they go through successful treatment for Lyme or a co-infection of Lyme, their ‘other’ disease disappears. After my Bartonella treatment, my Lupus test became negative. It’s worth testing. Share...

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Lyme Savvy is for SALE and AVAILABLE!

Posted on Dec 3, 2016 in Blog |

Lyme Savvy: Treatment Insights for Lyme Patients and Practitioners is NOW FOR SALE! You can order directly from https://www.createspace.com/6177142. Enter the discount code L37GVXBH to receive $4 off the retail price! This is valid only for the month of December! If you pre-ordered a copy, it will arrive in about two weeks’ time. Email me at sharon@sharonrainey.com if you have any questions. I’M SO EXCITED!!!! Lyme Savvy offers important insights into the patient-practitioner dynamic that you need to know to live well while dealing with the disease… and to move toward recovery. In this 624 page volume, rich with information, wisdom and guidance, you will find: • new insights into germs that contribute to chronic illness and small vessel disease; • observations and considerations to help you and your physician rise above the disease process; • stories of patients who have struggled and improved; • important discernments about tests to help diagnose your condition and related contributing factors – tests that many physicians do not currently utilize; • an understanding of the elements of a successful patient-physician working relationship; • therapies that may help relieve pain and suffering; • frank discussions between a Lyme sufferer and her physician, a renowned specialist in the field of Lyme diagnosis and treatment; • powerful, practical suggestions to support you in daily living and improve your quality of life. Lyme Savvy shines a bright light into a world of misinformation, in which sufferers have been stumbling, desperately grasping for help and answers. In these pages, they may finally find what they are hoping for. Share...

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The Duration of Your Illness Does Not Determine Whether or Not You Will Heal

Posted on May 2, 2016 in Blog |

May is Lyme Disease Awareness Month. I will spend this month pulling quotes from our about to be released book Lyme Savvy: Treatment Insights for Lyme Patients and Practitioners. I apologize for the delay in its publication. We had planned to be in print by May 1, but my father’s sudden illness and subsequent death pushed back the production schedule. “It does not appear the duration of your disease determines whether or not you will heal. This is great news for patients who have been ill a long time.” – Dr. B. Robert Mozayeni, Lyme Savvy   When I saw Dr. Mozayeni for the first time in September, 2009, I had been sick for 29 years without reasonable explanation or viable treatment. Having been sick for so long, I almost thought I would never heal. I had seen too many specialists, developed too many rare conditions. I had almost given up hope. After 19 months of treatment, I tested clear for Bartonella in April, 2011 and have tested clear for the five years since. I am still battling Babesia, which at this time is incurable but treatable. This past weekend, I planted herbs and annuals in a small garden. My hands had not touched dirt since 2008 I think because of the vast fatigue these co-infections cause. Healing is happening. I was the typical “List of Symptoms” patient. The simplest way to present my own history to you is to show you how many different types of physicians I saw, some of the major medical events that occurred, and of course, the various diagnoses I was assigned. I know many patients can probably relate to this snapshot. Physicians I saw for symptoms Often, I saw more than one each of the following: Cardiologist, Chiropractor, Dentist, Dermatologist, Endocrinologist, Gastroenterologist, Internist, Neurologist, Gynecologist, Neurosurgeon, Ophthalmologist, Optometrist, Oral Surgeon, Orthopedist, Osteopath, Otolaryngologist (ENT), Physical Therapist, Psychologist, Psychiatrist, Rheumatologist, Surgeon, Urologist Sharon’s Symptom History 1981: viral meningitis, unexplained fatigue and exhaustion 1984: diarrhea, abdominal pain, loss of appetite, mouth ulcers, grinding teeth/jaw pain 1988: elevated gastrin levels 1993: depression and anxiety 1995: migraines 1996: h.pylori infection 1999: shattered right foot...

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