My husband Jeff wrote an entire chapter in our book Lyme Savvy: Treatment Insights for Lyme Patients and Practitioners. I have included his concluding paragraphs below.
It is work, hard, daily work, to support and love a spouse, partner or family member with Lyme and co-infections. But it is vital. Every patient needs and wants to be loved and believed.
They are not crazy, or “attention seekers.” They are not making this up. Each and every symptom is real. They are in pain. They are confused. They have very real problems making simple decisions; even the day-to-day decisions are difficult.
It is hard to describe the exhaustion because it is so bone and soul deep. The look in the eyes of the infected is deep-set and far away pain and angst ridden. The hurt is deep. Often, the only thing that helps is holding them and reassuring them they are loved and you will be there for them.
It is this depth of unconditional love we must wrap them with. Love and care is healing.