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Lyme Savvy Book Giveaway

Posted on Nov 13, 2017 in Blog | 0 comments

We have had quite a few new people sign up for our blog postings so I thought I would just touch base. I thought I would let you know that we give away a copy of Lyme Savvy each month to a lucky winner on Facebook in the Lyme Patient Raffle group. Lyme Advise is also currently doing a give away: https://www.facebook.com/lymeadvise/. I don’t know if you heard the latest, but Dr. Mozayeni has accepted a position on the ILADS.org board and he will serve as President starting in 2018! Exciting! https://www.facebook.com/pg/natcaplyme/videos/?ref=page_internal Share...

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Co-infections, Co-infections, Co-infections

Posted on Oct 27, 2017 in Blog |

In the past few weeks, I have talked with several newly diagnosed individuals. Three of them had never heard the word “co-infections.” Thus, they had never heard of Bartonella, Babesia, Erlichiosis . . . and the list goes on. It can be frustrating to educate people about Lyme itself. It can be doubly frustrating to bring them up to speed about the co-infections as well as Lyme. The amount of mis-information about these diseases is overwhelming. I encourage each Lyme patient to find a Lyme Literate Medical Doctor (LLMD) to help you navigate your way to health. And work with your LLMD as a team. One thing that drives me insane: when a patient has an appointment with their LLMD, they develop a new plan for treatment, and then the patient goes on line and asks other patients their opinion of the plan. If you still have questions about your plan, ASK YOUR DOCTOR! Do NOT ask a thousand people who do not have a medical degree, are not familiar with ALL the details of your history and current state. If you feel you can’t work with your LLMD as a team, find a new doctor. I encourage you to read articles from www.whatislyme.com, galaxydx.com, lymeadvise.com, igenex.com, and other Lyme savvy websites. In Lyme Savvy: Treatment Insights for Lyme Patients and Practitioners, we cover many of these co-infections. I encourage you to read it. A note to the new readers: I originally tested positive for Lupus and Lyme. Better testing from Galaxy Diagnostics showed I was positive for Bartonella. I was then treated for Bartonella. And after that treatment, my next Lupus and Lyme tests were negative. It took a smart physician to figure out what I had and how to treat it. Share...

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8 Years Ago Today, My Life Changed

Posted on Sep 9, 2017 in Blog |

8 Years Ago Today: The First Appointment I lied on the 22-page “Complete History Form” Dr. Mozayeni asks all patients to fill out. I suspected if I revealed all of the symptoms I had experienced over the years, he would surely think I needed a psychiatrist rather than an LLMD. No one has that many symptoms without being a hypochondriac; even I had to begun to believe this. I focused on my major symptoms and denied the less compelling ones. I was very nervous at my first appointment with Dr. Mozayeni. Partially, because I couldn’t believe I might actually have Lyme Disease. If I did have Lyme, I didn’t want to have Aunt Betty’s outcome. And I didn’t want to have one more physician looking at my paperwork and giving me another incomplete, inaccurate diagnosis. My anxiety had reached a new peak. It wasn’t like getting a splinter in my finger. I couldn’t remember getting the splinter. I couldn’t see the splinter. I couldn’t get a pair of tweezers to excise it. I knew I felt pain and it kept getting worse. But there was no red, swollen, site with puss coming out. There was nothing to show a physician except my own perception and recording of symptoms. Even some of my lab work was faulty, skewing the puzzle more so. For years, I watched and listened as physicians provided little explanation and less treatment for pain that was increasing sometimes exponentially. Over those years, my anxiety increased, my defensiveness grew. I talked with other people, researched the Internet (not necessarily the best idea), desperately seeking answers. When I did receive a diagnosis, I thoroughly researched that condition, becoming as expert as a non-science major can become. But when I met new physicians and explained previous conditions, my knowledge base was met with skepticism and obvious discomfort. I found most physicians did not appreciate being challenged by laypeople. I discovered an ugly dimension in medicine. When the physicians could not come up with a plausible diagnosis or effective treatment, they did not like being put on the spot. They did not care for being challenged with the possibility they...

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Father’s Day

Posted on Jun 16, 2017 in Blog |

I mourn for a father lost, and i celebrate my husband who gave me a son. I didn’t want children when Jeff Rainey and I married. I woke up one morning, turned over and said, “Honey, I want to have a baby.” He replied without missing a beat, “It’s a good thing I’m flexible.” My teacher today reassured me that though I miss Dad greatly, he fulfilled all of his obligations here and did all God needed him to do. His life was complete. I trust in that knowledge. But it still makes me wistful. And it does not take away Mom’s pain which remains fresh and unsettled. My teacher and I talked about the trip to Turks and Caicos – you remember, the #vacationofalifetime. She said, “Every time you think of that trip, you think of it as magical . . . ” I nodded my head. We all do. We all believe it was a magical trip. She shook her head no. “That, my dear, was Love. It was Love felt by every single one of you at one point or another during those seven days. For once, for just a little bit, you felt as though you belonged in that family in all ways. It wasn’t magic, Sharon. It was LOVE.” A friend of mine is in Turks and Caicos right now with his own family. The first night, he sent me photos of the sunset and texted, “It’s your dad saying hi from T & C.” It made me cry, in a good way. I suppose what I am trying to say in a convoluted way is that while these holidays are difficult for those of us who cannot be with our loved ones, to remember they truly are with us. I know when i look at the empty chair, or when we holds hands to say grace, instead of looking for Dad, or Jim (Jeff’s dad), or Aunt Betty, or Troup, or Aunt Cherry, I simply need to close my eyes, take in a breath, and feel them. I might feel a light brush on the cheek, or the sun shining a bit brighter,...

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The Kindle Version of Lyme Savvy is Now Available!

Posted on Jun 6, 2017 in Blog |

No more worries about having to carry that heavy paperback book around with you! We have the Kindle version of Lyme Savvy now available! Just go to Amazon and it’s there! https://www.amazon.com/Lyme-Savvy-Treatment-Insights-Practitioners-ebook/dp/B071YVXRVV/ref=sr_1_1?ie=UTF8&qid=1496760800&sr=8-1&keywords=lyme+savvy If you already bought the paperback version on Amazon, the Kindle version is just $2.99! How’s THAT for a deal?! Share...

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I Hope You Learned a Few New Things About Lyme Disease

Posted on May 30, 2017 in Blog |

I hope by now you have learned a few things about Lyme disease that you didn’t know thirty days ago. I hope you carry this information forward in case you find yourself infected or you hear from a friend who has a myriad of mysterious symptoms who can’t seem to get an accurate diagnosis. I am happy to speak with anyone regarding this disease. Please feel free to email me at Sharon@sharonrainey.com. Please consider purchasing our book, Lyme Savvy: Treatment Insights for Lyme Patients and Practitioners. Share...

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