Lyme Savvy | A one-of-a-kind collaboration between patient and doctor

Navigation Menu

Co-infections, Co-infections, Co-infections

Posted on Oct 27, 2017 in Blog |

In the past few weeks, I have talked with several newly diagnosed individuals. Three of them had never heard the word “co-infections.” Thus, they had never heard of Bartonella, Babesia, Erlichiosis . . . and the list goes on. It can be frustrating to educate people about Lyme itself. It can be doubly frustrating to bring them up to speed about the co-infections as well as Lyme. The amount of mis-information about these diseases is overwhelming. I encourage each Lyme patient to find a Lyme Literate Medical Doctor (LLMD) to help you navigate your way to health. And work with your LLMD as a team. One thing that drives me insane: when a patient has an appointment with their LLMD, they develop a new plan for treatment, and then the patient goes on line and asks other patients their opinion of the plan. If you still have questions about your plan, ASK YOUR DOCTOR! Do NOT ask a thousand people who do not have a medical degree, are not familiar with ALL the details of your history and current state. If you feel you can’t work with your LLMD as a team, find a new doctor. I encourage you to read articles from www.whatislyme.com, galaxydx.com, lymeadvise.com, igenex.com, and other Lyme savvy websites. In Lyme Savvy: Treatment Insights for Lyme Patients and Practitioners, we cover many of these co-infections. I encourage you to read it. A note to the new readers: I originally tested positive for Lupus and Lyme. Better testing from Galaxy Diagnostics showed I was positive for Bartonella. I was then treated for Bartonella. And after that treatment, my next Lupus and Lyme tests were negative. It took a smart physician to figure out what I had and how to treat it. Share...

Read More

Lyme, Borrelia, Bartonella, Protozoa

Posted on May 14, 2017 in Blog |

The following is an excerpt Dr. Mozayeni wrote from our book Lyme Savvy: Treatment Insights for Lyme Patients and Practitioners I think when Borrelia is present, it tends to be associated with joint pain and sometimes joint swelling because the lining of the joints is very vascular; it is getting its nourishment from the vessels of connective tissue. The lining itself of the joints is the synovium and the synovial tissue is highly vascular. That is why there is a lot of action and a lot of symptoms related to synovial inflammation with all of these chronic infections, Bartonella and Protozoa included. Given this new perspective, the question then becomes: How does this realization shift the diagnostic and therapeutic emphasis? You have to look at Bartonella with the best available test. You have to look at the Protozoa with the best available test, and You have to understand – It is a far stronger form of evidence when you have molecular proof of these infections using these new tests than having a few antibody bands on a Western blot. We need to use molecular tests to succeed more with our therapies. Share...

Read More

It’s a Blip

Posted on Jan 24, 2016 in Blog |

I saw my latest blood smear last week.  It was not what we expected.  I thought I had beaten the Bartonella and Protomyxzoa Rheumatica and the plan was to next start attacking the Babesia.  The plan has now changed. I go back into full treatment late next week after the “after effects” of my latest vacation wear off.  I will start back on anti-malarial meds. Once I get the routine down for those meds, and once we get the blood work PCR confirmation from Galaxy Diagnostics, I will then start back into Bartonella treatment. I don’t know how long this protocol will be.  I didn’t ask. Dr. M reminded me that when I went through treatment in 2009, the treatment protocol was version 1.0.  Now, he is on version 8.0 or so.  It will be better this time around.  He is also adding two new drugs for me to hopefully reduce the side effects of the medications.  These will hopefully help with pain, mood, anxiety, and depression. I’m also still getting Toradol (NOT Tramadol) injections each time I go up there.  These are anti-inflammatory only but help ease my lower back pain tremendously, temporarily (24 hours).  He has been able to reduce my pain considerably. I know Babesia is considered incurable.  But if anyone can cure me, I believe it to be Dr. M.  No one else is even trying.  He has some amazing research done and some incredible theories that I am willing to help him test out. The Bartonella was supposedly incurable as well back in the early 2000s, but Dr. M has put patients in remission for five and more years.  I thought I was cured.  I was in remission for 4.5 years.  So, I will go through treatment again and plan for a much longer remission next time. The Protomyxzoa Rheumatica is a huge unknown.  It was discovered by Dr. Steven Fry in 2011.  Dr. Fry and Dr. M are the only two physicians I know of who are researching a treatment for it. Imagine finding a certain cancer less than five years ago and how long it would take to find a cure for...

Read More

Bartonella

Posted on May 20, 2013 in Blog |

Day 20-May is Lyme Disease Awareness Month From Galaxy Diagnostics Laboratories website (www.galaxydx.com): Galaxy Diagnostics offers the most sensitive test for the detection of active Bartonella infection. Our Bartonella ePCRTM (or EnrichmentPCRTM) test combines the patented BAPGM enrichment culture with a highly sensitive molecular method to significantly increase the odds of detection. The test includes pre- and post-culture PCR results and DNA sequencing verification for all positive results to confirm the exact species of infection. Performance data indicates that this novel testing methodology is 4 to 5 times more sensitive than existing PCR tests for Bartonella and at least 2 times more sensitive than IFA serology. Bartonella are hard-to-detect, vector-borne bacteria linked to both acute and chronic disorders affecting the joints, neurological system, and vascular system. Over 25 species of Bartonella have been identified, with 10-12 species now linked to human disease. Transmission is thought to occur by way of animal bites and scratches and from contact with fleas, ticks, lice, and sand flies. Current research indicates that individuals with high levels of animal and vector contact are particularly at risk for Bartonella infection. The most common species of infection are Bartonella henselae, the key agent in Cat Scratch Disease, and Bartonella quintana, the key agent in Trench Fever. Well established as a cause of life-threatening complications in immune-compromised patients (i.e., HIV patients), Bartonella infection is one of the most important emerging infectious diseases currently under study. The diagnosis of Bartonella infection is seriously hampered by high false negative rates associated with existing testing technologies. We offer a testing methodology with significant gains in sensitivity and the highest level of certainty regarding the specificity of our test results. Our approach to providing this testing service is anchored in the emerging research on Bartonella infection and centered upon the highest possible standards of laboratory practice. Share...

Read More

Does Your Pet Have Lyme?

Posted on May 6, 2013 in Blog |

Day 6 – May is Lyme Disease Awareness Month If your animal has tested positive for Lyme, the family should be tested for lyme and its co-infections. The ticks and fleas don’t care who they feed off of. It IS possible for cats and dogs to get co-infections. We had a cat test positive for Bartonella and Erlichiosis. Co-infections of Lyme: Colorado Tick Fever, Rocky Mountain Spotted Fever, QFever, Bartonella, Babesia, Erlichiosis, Mycoplasma, or Protomyxzoa Rheumatica Share...

Read More
css.php