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Does Your Pet Have Lyme?

Posted on May 6, 2013 in Blog |

Day 6 – May is Lyme Disease Awareness Month If your animal has tested positive for Lyme, the family should be tested for lyme and its co-infections. The ticks and fleas don’t care who they feed off of. It IS possible for cats and dogs to get co-infections. We had a cat test positive for Bartonella and Erlichiosis. Co-infections of Lyme: Colorado Tick Fever, Rocky Mountain Spotted Fever, QFever, Bartonella, Babesia, Erlichiosis, Mycoplasma, or Protomyxzoa Rheumatica Share...

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Finding an LLMD

Posted on May 5, 2013 in Blog |

Day 5 – May is Lyme Disease Awareness Month If you have Lyme disease or a co-infection of Lyme, you will probably receive the most effective treatment from a Lyme Literate Medical Doctor (LLMD). You should also check out the www.ilads.org website for more information. When searching for an LLMD, you can go to www.lymediseaseassociation.org and input your information and they will send you a brief listing. The best way to find an LLMD is to find the patients who are HEALING or HEALED and ask them who they see/saw. The proof is in the pudding, folks. Co-infections of Lyme: Bartonella, Babesia, Erlichiosis, Rocky Mountain Spotted Fever, Mycoplasma, Qfever, Colorado Tick Fever or Protomyxzoa Rheumatica Share...

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Specialty Labs for Testing

Posted on May 3, 2013 in Blog |

Day 3 – May is Lyme Disease Awareness Month When a general physician tests a patient for Lyme, s/he runs a typical ELISA or Western Blot test. The ELISA or Western Blot also does not test all of the DNA bands for signs of infection. Therefore, it is not a test that Lyme Literate physicians use. If the Elisa or Western Blot test from a standard lab is the only test your physician is using to decide if you have Lyme or a co-infection, you may want to find a physician more familiar with Lyme. The ELISA and Western Blot do NOT test for any of the co-infections of Lyme disease. Testing for co-infections requires labwork at specialty labs. If you think you might have one of these, demand that your physician test your blood at a specialty lab. If s/he isn’t familiar with these labs, find a new physician who is familiar with them. Disclaimer here: I am NOT a physician. I have no medical training and don’t try to even pretend to give medical advice. I have no affiliation with any of these labs. I just am sharing what I have heard and what I have personally experienced. Labs that I have heard are ‘state of the art’ include: Stoneybrook, Galaxy Diagnostics, Fry Labs, Igenex. I believe Igenex was the first lab that tested all the DNA bands for Lyme. Galaxy Diagnostics is the premier lab in the nation for Bartonella testing. They are able to identify 26 strains of Bartonella. When my family was originally going through testing, Galaxy was still finding and identifying new strains. Each time Galaxy found a new one, they went through the previous blood samples and retested them. That’s how they found my husband’s strain. Just four months prior, they couldn’t see it and he tested ‘negative.’ Now he had an explanation for his symptoms. He went through treatment and he has been Bartonella free for two years. Fry Labs in Arizona has some cutting edge stuff going on. They are the primary lab for testing for and finding the Protomyxzoa Rheumatica. All of these labs are also very helpful online...

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Infections and Co-infections

Posted on May 2, 2013 in Blog |

Day 2 – Infections and Co-infections When people say they have Lyme disease, they may have Lyme, but they more than likely also have one or more of the co-infections of Lyme disease. These include: Bartonella, Babesia, Erlichiosis, Rocky Mountain Spotted Fever, Mycoplasma, Qfever, Colorado Tick Fever. In my family, none of us actually has Lyme. We all had Bartonella and Protomyxzoa Rheumatica. But if I start a conversation with people about these two infections, they will give me a blank stare. It’s simpler and easier to start with saying I have Lyme disease. These are unfortunately mislabeled as ‘co-infections’ when we believe them to be maybe even more common than Lyme disease. Lyme disease is primarily transferred through a deer tick. The co-infections have been shown to be transferred through cat scratches, fleas, biting flies, and mosquitoes. It has also been proven to be transferable in utero. None of us in the family had the same symptoms. It was hard to believe that we all had the same infections. Jeff had one strain of Bartonella; I had two; and Stephen had three. All three of us also had the Protomyxzoa Rheumatica. So far, I am the only one who has tested positive for the ‘variant’ of the PR (yet unnamed). My hope by the end of this month is that every time you hear ‘Lyme,’ your brain will also think of one or more of the following: Bartonella, Babesia, Erlichiosis, Rocky Mountain Spotted Fever, Mycoplasma, Qfever, Colorado Tick Fever or Protomyxzoa Rheumatica. And you will know that it is just as important to be tested for the co-infections as it is to be tested for Lyme disease. Share...

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Recap of the Month

Posted on Apr 30, 2013 in Blog |

April 30th – I have accepted The Health Activist Writer’s Month Challenge to write daily about my disease. #HAWMC @wegohealth Write a recap of my experience. What have I learned? I wasn’t sure I would be able to write about Lyme disease for 30 days in a row. I’m glad I did this. I know more than I realized I know. I have appreciated the feedback as well. Sometimes when I write things and no one writes back, I wonder . . . . I’ve learned that there is a lot of educating to do in the general population about Lyme disease and its co-infections. Most people have heard about it and that’s about it. They don’t realize the severity of it, the complications it causes, or the fact that it can be fatal. May is Lyme Disease Awareness Month in the Commonwealth of Virginia (thank you Barbara Comstock!). I have decided to continue this blog for the next month (but taking weekends off) in hopes of giving more educational information about Lyme disease and its co-infections. I hope you have enjoyed this and have benefited from the postings. Share...

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