Lyme Savvy | A one-of-a-kind collaboration between patient and doctor

Navigation Menu

Measuring in Small Increments

Posted on May 17, 2013 in Blog |

Day 17 – May is Lyme Disease Awareness Month I know I am healing when: I can unload the entire dishwasher, not just the top rack I don’t have to pay any late fees on our credit card bills – usually I forgot to pay the bills.  I would think I had, but I hadn’t . . . I make the bed in the morning. I don’t have to rest while getting ready for work in the morning. I can go to the grocery store by myself and not rely on Stephen or Jeff to pull things off the top and bottom shelves. I can work a full day. I can cook dinner by myself (and not burn anything). I remember to feed the dogs and cat. I don’t get lost while running errands. I don’t leave laundry in the washing machine for more than a day. Co-infections of Lyme: Colorado Tick Fever, Rocky Mountain Spotted Fever, QFever Protomyxzoa Rheumatica Bartonella, Babesia Erlichiosis, Mycoplasma Share...

Read More

Aunt Betty

Posted on May 16, 2013 in Blog |

Day 16 – May is Lyme Disease Awareness Month On June 5, 2002, my dad called at 11:30 pm. His baby sister, Aunt Betty, had died earlier that afternoon of a pulmonary embolism. She was 57 years old. She died of complications from Lyme Disease. Exactly two years prior, Aunt Betty went to her physician in Auburn, Alabama with a classic “Lyme” EM rash on her calf. She had not seen a tick, but she had been with her horse on their five acres of land. She asked if it might be Lyme Disease. “We don’t have Lyme disease in Alabama,” he replied. “It’s an allergic reaction to sunscreen. I know PABA when I see it.” He prescribed some lotion and dismissed Aunt Betty. That fall, Aunt Betty returned with weakness in her legs. Blood tests showed positive for Lupus. Over the next few months, Aunt Betty’s health continued to decline. She experienced more weakness in left hand, cramping in left hand and in throat, muscles hurting all over body, stiff in the morning, and numbness in left foot. Doctors then changed her diagnosis to Muscular Dystrophy. Then they changed it to ALS – “Lou Gehrig’s Disease.” For a year, physicians refused to test Betty for Lyme disease. By August of 2001, a year after her initial rash appeared, Aunt Betty was using a walker. And in August, doctors finally agreed to a Lyme test from Igenex.com. The test was positive. Aunt Betty started treatment. On September 11, 2001, when most of us were watching the World Trade Center Twin Towers fall in New York, Aunt Betty was getting a PICC line. Back in 2001, they didn’t have the progressive testing they have now. But they were trying. They started Betty on Biaxin, Flagyl, Diflucan. A couple of months later, Aunt Betty was still deteriorating. They started her on Zithromax; she showed improvement. December, 2001, her Lupus test was negative. But she was in a wheelchair full time. Doctors continued her on various meds, and she was improving, but it was going to be a long recovery. Six months later, Aunt Betty died from a blood clot that had...

Read More

Similarities Among Patients

Posted on May 15, 2013 in Blog |

Day 15 – May is Lyme Disease Awareness Month Most Lyme patients aren’t dealing with JUST Lyme disease. Every patient is different, but we have a few similarities. 1. Adrenal fatigue – When I was tested, I found out that my cortisol levels were constantly high; my body was always in the stressed phase. My adrenal functions were high in the evenings instead during the day. This seems to be common among patients. That’s why we tend to have trouble falling asleep. 2. Thyroid dysfunction – My LLMD believes that many of us suffer from Hypo-Thyroidism Type II. It’s a constant battle of regulating my thyroid meds for both T3 and T4. Luckily, he relies more on clinical symptoms than going by blood test results. 3. Fatigue – this seems to be the most common symptom among patients. I think it’s because our entire body is under attack on a daily basis. Our cells spend so much time battling the bacteria that our bodies are literally exhausted to that cellular level. 4. Multiple physical ailments – Borrelia and the co-infections can travel anywhere in the body. They are corkscrew type organisms. They can literally bore through muscle, tissue, bone; anything. For instance, three patients that I know of (including myself) have been told we need major knee surgery. I can’t remember how or why (Lyme brain), but my LLMD explained that the organisms seem to love the joints the most; and thus, create the most damage there. 5. Food allergies – This issue has gained importance over the past few years. Five years ago, finding gluten free foods was difficult at best; gluten free menus were unheard of. We’ve come a long way. Food allergies often cause inflammation in the digestive tract, thus aggravating our already present symptoms. 6. Heavy metal poisoning – when I was first diagnosed, Dr. M tested me for heavy metals as well. My arsenic levels were off the charts. We had our soil tested, water tested, etc. I even received a phone call from the county asking if I had any concerns about where I might be getting the arsenic. Based on a 2006...

Read More

Fatigue or Diarrhea?

Posted on May 14, 2013 in Blog |

Day 14 – May is Lyme Disease Awareness Month This is one of those more “intimate” posts. I haven’t written in a few days because I have been battling with each of these symptoms. I was supposed to change my meds to a different timing and I had to go off the antibiotics (abx) for a week before restarting at a heavier dosage. While on them at this regular dosage, I had diarrhea. This particular abx hits any parasites in the gut and I think it was doing its job. When I went off, the fatigue hit. I was back in bed each afternoon by 2 pm with a two hour deep sleep. And a regular bedtime. I couldn’t take it. So, I went back on the abx at the regular dosage and the diarrhea returned. I go back to the doctor this week to see how he wants me to proceed. I don’t usually change up my routine without contacting him first, but I think I am far enough in the process that I know what my options are. In other words, if you are on a new med, or new to treatment, DON’T CHANGE YOUR MEDS WITHOUT FIRST CONSULTING YOUR LLMD. The way I have treat the next phase, with the current timing, I think it may cause some unpleasant symptoms on my weekends. And the next five weekends are quite busy for me. So, we may delay the next phase. I’ll let you know. A friend saw me on Sunday (Mother’s Day) at the grocery store and she asked how I was feeling. I said “pretty good” because I was able to be up and dressed for brunch with our family. I was grateful. I didn’t want to mention the diarrhea in the grocery store . . . I didn’t get to hang out with my friend that afternoon because I didn’t want to be searching constantly for a public bathroom. Instead, I spent the afternoon hanging out with my hubby and the puppies in our front yard. Not a bad deal. It’s trade offs. Fatigue or diarrhea? I choose diarrhea. At least I can get...

Read More

Which Are You More Likely to Get?

Posted on May 8, 2013 in Blog |

Day 8 – May is Lyme Disease Awareness Month Lyme disease is transmitted through deer ticks. Bartonella can be transmitted: – in utero, – through ticks, – through mosquitoes, – through fleas, – through biting flies and – cat scratches. Bartonella has been found in up to 80% of feral cats and 50% of indoor/outdoor domestic cats. It is more likely, in my opinion, that patients with auto-immune symptoms will test positive for Bartonella than for Lyme merely based on the number of ways it can be transmitted. The best lab (in my opinion) in the US for testing for Bartonella is Galaxy Diagnostics in North Carolina (www.galaxydx.com). They can identify up to 26 strains of Bartonella. And, their staff is really really nice. ? Co-infections of Lyme: Rocky Mountain Spotted Fever, Qfever, Colorado Tick Fever, Protomyxzoa Rheumatica, Bartonella, Babesia, Erlichiosis, Mycoplasma Share...

Read More
css.php