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The Traditional Western Blot Test

Posted on May 15, 2017 in Blog |

The following is an excerpt written by Dr. B.Robert Mozayeni included in our book Lyme Savvy: Treatment Insights for Lyme Patients and Practitioners. In2008, when I looked at Borrelia Western blots I gave it sort of a 3 or 4 out of 10 in terms of how confident I would be in the result if I saw a positive. There are some Western blots so glaringly positive that no one would argue them. That is part of the problem with the test. The result produced is along a spectrum of potential levels of confidence with great variability of clinical context. You can have a couple of weak bands and to a really sick patient with no other answers – those results can justify their treatment. To a healthy patient, the same results would be interpreted as negative or normal. Context is always important, not only for interpretation of test results, but for choice and timing of treatment. Great — but what if you get the wrong treatment because you have Bartonella causing weak positive bands on the Borrelia Western blot? Then you are going to have only a temporary improvement and a relapse. Then Lyme doctors will start telling you “we can temporarily get you better but we cannot fix you.” Usually, as much as they may try, they don’t actually know the cause; or they do know and may not have the right treatment. If you see only IgM-positive bands on the Lyme Western blot, then you definitely need to test for co-infections, especially Bartonella. The Borrelia Western blot scores a 3 or 4 out of 10 in terms of my general confidence level because it is an indirect test, looking at antibody responses to a germ. There is nothing better than actually directly detecting a germ such as by detecting its DNA signature or at least its unique proteins encoded by the DNA. Then you can be sure you have that microbe. Unfortunately, a sensitive and specific test like this has not been available for Borrelia. Lately, some companies have developed enrichment culture methods. This is encouraging but fraught with pitfalls for potential contamination. We need more...

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Lyme, Borrelia, Bartonella, Protozoa

Posted on May 14, 2017 in Blog |

The following is an excerpt Dr. Mozayeni wrote from our book Lyme Savvy: Treatment Insights for Lyme Patients and Practitioners I think when Borrelia is present, it tends to be associated with joint pain and sometimes joint swelling because the lining of the joints is very vascular; it is getting its nourishment from the vessels of connective tissue. The lining itself of the joints is the synovium and the synovial tissue is highly vascular. That is why there is a lot of action and a lot of symptoms related to synovial inflammation with all of these chronic infections, Bartonella and Protozoa included. Given this new perspective, the question then becomes: How does this realization shift the diagnostic and therapeutic emphasis? You have to look at Bartonella with the best available test. You have to look at the Protozoa with the best available test, and You have to understand – It is a far stronger form of evidence when you have molecular proof of these infections using these new tests than having a few antibody bands on a Western blot. We need to use molecular tests to succeed more with our therapies. Share...

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Am I Cured?

Posted on May 7, 2017 in Blog |

If I had realized back in 2009 that I would still be in treatment of some sort seven years later, I am not sure I would have stuck with the plan. I was lucky in a few ways. First, I was directed to the world’s best physician in treating Bartonella. He knew how to test me and treat me. Two years after starting treatment, I was clear of Bartonella. I have tested clear of Bartonella since 2011. But I also tested positive for Babesia. Babesia is also a co-infection of Lyme disease. The parasite that leads to Babesia is commonly seen in blacklegged deer ticks. It’s common to find ticks and enzootic hosts carrying both Borrelia burgdorferi (Lyme disease) and Babesia. Between 12% and 42% of rodents are co-infected with both agents. It is currently incurable. But it can be managed. Dr. Daniel Cameron has an excellent article on this topic. In 2011, another parasite was discovered called Protomyxzoa Rheumatica FL1953 by Dr. Steven Fry of Fry Labs in Arizona. Guess who tested positive for that too? Today, I am in treatment for both and am having remarkable results. Approximately 90% of all my original symptoms are GONE. I can work again. I can write again. I can think again. I have hope. I have a healthy marriage. I have a joyful life. Am I “cured”? No. I call it remission, similar to cancer. The load of infection within my bloodstream has dramatically decreased in the past few years allowing me for a fuller, richer life. I still have occasional debilitating fatigue and a few other symptoms, but I am definitely on the road to recovery. Share...

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Lyme Savvy is for SALE and AVAILABLE!

Posted on Dec 3, 2016 in Blog |

Lyme Savvy: Treatment Insights for Lyme Patients and Practitioners is NOW FOR SALE! You can order directly from https://www.createspace.com/6177142. Enter the discount code L37GVXBH to receive $4 off the retail price! This is valid only for the month of December! If you pre-ordered a copy, it will arrive in about two weeks’ time. Email me at sharon@sharonrainey.com if you have any questions. I’M SO EXCITED!!!! Lyme Savvy offers important insights into the patient-practitioner dynamic that you need to know to live well while dealing with the disease… and to move toward recovery. In this 624 page volume, rich with information, wisdom and guidance, you will find: • new insights into germs that contribute to chronic illness and small vessel disease; • observations and considerations to help you and your physician rise above the disease process; • stories of patients who have struggled and improved; • important discernments about tests to help diagnose your condition and related contributing factors – tests that many physicians do not currently utilize; • an understanding of the elements of a successful patient-physician working relationship; • therapies that may help relieve pain and suffering; • frank discussions between a Lyme sufferer and her physician, a renowned specialist in the field of Lyme diagnosis and treatment; • powerful, practical suggestions to support you in daily living and improve your quality of life. Lyme Savvy shines a bright light into a world of misinformation, in which sufferers have been stumbling, desperately grasping for help and answers. In these pages, they may finally find what they are hoping for. Share...

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Your Physician is Your Partner in Healing

Posted on May 5, 2016 in Blog |

In Lyme Savvy, we wrote: “The most important thing to remember during the appointment is your physician is your partner in healing.” One month had been particularly bad for me and I couldn’t figure out why. Dr. Mozayeni started going through my medication list. “Did you take ‘Treatment B’ every day?” Blindsided. I had completely forgotten to take the medication. Knowing honesty and mutual trust is a huge factor in the healing process I replied sheepishly, I replied, “No, I totally forgot.” “Well, there you go. Titrate back up on it and you should start to feel a difference,” he replied. Through the rest of the appointment, I was silently beating myself up for not remembering. Finally, Dr. Mozayeni said, “Look, you forgot to take it. It’s over and done with. There is nothing you can do to change the past month. It was a bad month and now you know why. So move forward. Start back on it, and we’ll see how you feel in a few more weeks.” Over and done with. Forget the shaming, and move on. (this piece of advice is helpful in many other aspects of life as well) That’s called teamwork. At the same time, if you disagree with a direction the protocol is taking, you need to speak up. If you don’t believe the next phase will work, then it definitely won’t. Do not waste your time and energy on something you don’t believe in. If a physician is judging me during the time that I am paying him, then I need to change doctors. If I don’t feel safe in being honest with my physician, I need to change physicians. HOWEVER, this does not excuse the patient from being compliant. There is a big difference between making a mistake and being non-compliant. If you don’t plan to follow through on the treatment protocol that your physician has set forth, then don’t come back. Find someone you feel you can work as a team with. It’s not worth it to waste anyone’s time. Remember, your physician should be your biggest ally. He is on your team. He wants you to heal....

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