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Helpful Media Related to Lyme Disease

Posted on May 9, 2017 in Blog |

Directly Lyme Related: A Twist of Lyme: Battling a Disease that “Doesn’t Exist” by Andrea Caeser Auto-immune Illness and Lyme Disease Recovery by Katina I. Makris Beyond Lyme Disease: Healing the Underlying Causes of Chronic Illness in People with Borreliosis and Co-Infections by Connie Strasheim and Lee Cowden MD Chronic Illness as an Access to Quantum Healing by Jenny Rush Coping with Lyme Disease: A Practical Guide to Dealing with Diagnosis and Treatment by Denise Lang and Kenneth Liegner Cure Unknown: Inside the Lyme Epidemic by Pamela Weintraub “It’s All In Your Head”, Around the World in 80 Lyme Patient Stories: Valid Reasons to Debate Current Treatment by PJ Langhoff Lyme Savvy: Treatment Insights for Lyme Patients and Practitioners by Sharon E. Rainey and B. Robert Mozayeni, MD Nature’s Dirty Needle: What You Need to Know About Chronic Lyme Disease and How to Get the Help To Feel Better by Mara Williams Out Of The Woods: Healing Lyme Disease Body, Mind & Spirit by Katina Makris The Beginner’s Guide to Lyme Disease: Diagnosis and Treatment Made Simple by Nicola McFadzean N.D. and Joseph J. Burrascano Jr. M.D. If I Only Had a Brain Injury: A TBI Survivor and Life Coach’s Guide to Chronic Fatigue, Concussion, Lyme Disease by Laura Bruno Medical and Trauma Related: Invisible Heroes: Survivors of Trauma and How They Heal by Belleruth Naparstek The Anatomy of Hope by Jerome Groopman Hypothyroidism Type 2: The Epidemic by Mark Starr The Trauma Spectrum: Hidden Wounds and Human Resiliency by Robert C. Scaer Waking the Tiger: Healing Trauma: The Innate Capacity to Transform Overwhelming Experiences by Peter A. Levine, Ann Frederick Films The Living Matrix What the Bleep Do We Know (2004) Ram Dass Fierce Grace (2001) Conversations with God (2006) Under Our Skin (2009) Under Our Skin – Part 2: Emergence (2015) Websites Chronic Lyme Nutrition – www.chroniclymenutrition.com Galaxy Diagnostics – www.galaxydx.com International Lyme and Associated Diseases Society (ILADS) – www.ilads.org Beating Bartonella – www.beatingBartonella.com Fisher Wallace Laboratories – http://www.fisherwallace.com/ What is Lyme? – www.whatislyme.comweb.ncsu.edu Translational Medicine Group – www.tmgmd.com Better Health Guy – www.betterhealthguy.com Lyme Disease.org -www.lymedisease.org National Capital Lyme Disease Association – www.natcaplyme.org www.lymenet.org www.lymediseaseassociation.org www.publichealthalert.org...

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Am I Cured?

Posted on May 7, 2017 in Blog |

If I had realized back in 2009 that I would still be in treatment of some sort seven years later, I am not sure I would have stuck with the plan. I was lucky in a few ways. First, I was directed to the world’s best physician in treating Bartonella. He knew how to test me and treat me. Two years after starting treatment, I was clear of Bartonella. I have tested clear of Bartonella since 2011. But I also tested positive for Babesia. Babesia is also a co-infection of Lyme disease. The parasite that leads to Babesia is commonly seen in blacklegged deer ticks. It’s common to find ticks and enzootic hosts carrying both Borrelia burgdorferi (Lyme disease) and Babesia. Between 12% and 42% of rodents are co-infected with both agents. It is currently incurable. But it can be managed. Dr. Daniel Cameron has an excellent article on this topic. In 2011, another parasite was discovered called Protomyxzoa Rheumatica FL1953 by Dr. Steven Fry of Fry Labs in Arizona. Guess who tested positive for that too? Today, I am in treatment for both and am having remarkable results. Approximately 90% of all my original symptoms are GONE. I can work again. I can write again. I can think again. I have hope. I have a healthy marriage. I have a joyful life. Am I “cured”? No. I call it remission, similar to cancer. The load of infection within my bloodstream has dramatically decreased in the past few years allowing me for a fuller, richer life. I still have occasional debilitating fatigue and a few other symptoms, but I am definitely on the road to recovery. Share...

