Posted on Jan 6, 2014 in Blog |

This past weekend I experienced one of the most energetic, productive days I have had in years, not weeks, not months – YEARS.

I attribute this to my treatment protocol to kill the co-infections of Lyme disease I have been battling for four years now.  It has been a long, slow battle, but it is obvious I am towards the end of this war, and, clearly, I am winning.

More than a year ago, my physician said, “A good day is proof you don’t have permanent damage.”  And he is right.

Four years ago, I don’t think I would have believed his statement.  I didn’t have enough faith, and I hadn’t met anyone else who was healing.

Then, I started meeting other patients with Lyme disease in my community.  I found other Lyme patients on Facebook.  I found other patients through my blog.  I met patients who were further along in treatment and who were healing.  I met others who were behind me in treatment.

I started connecting with others by asking questions:

  • Did you have these symptoms?
  • What meds are you on?
  • Do you ever feel like . . . ?
  • How does your family react?
  • What do you do when your friends ask if you are well yet?

People were very kind to me.  They shared what they knew, what they had tried, how their friends and family had responded, and how they dealt with the reactions.  I started to feel less isolated and less of a freak.  There were other people out there with medical histories very similar to mine.  I wasn’t a hypochondriac.  I was sick.  And, I wasn’t along anymore.

A few people shared their success stories with me as they were in remission or well.  They no longer had symptoms and were still testing negative after treatment.  There weren’t many, but a few and I clung to almost every word they shared.  I needed that hope.  I needed to know there might be an end to my suffering.

During treatment, I stayed in contact with people asking them:wvm january 2014 Sharon Rainey Image

  • Is this what herxing is?
  • Does it get better?
  • How do I lessen the symptoms?
  • How do I get through the mentally tough parts?
  • Who else is going through this?
  • How do you get through it?

And again, people responded with their own experiences, sharing what worked and didn’t work and why.  People answered me in the middle of the night when the fear was the worst.  They sent me jokes and puns and funny pictures to cheer me up.  It was very reassuring during the painful periods to know I wasn’t alone and to learn better coping skills.

When last weekend happened, when I had the best day in years, I was able to share some of that hope I had so eagerly latched onto early in my treatment.  I was able to share my experience of what I had been doing, what worked, and what it felt like.  I am able to go back in the groups and message boards offering hope of healing.

That’s why I think it is critical we share what happens in our lives with one another.  We never know who we can help, and who can help us, depending on where we are in that journey.  If I hadn’t reached out to others, I might not be here, clear and simple.

There were days and nights when I thought I couldn’t take another hour of pain or misery.  But every time I reached out, someone was there for me, telling me it’s ok.  They told me, “It’s going to get better.  It’s not always going to be like this.  Just hang in there.”

And now that I am on the other side of that darkness, I can offer my own piece of light, of hope.  Healing can happen.  It is happening for me.  And because someone was there for me, it’s important for me to share this message with others to let them know healing will happen for them as well.

It’s not really about being healed.  It’s about what happens to you as you heal.  Together.