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Lyme, Borrelia, Bartonella, Protozoa

Posted on May 14, 2017 in Blog |

The following is an excerpt Dr. Mozayeni wrote from our book Lyme Savvy: Treatment Insights for Lyme Patients and Practitioners I think when Borrelia is present, it tends to be associated with joint pain and sometimes joint swelling because the lining of the joints is very vascular; it is getting its nourishment from the vessels of connective tissue. The lining itself of the joints is the synovium and the synovial tissue is highly vascular. That is why there is a lot of action and a lot of symptoms related to synovial inflammation with all of these chronic infections, Bartonella and Protozoa included. Given this new perspective, the question then becomes: How does this realization shift the diagnostic and therapeutic emphasis? You have to look at Bartonella with the best available test. You have to look at the Protozoa with the best available test, and You have to understand – It is a far stronger form of evidence when you have molecular proof of these infections using these new tests than having a few antibody bands on a Western blot. We need to use molecular tests to succeed more with our therapies. Share...

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Taking Control: Focusing Through the Fog Webinar this Wednesday

Posted on Jan 30, 2017 in Blog |

Reminder – If You Haven’t Registered Yet! Taking Control: Focusing Through the Fog Wednesday, Feb 1, 2017, 3-4 pm (EST) Dr. Bob Mozayeni and Sharon Rainey will discuss ways to overcome the challenges faced by both patients and physicians when trying to diagnose chronic illness, set out a plan of treatment, and effectively manage care. This is especially confounding when patients are dealing with the cognitive impact and “brain fog” so often associated with chronic illness. They will draw on a variety of issues discussed in their new book, LYME SAVVY. Cost: $20 Follow This Link To Register Share...

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Lyme Savvy is for SALE and AVAILABLE!

Posted on Dec 3, 2016 in Blog |

Lyme Savvy: Treatment Insights for Lyme Patients and Practitioners is NOW FOR SALE! You can order directly from https://www.createspace.com/6177142. Enter the discount code L37GVXBH to receive $4 off the retail price! This is valid only for the month of December! If you pre-ordered a copy, it will arrive in about two weeks’ time. Email me at sharon@sharonrainey.com if you have any questions. I’M SO EXCITED!!!! Lyme Savvy offers important insights into the patient-practitioner dynamic that you need to know to live well while dealing with the disease… and to move toward recovery. In this 624 page volume, rich with information, wisdom and guidance, you will find: • new insights into germs that contribute to chronic illness and small vessel disease; • observations and considerations to help you and your physician rise above the disease process; • stories of patients who have struggled and improved; • important discernments about tests to help diagnose your condition and related contributing factors – tests that many physicians do not currently utilize; • an understanding of the elements of a successful patient-physician working relationship; • therapies that may help relieve pain and suffering; • frank discussions between a Lyme sufferer and her physician, a renowned specialist in the field of Lyme diagnosis and treatment; • powerful, practical suggestions to support you in daily living and improve your quality of life. Lyme Savvy shines a bright light into a world of misinformation, in which sufferers have been stumbling, desperately grasping for help and answers. In these pages, they may finally find what they are hoping for. Share...

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How an Ear Infection is Like Chronic Illness

Posted on Oct 3, 2016 in Blog |

This past weekend, I was planning to take a girlfriend to our cabin for a weekend of wildness: you know, going braless, reading, writing, and doing needlepoint. I figured if we really got restless, we could roast marshmallows in the fire pit and take the dogs for a long stroll. Friday morning, my car was completely packed, ready to go. Except, my ear had kept me up the previous two nights with pain. I was on antibiotics for an ear infection. My LLMD saw it on Wednesday, prescribed the meds, told me if I didn’t feel better Thursday, to call in for another scrip, which I did. At 5 am Friday, I was in tears. Then, my eardrum ruptured, which usually actually feels better because the pressure is released. I felt better for about two hours and then the pain returned. I was determined to get away from the weekend. So I went to a local “doc in a box”. He took a look, even gave me a photo of the inside of my ear. He suggested we clean it out first, which he emphasized would be painful. I suggested we not. I wanted to get on the road. I had enough ear infections as a child to know what that pain would be and I wanted none of it. Can you tell I was still in a bit of denial about the severity of this issue? The doc let me go, told me to return on Monday, and he gave me a prescription for OXYCODONE. Hmmm . . . that’s when a little red flag went up that maybe I was in for a bit more pain than I anticipated. Jeff, looking incredulously at me, asked, “And what happens when you hit 3000 feet on the mountain on the way to the cabin?” Hmm . . . I hadn’t thought about that. I texted the photo of my eardrum to my LLMD, who then responded, “I’ve texted Dr. W. Call his office and they will see you now.” Dr. W is our favorite ENT physician. He added, “Abundance of caution is indicated presently,” another red flag. A little...

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Your Physician is Your Partner in Healing

Posted on May 5, 2016 in Blog |

In Lyme Savvy, we wrote: “The most important thing to remember during the appointment is your physician is your partner in healing.” One month had been particularly bad for me and I couldn’t figure out why. Dr. Mozayeni started going through my medication list. “Did you take ‘Treatment B’ every day?” Blindsided. I had completely forgotten to take the medication. Knowing honesty and mutual trust is a huge factor in the healing process I replied sheepishly, I replied, “No, I totally forgot.” “Well, there you go. Titrate back up on it and you should start to feel a difference,” he replied. Through the rest of the appointment, I was silently beating myself up for not remembering. Finally, Dr. Mozayeni said, “Look, you forgot to take it. It’s over and done with. There is nothing you can do to change the past month. It was a bad month and now you know why. So move forward. Start back on it, and we’ll see how you feel in a few more weeks.” Over and done with. Forget the shaming, and move on. (this piece of advice is helpful in many other aspects of life as well) That’s called teamwork. At the same time, if you disagree with a direction the protocol is taking, you need to speak up. If you don’t believe the next phase will work, then it definitely won’t. Do not waste your time and energy on something you don’t believe in. If a physician is judging me during the time that I am paying him, then I need to change doctors. If I don’t feel safe in being honest with my physician, I need to change physicians. HOWEVER, this does not excuse the patient from being compliant. There is a big difference between making a mistake and being non-compliant. If you don’t plan to follow through on the treatment protocol that your physician has set forth, then don’t come back. Find someone you feel you can work as a team with. It’s not worth it to waste anyone’s time. Remember, your physician should be your biggest ally. He is on your team. He wants you to heal....

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