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Testing and Diagnosing for Lyme

Posted on May 1, 2017 in Blog |

The following is an excerpt written by Dr. B. Robert Mozayeni from our book Lyme Savvy: Treatment Insights for Lyme Patients and Practitioners Blood Test for Lyme At the time of the tick bite and the rash, if someone has never been exposed to Borrelia before, they will not have antibodies to the Borrelia microbe. It takes usually six to twelve weeks to see antibodies to Borrelia. These antibodies initially develop as Ig-M, within two to four weeks and then later as Ig-G within six to 12 weeks or more. To evaluate a tick bite, the first test we do is the Western blot test. It should be done within a week or two before the exposure causes antibodies. This is to determine what the baseline antibody level was before the bite. It does not yet reflect antibodies produced as a result of a Borrelia exposure. Typically, three months later one re-tests for Borrelia by the Western Blot to see if there has been a change in the antibody response between the initial and the 12-week post-bite test. Bayesian Probability Decision Making I want to make an important point here: Many clinicians and patients don’t understand it takes time (weeks) to produce antibodies. I have seen many errors of diagnosis being made when the clinical history was classic for Lyme Disease and strongly diagnostic. When you have a high probability of Lyme Disease before any testing, that probability cannot be altered by the result of a negative test because the prior probability was so high. This is called Bayesian probability decision-making. It is the standard clinicians should use to make decisions. Lately, Bayesian adaptive clinical trials have become the leading edge method for conducting clinical research. It is all about probabilities. You have to know what your prior probability was before an event occurs in order to gauge whether or not that event really matters in your adjusted probability after an outcome is observed. In the case of a clear-cut tick exposure, ECM rash and Borrelia, you can be certain you have Lyme and a negative test result should not change your mind. In numerous consultations, I encountered physicians...

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Lyme Disease Awareness Month

Posted on Apr 30, 2017 in Blog |

May has been proclaimed as Lyme Disease Awareness Month in the Commonwealth of Virginia (thank you Representative Barbara Comstock!). Each day, for 30 days, I am providing readers with information relating to Lyme Disease that you may not necessarily know, but hopefully, will find helpful. My purpose for this is threefold: My aunt died from complications of Lyme Disease in 2002 and I didn’t know much about it except that she had been bitten by a tick. There is much more to this story and I think others should hear it so they will know too. I suffered from various ailments throughout my lifetime, having no idea until 2009 that 90% of them were all related – they were all symptoms of co-infections of Lyme Disease. I want others to know what those ailments were so they don’t have to wait decades to get the right testing, an accurate diagnosis, and effective treatment. When I was initially diagnosed, I called someone in my community who was known for having the disease and would be able to connect me with the right resources. When I called her, she said she was very sorry to hear of the diagnosis, but she refused to offer me names of any physicians nor lend any support in any way. In fact, she pretty much hung up on me. What I discovered very quickly is that Lyme Disease is perceived as a psychiatric illness rather than a physical illness. It is a lonely road when trying to heal from this disease. From the moment my phone line went dead, I vowed never to let that happen to anyone I might run into who was in the same predicament I was in. As a result of that short phone conversation, once I finished treatment for the primary infection I was suffering from (Bartonella), I spent the next five years writing a book with my physician, Dr. B. Robert Mozayeni, talking about the symptoms, accurate diagnosis, and effective treatment for Lyme Disease and its co-infections. Lyme Savvy: Treatment Insights for Lyme Patients and Practitioners is available on Amazon. It is a 624 page introspective guide into effectively...

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Lyme Savvy is for SALE and AVAILABLE!

