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One Spouse’s View of Lyme Disease

Posted on May 20, 2017 in Blog |

My husband Jeff wrote an entire chapter in our book Lyme Savvy: Treatment Insights for Lyme Patients and Practitioners. I have included his concluding paragraphs below. It is work, hard, daily work, to support and love a spouse, partner or family member with Lyme and co-infections. But it is vital. Every patient needs and wants to be loved and believed. They are not crazy, or “attention seekers.” They are not making this up. Each and every symptom is real. They are in pain. They are confused. They have very real problems making simple decisions; even the day-to-day decisions are difficult. It is hard to describe the exhaustion because it is so bone and soul deep. The look in the eyes of the infected is deep-set and far away pain and angst ridden. The hurt is deep. Often, the only thing that helps is holding them and reassuring them they are loved and you will be there for them. It is this depth of unconditional love we must wrap them with. Love and care is healing. Share...

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Disease Transmission to Humans

Posted on May 16, 2017 in Blog |

The following is an excerpt from Lyme Savvy: Treatment Insights for Lyme Patients and Practitioners. We open this section talking about Bartonella, but Lyme disease is also discussed. Keep reading to find out more. Disease Transmission to Humans Dr. Mozayeni There are many ways to get Bartonella, including from your cat. When infected, cats have a million fold higher circulating level of Bartonella. If they are indoor/outdoor cats or feral cats, 80% or more carry Bartonella. The numbers are probably higher but even the sickest cats will have four-to-five days of the month during which they will no detectable Bartonella in their blood. There are many ways to get Bartonella: from fleas, cats, and potentially other biting insects strongly suspected but not strictly proven. So it becomes a much more prevalent infection. The other Protozoa infections probably follow the same pathways in terms of the ways they are spread. Vectors are agents that transmit the various Protozoa that makes people sick. Protozoa get into and on red cells that can be transmitted by mosquitoes, known transmitters of Protozoa. It stands to reason, then, that Babesia and Babesia-like things can be transmitted by mosquitoes. Mosquitoes may be the principle vector. Here we all are worried about deer ticks and most patients with Lyme Disease cannot remember a deer tick bite. But everyone I know can remember a mosquito bite. Everyone I know has probably run into fleas more often than they have run into deer ticks. There are all kinds of fleas. There are sand fleas at the beach. There are fleas on your cat, fleas on your dog. Nine percent of dogs carry Bartonella but when they do, their blood levels are a lot lower so I don’t think they represent as big a reservoir or a risk as cats do. The landscape of chronic infection is far bigger than just Borrelia. This probably explains why patients with these chronic symptoms will all classify their condition as Lyme Disease; it punches their card into a support system. It is a way to describe what they have. But it retards scientific progress because the term is too broad, given the...

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How Did I Heal?

Posted on May 12, 2017 in Blog |

Every patient heals differently. There is no one way to treat this disease. And depending on what combination of co-infections you may have, the treatment course can vary. For me, some of the primary ingredients to my healing included (not necessarily in this order): long term use of oral antibiotics and anti-malarials, pharmaceutical grade supplementation, being an active team member with my LLMD’s practice including remaining compliant in my treatment protocol more than 95% of the time, acupuncture, reiki, EMDR therapy for PTSD, therapeutic rest, Hyper-bariac Oxygen Therapy (HBOT), ketamine infusions for depression and grief, physical therapy, laser therapy and dry needling for trigger points, radical changes in my work/life balance, marriage counseling, regular body massages for pain control and fascia release, establishing boundaries with friends and family members, prayer and meditation, walking in nature on a consistent basis, learning to say no without explanation or guilt, creating art, and always putting my health as my #1 priority on a daily basis. This is not a simple, self-limiting disease with a quick treatment protocol. Get tested, find a reputable LLMD, and get treatment. Share...

