Posted on Dec 4, 2015 in Blog |

I ran into a woman at the post office whom I had not seen in almost ten years. I didn’t recognize her. She came to me. She was fashionable, perky, beautiful, wearing swanky glasses and third floor Nordstrom clothes. She asked me how I was doing and I swiftly avoided answering by asking her if she had grown her hair out. She looked how I wish I could look. Thirty-four years ago, I had my first bout of unexplained fatigue. Six weeks into my first semester at college, I couldn’t stay awake. I was exhausted. Could not keep my eyes open. I literally slept for 23 hours at a stretch. I was losing weight and obviously not attending classes. My parents brought me home and I underwent innumerable blood tests. I wish I had kept those test results. I just remember them saying everything was normal. There was no explanation for my intense fatigue. I stayed home the rest of the semester and returned in January, rested and feeling better, still with no explanation of why I needed so much rest for so many weeks. For the past week, I have had almost the same fatigue – sleeping 10 to 11 hours at night and 3 hours in the afternoons. And I can’t make myself wake up. I have had some of the worst pain in the past week as I have had in the past six years. I don’t know why. Doctor has some ideas and suggestions, but nothing is working as quickly as I want. The inflammation is back in spades at a vascular level. I had blood taken yesterday for the surgery I am having Monday and it came out like sludge, as it used to six years ago before I started treatment. While I can’t prove it, I know there is a connection between vascular inflammation and hyper-coagulability. I know the inflammation will lessen and the blood will thin as the barometric pressure rises and with the doctor’s suggestions. How can I explain how I feel to the woman in the post office? I have been battling this disease for decades. How do I tell...

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