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Case Study: The Tick Bite Wasn’t Lyme

Posted on May 1, 2017 in Blog |

Lynn’s journey began during a family football game on Thanksgiving Day, 2006. She pulled a tick off her arm later in afternoon. Two weeks later, Lynn developed a fever and back pain. She had no rash. She thought she had the flu. She mentioned the tick bite to her physician, but he assured her it was too early to see any symptoms of Lyme Disease. Nevertheless, he gave her 28 days of Doxycycline. She returned a month later, still complaining of vertigo and back pain. “You are anemic. You need to eat more protein.” One afternoon, during a trip to the shopping mall, she had to lean down and place one hand on the floor and one on the wall to keep the world from spinning. The doctor treated her for an ear infection. They ran the ELISA test twice, both returned negative. Two months after her tick bite, Lynn’s personality was completely flat. A small group of girlfriends had flown from Texas to surprise her for her birthday. All she wanted to do was sleep. She couldn’t understand the jokes her girlfriends were giggling about. By the end of January, she was in the Emergency Room with such fatigue she couldn’t catch her breath. She was jumbling her words, her speech slurred. This 34-year old mother of two toddlers was showing signs of a stroke. A CT scan revealed peri-carditis. She was sent to a cardiologist, then a neurologist, and an endocrinologist. She visited nationally acclaimed medical centers in the Midwest, Florida and Virginia. She said they told her they don’t know how to treat your Lyme, but we can tell you how to eat differently. “Become a vegan,” one physician suggested. From January through April, 2007, Lynn didn’t drive because of the vertigo and because she had gotten lost while driving the three blocks between her home and her daughter’s school. Significant memory loss followed. Her church started bringing dinners over because she was burning dinner every night. “I would forget I was even cooking any food,” Shannon admitted. Two years after her tick bite, Lynn tested positive for Bartonella in Dr. Mozayeni’s office. Her brain and...

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Lyme Savvy is for SALE and AVAILABLE!

Posted on Dec 3, 2016 in Blog |

Lyme Savvy: Treatment Insights for Lyme Patients and Practitioners is NOW FOR SALE! You can order directly from https://www.createspace.com/6177142. Enter the discount code L37GVXBH to receive $4 off the retail price! This is valid only for the month of December! If you pre-ordered a copy, it will arrive in about two weeks’ time. Email me at sharon@sharonrainey.com if you have any questions. I’M SO EXCITED!!!! Lyme Savvy offers important insights into the patient-practitioner dynamic that you need to know to live well while dealing with the disease… and to move toward recovery. In this 624 page volume, rich with information, wisdom and guidance, you will find: • new insights into germs that contribute to chronic illness and small vessel disease; • observations and considerations to help you and your physician rise above the disease process; • stories of patients who have struggled and improved; • important discernments about tests to help diagnose your condition and related contributing factors – tests that many physicians do not currently utilize; • an understanding of the elements of a successful patient-physician working relationship; • therapies that may help relieve pain and suffering; • frank discussions between a Lyme sufferer and her physician, a renowned specialist in the field of Lyme diagnosis and treatment; • powerful, practical suggestions to support you in daily living and improve your quality of life. Lyme Savvy shines a bright light into a world of misinformation, in which sufferers have been stumbling, desperately grasping for help and answers. In these pages, they may finally find what they are hoping for. Share...

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When It’s Time to Take a Break from Treatment

Posted on Sep 12, 2016 in Blog |

This past week marked my seventh anniversary of seeing Dr. Mozayeni: September 9, 2009 (9/9/09). Some of you may be thinking, “wow, 7 years. That’s a long time to be in treatment. Isn’t she getting better?” Yes, I am. It is important to note here that I was sick for 29 years before getting an accurate diagnosis. Treatment is not going to be a short-term easy fix. I sent him a quick note saying, “My first appointment with you was seven years ago today. Thank you.” He replied, “ Amazing how time flies. Thanks for your trust. We’ve been through a lot. And we have more to do.” I replied, “Honestly, I was thinking of going a six month hiatus, physically and emotionally. Grateful for the safe place to do this work, but I’m tired.” And without missing a beat, he suggested, “ You could come in every three months and focus for now on . . . “ I’m showing you this interaction for a few reasons: 1. It’s important to say THANK YOU to your LLMD. 2. It’s nice to receive a Thank You in return and the validation of the hard work I have put forth as well. 3. It’s important to be HONEST with your LLMD and tell him/her what is going on for you. 4. It’s amazing to have an LLMD who doesn’t skip a beat, who knows treatment fatigue is part of the healing process and suggests some options to you. Sometimes, it is ok to take a break from the forward momentum of active treatment. I have done this at several points in the past 7 years. 1. I published a book, which caused some consternation among some family members. It was a rough patch during which I became almost suicidal. Dr. M managed my emotional status and he backed off my meds a bit. 2. My 16 year-old nephew died by suicide. Suicide wreaks havoc and hell on the entire family, including extended members. It threw me for a loop, most assuredly. It also affected other family members who then dropped into horrible depression. I learned during this time that if...

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