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Finding a Reputable Lyme Doctor

Posted on May 11, 2017 in Blog |

If you have Lyme disease, you need to be treated by a Lyme Literate Medical Doctor, also known as an LLMD. You can’t just Google them. A good place to start looking is through the ILADS.org website. They can direct you to physicians in your area who have taken courses through their organization. Or even better, look for physicians who have taught the courses. They are the ones who see the most patients, have the most experience with effective treatment, and hold the most wisdom for healing their patients. There are not many LLMDs in the world. You may have to travel a great distance to see a qualified LLMD. Do not cut corners on this aspect of your healing. All LLMDs are NOT created equal. Most LLMDs now require an “application” process. They are literally so overloaded with patient caseloads, that they can pick and choose which patients they will see. While this process may seem absurd from the patient’s point of view, I can tell you now (from the other side), that the physician wants to make this a win/win experience. They want to match up well with each patient to make this a healing experience. If you don’t click with your physician, if you don’t feel you can work as a team, the treatment will not work. So find someone you trust, someone you can align your beliefs with. A few questions you may want to ask your possible physician are: Do you test for co-infections? If so, which labs do you use? How long does your average treatment protocol last? (none of them like this question) What is your philosophy concerning antibiotic treatment? Do you prefer PICC lines or oral antibiotics? Why? Do you treat other conditions such as thyroid and adrenal issues? Or do you focus on only Borrelia and co-infections? How often do you see patients? Some physicians set monthly appointments, others every six weeks. How do I contact the office when I have a problem that cannot wait until the next appointment or if I have an emergency? What is the best way to communicate with office staff and with you between...

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Helpful Media Related to Lyme Disease

Posted on May 9, 2017 in Blog |

Directly Lyme Related: A Twist of Lyme: Battling a Disease that “Doesn’t Exist” by Andrea Caeser Auto-immune Illness and Lyme Disease Recovery by Katina I. Makris Beyond Lyme Disease: Healing the Underlying Causes of Chronic Illness in People with Borreliosis and Co-Infections by Connie Strasheim and Lee Cowden MD Chronic Illness as an Access to Quantum Healing by Jenny Rush Coping with Lyme Disease: A Practical Guide to Dealing with Diagnosis and Treatment by Denise Lang and Kenneth Liegner Cure Unknown: Inside the Lyme Epidemic by Pamela Weintraub “It’s All In Your Head”, Around the World in 80 Lyme Patient Stories: Valid Reasons to Debate Current Treatment by PJ Langhoff Lyme Savvy: Treatment Insights for Lyme Patients and Practitioners by Sharon E. Rainey and B. Robert Mozayeni, MD Nature’s Dirty Needle: What You Need to Know About Chronic Lyme Disease and How to Get the Help To Feel Better by Mara Williams Out Of The Woods: Healing Lyme Disease Body, Mind & Spirit by Katina Makris The Beginner’s Guide to Lyme Disease: Diagnosis and Treatment Made Simple by Nicola McFadzean N.D. and Joseph J. Burrascano Jr. M.D. If I Only Had a Brain Injury: A TBI Survivor and Life Coach’s Guide to Chronic Fatigue, Concussion, Lyme Disease by Laura Bruno Medical and Trauma Related: Invisible Heroes: Survivors of Trauma and How They Heal by Belleruth Naparstek The Anatomy of Hope by Jerome Groopman Hypothyroidism Type 2: The Epidemic by Mark Starr The Trauma Spectrum: Hidden Wounds and Human Resiliency by Robert C. Scaer Waking the Tiger: Healing Trauma: The Innate Capacity to Transform Overwhelming Experiences by Peter A. Levine, Ann Frederick Films The Living Matrix What the Bleep Do We Know (2004) Ram Dass Fierce Grace (2001) Conversations with God (2006) Under Our Skin (2009) Under Our Skin – Part 2: Emergence (2015) Websites Chronic Lyme Nutrition – www.chroniclymenutrition.com Galaxy Diagnostics – www.galaxydx.com International Lyme and Associated Diseases Society (ILADS) – www.ilads.org Beating Bartonella – www.beatingBartonella.com Fisher Wallace Laboratories – http://www.fisherwallace.com/ What is Lyme? – www.whatislyme.comweb.ncsu.edu Translational Medicine Group – www.tmgmd.com Better Health Guy – www.betterhealthguy.com Lyme Disease.org -www.lymedisease.org National Capital Lyme Disease Association – www.natcaplyme.org www.lymenet.org www.lymediseaseassociation.org www.publichealthalert.org...

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