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8 Years Ago Today, My Life Changed

Posted on Sep 9, 2017 in Blog |

8 Years Ago Today: The First Appointment I lied on the 22-page “Complete History Form” Dr. Mozayeni asks all patients to fill out. I suspected if I revealed all of the symptoms I had experienced over the years, he would surely think I needed a psychiatrist rather than an LLMD. No one has that many symptoms without being a hypochondriac; even I had to begun to believe this. I focused on my major symptoms and denied the less compelling ones. I was very nervous at my first appointment with Dr. Mozayeni. Partially, because I couldn’t believe I might actually have Lyme Disease. If I did have Lyme, I didn’t want to have Aunt Betty’s outcome. And I didn’t want to have one more physician looking at my paperwork and giving me another incomplete, inaccurate diagnosis. My anxiety had reached a new peak. It wasn’t like getting a splinter in my finger. I couldn’t remember getting the splinter. I couldn’t see the splinter. I couldn’t get a pair of tweezers to excise it. I knew I felt pain and it kept getting worse. But there was no red, swollen, site with puss coming out. There was nothing to show a physician except my own perception and recording of symptoms. Even some of my lab work was faulty, skewing the puzzle more so. For years, I watched and listened as physicians provided little explanation and less treatment for pain that was increasing sometimes exponentially. Over those years, my anxiety increased, my defensiveness grew. I talked with other people, researched the Internet (not necessarily the best idea), desperately seeking answers. When I did receive a diagnosis, I thoroughly researched that condition, becoming as expert as a non-science major can become. But when I met new physicians and explained previous conditions, my knowledge base was met with skepticism and obvious discomfort. I found most physicians did not appreciate being challenged by laypeople. I discovered an ugly dimension in medicine. When the physicians could not come up with a plausible diagnosis or effective treatment, they did not like being put on the spot. They did not care for being challenged with the possibility they...

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Multiple Sclerosis Can Actually be Lyme Disease – Case Study

Posted on May 29, 2017 in Blog |

From Galaxy Diagnostics John (age 53) – Multiple Sclerosis As a small animal veterinarian, John had daily contact with animals for more than 30 years. Starting in late 2004, he suffered numerous progressive neurological symptoms, debilitating enough that after being a runner for years, he faced the possibility of being wheelchair bound. His hands became numb, and he was constantly fighting fatigue. The buildup of symptoms over months prevented him from maintaining his practice and had him seeking medical help. John consulted with numerous physicians and was ultimately diagnosed with Multiple (MS), for which there is no identified cause or cure. Physicians began to administer interferon treatment. The treatment may have helped, but John was still concerned. He knew, as a veterinarian, he had been exposed to numerous pathogens, and the MS diagnosis did not explain all of his symptoms. John tested positive for Bartonella henselae. John was placed on a multi-drug oral antibiotic regime that lasted over a year. Progress was not immediate, but over the course of months, John regained significant use of his legs, had dramatically increased energy and saw a reduction of the neurological symptoms. John’s quality of life improved to the point he was able to increase his work hours. Share...

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POTS, Fibromyalgia and Lyme – Case Study

Posted on May 25, 2017 in Blog |

From Galaxy Diagnostics: Lauren (age 34) – Postural Orthostatic Tachycardia Syndrome (POTS) Lauren was working as an emergency veterinarian in Washington, DC. In 2004, she received a cat bite during an examination. Within a single day, the bite became infected. Lauren was hospitalized and given IV antibiotics. While in the emergency room, she began to feel dizziness and developed blurred vision. Lauren assumed it was from exhaustion but was still feeling symptoms after three or four days. Lauren was placed on oral antibiotics and returned to work. During the next few weeks, her symptoms worsened. Her vertigo increased and she grew increasingly tired and weak. She was unable to stand for long periods of time and had to stop performing surgery because her vision was too poor. Her increasing dizziness reached the point that she could no longer drive to work. She also started having trouble focusing and had problems with her short-term memory. Within three months, Laura had to stop working completely. Lauren saw more than 20 physicians including the Mayo Clinic in 2006 where she was diagnosed with fibromyalgia and dysautonomia, specifically POTS (Postural Orthostatic tachycardia Syndrome). POTS is a chronic illness that is characterized by the body’s inability to make the necessary adjustments to counteract gravity when standing up. Patients experience tachycardia (rapid heartbeat), constant headaches, dizziness, weakness and extreme fatigue. Essentially, this meant that a single movement like standing up could cause her heart to beat so fast she could pass out. Drug treatments were helping, but Lauren was still very disabled. From 2006-2009, she was essentially wheelchair bound and could not leave her house. In 2009, after three years of POTS treatment and six years of being disabled, Lauren went on antibiotic treatment for over a year and saw slow improvement in her symptoms. Lauren is now able to drive and go out of the house without assistance. Her energy level is higher and she has regained some independence. She still suffers from blurred vision, some aches and pains, but she is hugely improved today compared to the same point a year ago. She remains optimistic she will be able to resume a normal...

