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It’s a Blip

Posted on Jan 24, 2016 in Blog |

I saw my latest blood smear last week.  It was not what we expected.  I thought I had beaten the Bartonella and Protomyxzoa Rheumatica and the plan was to next start attacking the Babesia.  The plan has now changed. I go back into full treatment late next week after the “after effects” of my latest vacation wear off.  I will start back on anti-malarial meds. Once I get the routine down for those meds, and once we get the blood work PCR confirmation from Galaxy Diagnostics, I will then start back into Bartonella treatment. I don’t know how long this protocol will be.  I didn’t ask. Dr. M reminded me that when I went through treatment in 2009, the treatment protocol was version 1.0.  Now, he is on version 8.0 or so.  It will be better this time around.  He is also adding two new drugs for me to hopefully reduce the side effects of the medications.  These will hopefully help with pain, mood, anxiety, and depression. I’m also still getting Toradol (NOT Tramadol) injections each time I go up there.  These are anti-inflammatory only but help ease my lower back pain tremendously, temporarily (24 hours).  He has been able to reduce my pain considerably. I know Babesia is considered incurable.  But if anyone can cure me, I believe it to be Dr. M.  No one else is even trying.  He has some amazing research done and some incredible theories that I am willing to help him test out. The Bartonella was supposedly incurable as well back in the early 2000s, but Dr. M has put patients in remission for five and more years.  I thought I was cured.  I was in remission for 4.5 years.  So, I will go through treatment again and plan for a much longer remission next time. The Protomyxzoa Rheumatica is a huge unknown.  It was discovered by Dr. Steven Fry in 2011.  Dr. Fry and Dr. M are the only two physicians I know of who are researching a treatment for it. Imagine finding a certain cancer less than five years ago and how long it would take to find a cure for...

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Keeping My Dreams

Posted on Jan 5, 2016 in Blog |

My day started out so awesome. I came into Katie’s Coffeehouse at 9 am to start working on the final Lyme Savvy manuscript. I sipped on my vanilla chai and relished in the moment of finally have the entire manuscript back in my hands to finish up. A friend met me at ten am, as planned. She’s a painter and we have found that we have more life events and heart events in common than most. She proposed the possibility of being able to go to Taos, NM for 1-3 months just to paint. The house is in Arroyo Hondo, where I rented a house my first time in Taos. The magic was happening again. I could barely contain my breath. When I attended my first writers’ conference eight years ago, that’s where I finally realized I AM a writer. I AM an author. My excitement was tangible once again on this cold winter morning as it was on that summer day after writing for many hours. My friend then encouraged me to take a painting course. I have always wanted to take one, but have been too afraid. I confessed, “Every time I have tried to paint, I have ended up painting words.” I felt as though I was letting her down before we had even started. She immediately retorted with, “Well, what’s wrong with that? You can still paint using words!” Permission granted. In a few weeks, we will meet in her basement and she will begin this intimate process of teaching painting. I came away from our time excited about learning a new talent, about the deepening of our friendship, and about the possibility of making a dream come true to go out to Taos to write for an extended period of time. I arrived at work and was immediately met with circumstances that created stress, frustration, and disappointment. Then someone hurt my heart. And I am not sure they even know it. “To dream about writing in Taos for an extended time is simply ridiculous.” And it went on from there. So, my wild dream of being somewhere remote surrounded by fascinating culture and magical...

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Sharon’s Public Service Announcement Regarding Blood Clots

Posted on Jan 1, 2016 in Blog |

I’m here to remind you of signs to look for in a deep vein thrombosis. I want to be that earworm that you think about when you are on a long car ride or plane ride and you probably aren’t moving your legs enough. On May 8th of 2015, I was admitted to the hospital with a DVT in my left leg, starting at my ankle and coming up to my femoral vein. I had waited two weeks to see a physician. My leg was so swollen I couldn’t fit a shoe on anymore. That is the only reason I went to a doctor. I had no pain, no specific tenderness, no red spots, no veins suddenly appearing. I had just a swollen leg. I also had pulmonary emboli. I couldn’t catch my breath. But I didn’t realize how bad that breathlessness was until it started to resolve. My aunt died of a pulmonary embolism while being treated for Lyme disease. I should have known better. What could be more incredible than surviving two weeks of an untreated blood clot the length of my leg? Finding out that two years prior, I had survived another significant “pulmonary event” – I THOUGHT I had a Baker cyst in the back of my other leg that had exploded. I had a swollen leg that was tender. I never went to see a physician for it. I was busy taking care of our niece who had just had her tonsils out. The Doppler study that I had in May showed it was definitely a DVT that resolved on its own. The vascular surgeon kept telling me how lucky I am. Having these co-infections of Lyme disease tends to make our blood thicker. Inflammation can do nasty things to us that we aren’t even aware of. When you are sitting at your desk, on in a car, or on a plane, make your feet do the Happy Dance. Pump your legs, get the blood flowing and moving. Remember, it can happen anywhere to anyone. And if you have a swollen leg or swollen arm and can’t figure out why, get it checked out....

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Healing from the Cellular Level and Up

Posted on Jan 1, 2016 in Blog |

I’m not a fan of resolutions. I found this on a few people’s blogs and so I am stealing it! I started the list but then my thoughts started to wander . . . A new skill I would like to learn: Well, I would like to learn how to quilt, but I think that would be the start of a new obsession/addiction. I think I have enough skills that I have learned; I just need to hone them a bit more. I hope to have two of my books published in 2016 and I have ideas for two more, so writing is what I really want to do more of. A person I hope to be more like: maybe because it is the anniversary of his death, but I want to be more like Jim Rainey b/c he was a man who exuded pure kindness. I want that. A bad habit I would like to break: Biting my nails? I wouldn’t put money on this one though. A place I would like to visit: Turks and Caicos – going there very soon! A book I would like to read: https://www.goodreads.com/review/list/2152254-sharon-rainey I have about 150 on my Want to Read list . . . I don’t think it will ever reduce to below 50. A letter I am going to write: I already wrote it. I thanked Brightview Senior Living for the care they gave my father in law during his last three months of life. It has been a year, but I wanted them to know we still appreciate all they did for him. A food I am going to try: Hmm . . . I am pretty open to trying new foods, so I guess I will have to see what comes up. Jeff is the best chef ever, so I have already tried many, many things. I am going to do better at: being patient with the healing process. Ok, I really don’t think my patience level is going to improve, but that’s what I want to improve. I will remember: That just because I can help someone doesn’t mean I have to.   Especially when it...

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Best Health Blogs of 2015

Posted on Jan 1, 2016 in Blog |

If you have found my blog helpful in your healing journey, will you vote for Lyme Savvy as one of the Best Health Blogs of 2015?http://www.healthline.com/health/best-health-blogs-contest Look up the word Lyme, then wait for the options to show up underneath.  Lyme Savvy should be in that list. You can vote one time each and every day from Twitter and from Facebook until January 21st! Thank you! Share...

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