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Why Do I talk About Lyme So Much?

Posted on Jul 29, 2015 in Blog |

Why do I talk about Lyme so much? Am I obsessed with it? Do I think everyone I meet could have it? “What is the deal with Sharon and Lyme?” I talk about Lyme because it took me decades to get properly diagnosed and it could have been diagnosed with one test from the right lab. I don’t want others to go through what I went through. I don’t think everyone has it, but I bet 30% of the people I know have at least one DNA band that would test positive for Lyme or a co-infection of Lyme. More importantly . . . I know how easy it is to MISS Lyme Disease. In 2002, in the midst of my symptoms intensifying, my aunt Betty DIED of Lyme Disease. In the midst of her intensifying symptoms, in the midst of her fight to even be tested, I had no idea that my symptoms were similar to hers. Aunt Betty died at the age of 57. Two years before, she was a completely healthy, radiant, psychology professor teaching at Auburn University. A family member, someone I was close to, died of Lyme Disease. . . and I didn’t make the connection. Everything I had kept being explained as something else. So, I never connected it. If I missed Lyme Disease when a family member died of the disease, I worry about everyone else out there who has some of the same symptoms but doesn’t have someone staring them in the face saying, ‘Get Tested for Lyme Disease.’ Imagine my face in front of you. Get tested for Lyme Disease. And when you get tested, demand complete testing from a specialty lab (NOT LabCorp or Quest). Do not settle for just an Elisa test. Do not settle. Sharon’s Symptom History The simplest way to present my own history to you is to show you how many different types of physicians I saw, some of the major medical events that occurred, and of course, the various diagnoses I was assigned. I know many patients can probably relate to this snapshot. Physicians I saw for symptoms Often, I saw more than one...

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It’s Lyme, Not Lymes

Posted on Jul 27, 2015 in Blog |

It’s probably the English teacher in me, but it drives me crazy when people call it “Lymes” instead of the proper name, Lyme.  If you are so inclined, feel free to copy and paste these graphics for your own use. Share...

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The Manuscript is Being Edited!

Posted on Jul 26, 2015 in Blog |

I gave my version of the manuscript to my co-author last week and he is now reading it!  I am excited beyond words!  He is happy with about 90% of the work done which is most excellent since he has only seen it twice.  We are working on graphics while he is working on edits.  I am VERY excited that we are close to the finish line!  Just wanted to keep everyone updated! Share...

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Rebecca Wells on Lyme Disease

Posted on Jul 26, 2015 in Blog |

This story was written i think back in 2005, but i found it most helpful. Dear Readers, I have advanced neurological Lyme disease. It affects the way I think, move, write, read, eat—every aspect of my life. During the same time in 1998-1999 that my novels, Divine Secrets of the Ya-Ya Sisterhood and Little Altars Everywhere introduced the Ya-Yas to millions of readers, I was becoming very sick and did not know it. At first I thought I just had a recurring case of bronchitis. I didn’t foresee the difficult journey that lay ahead of me. Things went from one weird symptom to the next, then a whole cocktail of symptoms kept developing. I stopped saying, “Things can’t get any worse than this.” Because they did, again and again. Years went by in which I did not know what was wrong with me. I was told maybe I had a brain tumor, perhaps epilepsy; maybe I had dystonia, maybe if I took the latest miracle anti-depressant all my symptoms would magically disappear. (Pause very carefully if ANYone tells you that.) In the last seven years, my symptoms have included respiratory infections, intense muscular skeletal pain, severe fatigue, Multi-Chemical Sensitivity (MCS), hunger for air, extreme sensitivity to light and sound, seizure-like events, and freezing hands and feet (probably due to peripheral neuropathy). Weakness in my lower limbs has been one of the most dangerous symptoms because it can—and does—lead to falling down. At times I was so deeply fatigued while writing Ya-Yas in Bloom that I could not lift my hands. I often had to use a wheelchair to get to the door of my writing room, then be lifted by my husband into my writing chair because the door was not wide enough for the wheelchair to get through. To finish Ya-Yas in Bloom I had to accept the situation I was in and find ways to work that respected my limitations. I realized that I was being given small packets of energy to be used wisely. Once I accepted this, I was able to complete the book. Like any act of creation, whether baking a pie or chopping wood, creativity can dispel the dark. Ya-Yas in Bloom reminds me...

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The ABCs of Ticks

Posted on Jul 9, 2015 in Blog |

Note from Sharon: I don’t personally care for the Mayo Clinic’s way of diagnosing and treating Lyme disease, but I do think the following link has some good information and an interesting way of presenting the information. Thank you to Carol Pearson for sending this to me! From the Mayo Clinic: http://news.mayomedicallaboratories.com/ticks/ Share...

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