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Sharon’s Symptom History

Posted on May 17, 2017 in Blog |

The simplest way to present my own history to you is to show you how many different types of physicians I saw, some of the major medical events that occurred, and of course, the various diagnoses I was assigned. I know many patients can probably relate to this snapshot. Physicians I saw for symptoms: Often, I saw more than one each of the following: Cardiologist, Chiropractor, Dentist, Dermatologist, Endocrinologist, Gastroenterologist, Internist, Neurologist, Gynecologist, Neurosurgeon, Ophthalmologist, Optometrist, Oral Surgeon, Orthopedist, Osteopath, Otolaryngologist (ENT), Physical Therapist, Psychologist, Psychiatrist, Rheumatologist, Surgeon, Urologist Sharon’s Symptom History 1981: viral meningitis, unexplained fatigue and exhaustion 1984: diarrhea, abdominal pain, loss of appetite, mouth ulcers, grinding teeth/jaw pain 1988: elevated gastrin levels 1993: depression and anxiety 1995: migraines 1996: h.pylori infection 1999: shattered right foot 2001: recurrent sinus infections, night sweats, hot flashes, dry skin, itchy ears 2002: falling easily, pain in knees and thighs, muscle weakness, sensitivity to sunlight, memory loss 2003: clumsiness, repeated falls, muscle weakness, thigh pain, swollen joints, tooth dies 2004: gallstones, abdominal pain, fatigue, hair loss, noise sensitivity 2005: gastrin level elevated, depression, forgetfulness, trouble focusing, sticky blood 2006: diarrhea, headaches, daytime sleepiness and insomnia, elevated heart rate, word and name search, phasing out of conversations 2008: persistent, dry cough, numbness in hands and feet, chest pains, muscle twitching 2009: back pain, hip pain, occasional blurry vision, incontinence, unexplained rashes, positive Lupus test (positive ANA with speckled pattern) Other General Symptoms Allergies: seasonal allergies, chronic sinus infections Cardiovascular: low blood pressure, perspire easily, dizzy upon standing Constitutional: migraines, weight gain, fatigue, cold extremities, afternoon drowsiness, night sweats, sensitivity to chemicals Ears, Nose, Mouth & Throat: sensitivity to sounds, ringing in the ears, sinusitis, mercury/silver fillings in teeth, mouth ulcers, jaw paint/teeth grinding, dental problems, unexplained face pain Endocrine: heat intolerant, cold intolerant, thyroid disorder, low body temperature
 Eyes & Vision: dry eyes, blurred vision, floating spots, light sensitive, peripheral waves Digestive System: bloating, trouble digesting fats, hemorrhoids, ulcers, irritable bowel, diarrhea, abdominal pain, nausea/upset stomach Genito-Urinary System: incontinences, cramps, heavy flow, PMS, menstrual irregularity, menstrual pain, pelvic pain, health fluctuates with cycles, hot flashes Hematological: Anemia, leg pain with walking Immunological:...

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Celiac Disease, Low Grade Fever, Hair Loss, Fatigue = Lyme?

Posted on May 10, 2017 in Blog |

Brittany, a 21-year-old attending college, arrived at the doctor’s office complaining of bloating, gas, and diarrhea. Brittany had been diagnosed with Celiac disease three years earlier in her home state of Colorado Springs, CO and successfully adhered to a gluten-free diet since then. She also stated she had started to lose more hair than ever before, increased fatigue, and a low-grade, unexplainable fever. The gastroenterologist ordered a colonoscopy and suggested she try a dairy free diet. He also drew blood to check her thyroid. The tests came back all within normal limits. No need to return, he stated. “But what about my hair falling out? The diarrhea? My fatigue?” Brittany queried. “We don’t know,” he replied. “Keep your diet gluten-free and dairy-free and you should see some gradual improvement.” “And the fever?” she asked. “You probably just had a virus. Make sure you get plenty of rest so your body can fight it off.” Brittany left, frustrated once again. Brittany’s symptoms had not restricted her lifestyle to the degree that things were impossible, but they were a major inconvenience. She didn’t go shopping with her mom because she couldn’t stand the thought of standing in lines and walking for hours. She chose her outings carefully based on their proximity to a bathroom in case diarrhea hit. Otherwise, she was a reasonably healthy 21-year-old college girl. After two hours in Dr. Mozayeni’s office, Brittany had a reasonable explanation for every symptom she was experiencing. Blood work results later proved his theory correct. Bartonella is a chronic infection. Chronic infection can cause chronic inflammation. Inflammation worsens the function of the weakest part of a person’s body. For Brittany, it was her gut. The chronic inflammation in her gut made her susceptible to allergic reactions. When you introduce grains and dairy products to an inflamed area, you are more likely to produce an allergic or aggravated response. By omitting those allergens, the response will disappear, but it still doesn’t address the cause of the inflammation. Eventually, the bacteria will find another place to attack. In Brittany’s case, it was her thyroid and metabolism. She started to lose her hair. But because she...

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