Posted on Dec 3, 2016 in Blog |

Lyme Savvy: Treatment Insights for Lyme Patients and Practitioners is NOW FOR SALE! You can order directly from https://www.createspace.com/6177142. Enter the discount code L37GVXBH to receive $4 off the retail price! This is valid only for the month of December! If you pre-ordered a copy, it will arrive in about two weeks’ time. Email me at sharon@sharonrainey.com if you have any questions. I’M SO EXCITED!!!! Lyme Savvy offers important insights into the patient-practitioner dynamic that you need to know to live well while dealing with the disease… and to move toward recovery. In this 624 page volume, rich with information, wisdom and guidance, you will find: • new insights into germs that contribute to chronic illness and small vessel disease; • observations and considerations to help you and your physician rise above the disease process; • stories of patients who have struggled and improved; • important discernments about tests to help diagnose your condition and related contributing factors – tests that many physicians do not currently utilize; • an understanding of the elements of a successful patient-physician working relationship; • therapies that may help relieve pain and suffering; • frank discussions between a Lyme sufferer and her physician, a renowned specialist in the field of Lyme diagnosis and treatment; • powerful, practical suggestions to support you in daily living and improve your quality of life. Lyme Savvy shines a bright light into a world of misinformation, in which sufferers have been stumbling, desperately grasping for help and answers. In these pages, they may finally find what they are hoping for. Share...

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#TBYHDC Speaker Sharon Rainey On Healing From Emotional Trauma Through Love

Posted on Oct 17, 2016 in Blog |

http://clubtbyh.com/2016/10/17/tbyhdc-speaker-sharon-rainey-on-how-to-heal-from-emotional-trauma/ How did you originally connect with Robin and the Take Back Your Health Conference? Robin was introduced to me when she was still in high school and just starting this journey. She had made the connection to healing from Rheumatoid Arthritis and food, and she wanted to share her experience, strength and hope with me. She led me to healthy eating. She also showed me great compassion. I was in the roller coaster part of the healing, a lot of ups and downs. One afternoon, Robin brought me an entire meal she made herself. And it was amazing. It was such an act of love to me. Not only did the food help me heal, but her love and compassion were strong healing agents as well. What will you be sharing about at the upcoming Take Back Your Health Conference? I will be sharing about the importance of healing the emotional and spiritual wounds that we hold from traumas in our life. Our doctors can only do so much, and they focus on the physical part of healing. A great doctor will help with the other aspects, but it is usually only the patient who knows the triggers, the traumas, and the willingness to find possible resolutions. If you don’t mind diving right in, can you share a couple of your main symptoms / struggles over the years? I was sick for 30+ years. If there is a symptom, I had it. It wreaked havoc throughout my entire body including stomach ulcers, a tooth killing itself, lower back pain, migraines, lipomas, joint stiffness and pain. I felt like a stone statue, or the Tin Man from the Wizard of Oz. It also included bizarre things like itchy ears and vivid nightmares. Is there one thing that you’ve learned from Robin or Take Back Your Health events that has really stuck with you? Eating is key to healing. An anti-inflammatory diet is mandatory for healing. What are a couple of lifestyle tweaks/habits have made the biggest difference for your health? Eating organic food is essential – I had arsenic poisoning when I was first diagnosed. It was from eating...

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Dad’s Words – My Eulogy for Earle C. Williams

Posted on Apr 1, 2016 in Blog |

I think I knew Dad wasn’t going to survive on the second day of his hospitalization. He was having so much trouble breathing. I was rubbing his head and trying to comfort him. The most frequent question we asked was, “What do you need Dad?” And this one time he replied with, “I just need to REST.” The finality of his statement loomed heavily in the room that night. I started this eulogy two weeks ago when we first learned of Dad’s terminal diagnosis. It started out as “Dad’s Words” – some things Dad wanted to make sure were said in a particular, articulate manner. I believe that if he had the energy to prepare for his Judgment Day with God, Dad probably would have written his own eulogy. It wasn’t about bragging on himself. Rather, it was important for Dad to make certain that each of you understand why he did what he did in life. And he asked me to explain it for him. There is nothing quite like having to a write a eulogy for someone as superstar as my father. And, when he asked me to read him my rough draft just 24 hours after being given the assignment, I was intimidated. The best way I know to honor my father on this day, is to not only relay the words he wanted me to share with you, but to also tell you how he responded at certain points when I read him his own eulogy. Just two months prior to his death he was parasailing in Turks and Caicos with two of his granddaughters. Mom and Dad had gifted all 17 family members with the vacation of a lifetime, which was a life changing, healing event for everyone. When Dad was initially pondering the safety and sanity of parasailing at age 86, Heather responded, “Granddaddy, if you died while parasailing, that would make you such a badass.” To which he chuckled and agreed and said, “Let’s do it.” On Monday, February 29th, our lives changed forever. Dad was admitted to the Intensive Care Unit for pneumonia and sepsis. Dad fought with every cell in...

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