Posted on May 19, 2017 in Blog |

Patients with Lyme Disease or co-infections of Lyme Disease are NOT: lazy, faking, sensationalizing, imagining things; refusing to learn or grow, avoiding responsibility going to grow out of it crazy contagious; it is safe to hug us “just depressed”; if we are depressed, it is because of living with Lyme, not the other way around. Patients with Lyme Disease or co-infections of Lyme Disease ARE: physically ill actually, very ill overwhelmed and frustrated their body cannot work the way they need it to experiencing real pain, often excruciating unique in that we each present with different symptoms; no two patients are the same examples of what can happen to your friend, sister, cousin or boss who has been sick for a long time with no answers; we share our stories so others may find a shorter path to a correct diagnosis Patients with Lyme Disease or co-infections of Lyme Disease DON’T want to hear: You don’t look sick! Are you ever going to heal from this? (Would you ask a cancer patient this question?) But you seemed fine ten minutes ago. But I thought you rested yesterday. Oh good! Now you are better and you can go back to the way you used to live/work! Maybe you should see a psychiatrist. But you looked fine yesterday. I already told you this. Get a grip; there is nothing wrong with you. So what, I get rashes all the time. If this was real, the CDC would do something about it. I know people who have real problems. Are you sure you have a good doctor? When you are going to finally be rid of this thing? What time is dinner? Are you sure you have Lyme Disease? How can anyone have that many symptoms? Do you really need to take all those pills? Isn’t it time you get over this thing? Patients with Lyme Disease or co-infections of Lyme Disease NEED: validation they are truly ill and require treatment help accomplishing the simplest of tasks your love and your physical and emotional support to feel wanted your respect others to know we are not weak hugs loved ones to make...

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