Lyme Savvy | A one-of-a-kind collaboration between patient and doctor

Navigation Menu

May Day Rally Speech

Posted on May 26, 2013 in Blog |

Day 25 – May is Lyme Disease Awareness Month. We had a rally at Freedom Plaza in Washington DC today. I was one of the speakers. My assigned topic was “Green Smoothies.” When I sat down to write this speech, I put on a work out shirt that my Aunt Betty wore in her last months while she underwent treatment for Lyme Disease. She died from complications of Lyme in 2002 at the age of 57. I wanted her spirit to be with me as I prepared for today. So, Aunt Betty, this is for you. I was originally diagnosed in 2009 with Bartonella and Babesia. After a 22-month course of oral abx, I have now tested clear for Bartonella for 2 years. I’m still working on that pesky Protomyzxoa Rheumatica. My point is that it IS possible to heal from this disease. Things I never thought I would never be doing five years ago: 1. considering coffee enemas 2. writing my second book 3. scheduling laughter time every day with a dose of the television comedy Big Bang Theory 4. taking extra time to play with my puppies because it makes me feel good 5. going without makeup for weeks at a time 6. taking 50 pills a day and being grateful for every single one, knowing each has a specific healing task 7. and drinking green smoothies, willingly . . . Green smoothies are the metaphor for how my healing started. Three and a half years ago when I started treatment, my physician was very gentle. And in a subtle way, he told me I would be going through many changes in order to heal. I heard him, but I didn’t truly understand exactly what changes I would undergo. I did hear him say over and over, “Your number one job for at least the next year is to heal. Every decision you make should be based on the question of ‘will this help me heal?’” If the answer is no, then don’t do it. First came the “learning to say no”, restricting my schedule, required resting periods. I didn’t go out after 5 pm. I only...

Read More

The Herxheimer Reaction

Posted on May 22, 2013 in Blog |

Day 22– May is Lyme Disease Awareness Month What is a Herx? The Jarisch-Herxheimer Reaction, or more commonly known as ”herx,” is a detoxification reaction your body has from die off of bacteria. It is the worsening of symptoms before getting better. As the body detoxifies, or tried to get rid of dead bacteria and toxins, it is not uncommon to experience flu-like symptoms including headache, joint and muscle pain, body aches, sore throat, general malaise, sweating, chills, fever, nausea, hives or other symptoms. This is a normal reaction when starting a treatment for Lyme Disease, Syphillis, or Candida, and some other infections. It indicates that parasites, fungus, viruses, bacteria or other pathogens are being effectively killed off. The Herxheimer Reaction is an immune system reaction to the toxins that are released when large amounts of pathogens are being killed off, and the body does not eliminate the toxins quickly enough. Simply stated, it is a reaction that occurs when the body is detoxifying and the released toxins,(endotoxins) released from the cell walls of dying bacteria due to effective treatment, either exacerbate the symptoms being treated or create new symptoms. The important thing to note is that worsening symptoms do not indicate failure of the treatment in question; in fact, usually just the opposite. There are ways to help you get through your Herxheimer reaction. This entails proper detoxification. To read on Biotoxin Illness and ways to detox click here: http://whatislyme.com/biotoxin-illness-and-detoxing/ Thank you to Lisa Hilton for her amazing website that is a great place for those with Lyme and co-infections. Lisa is a great Lyme warrior and it is an honor to know her. Share...

Read More

Protomyxzoa

Posted on May 21, 2013 in Blog |

May 21st, 2013 – May is Lyme Disease Awareness Month From protomyxzoa.org website: Protomyxzoa Rheumatica is a newly-discovered infectious organism that causes chronic disease. Protomyxzoa was discovered by Fry Laboratories of Scottsdale AZ. Although they have published no scientific papers on the organism, they offer a polymerase chain reaction (PCR) DNA test for the organism, and they have done substantial work on culturing, characterizing and sequencing the DNA of the organism. Unfortunately, all this work remains unpublished. Fry Labs says that protomyxzoa is in the “malaria family” of protozoans, along with babesia and malaria, based on DNA sequencing of the 18s ribosome subunit. Protomyxzoa, babesia and malaria have a multi-stage life cycle. Like malaria and babesia, protomyxzoa appears to have an immature form that infects red blood cells (erythrocytes), and a mature form that remains in the blood. It does not appear to invade other tissues. Mature protomyxzoa surrounds itself with thick, copious biofilm substances to protect itself from the host immune system. It is believed that this biofilm contributes to various symptoms depending on its location and quantity. Protomyxzoa will cause capillary inflammation and reduced blood flow in locations where it accumulates. It is also believed that the biofilm can harbor secondary infections (e.g. other bacteria) which can cause further variations in symptoms and test results. This website was created because there is so little information available on protomyxzoa. There are no published scientific papers. There is only one published interview with Dr Fry, the discoverer of protomyxoza. Share...

Read More

Bartonella

Posted on May 20, 2013 in Blog |

Day 20-May is Lyme Disease Awareness Month From Galaxy Diagnostics Laboratories website (www.galaxydx.com): Galaxy Diagnostics offers the most sensitive test for the detection of active Bartonella infection. Our Bartonella ePCRTM (or EnrichmentPCRTM) test combines the patented BAPGM enrichment culture with a highly sensitive molecular method to significantly increase the odds of detection. The test includes pre- and post-culture PCR results and DNA sequencing verification for all positive results to confirm the exact species of infection. Performance data indicates that this novel testing methodology is 4 to 5 times more sensitive than existing PCR tests for Bartonella and at least 2 times more sensitive than IFA serology. Bartonella are hard-to-detect, vector-borne bacteria linked to both acute and chronic disorders affecting the joints, neurological system, and vascular system. Over 25 species of Bartonella have been identified, with 10-12 species now linked to human disease. Transmission is thought to occur by way of animal bites and scratches and from contact with fleas, ticks, lice, and sand flies. Current research indicates that individuals with high levels of animal and vector contact are particularly at risk for Bartonella infection. The most common species of infection are Bartonella henselae, the key agent in Cat Scratch Disease, and Bartonella quintana, the key agent in Trench Fever. Well established as a cause of life-threatening complications in immune-compromised patients (i.e., HIV patients), Bartonella infection is one of the most important emerging infectious diseases currently under study. The diagnosis of Bartonella infection is seriously hampered by high false negative rates associated with existing testing technologies. We offer a testing methodology with significant gains in sensitivity and the highest level of certainty regarding the specificity of our test results. Our approach to providing this testing service is anchored in the emerging research on Bartonella infection and centered upon the highest possible standards of laboratory practice. Share...

Read More

I Never Thought I Would

Posted on May 19, 2013 in Blog |

Day 19 – May is Lyme Disease Awareness Month Things I never thought I would never be doing five years ago: eating almost all organic food saying “no” with no guilt considering coffee enemas drinking green smoothies trying to figure out computer software that used to be “simple” losing so many friends and being ok with that writing my second book scheduling laughter time every day scheduling meditation times giving presentations about Lyme disease participating in protest rallies against the Infectious Disease Society of America taking extra time to play with my puppies because it makes me feel good eating raw, unfiltered honey daily surrendering to fatigue without much guilt – coming home from work at 1 pm to rest laughing louder than I used to because it feels so good to laugh going without makeup for weeks at a time figuring out which method is the best way to detox my body – lemon water, Epsom salts, sauna . . . having two bumper stickers on my car that say “Eat More Kale” and “Sheldon for President” wearing no jewelry but my wedding band spending an hour every two weeks dispensing pills taking 50 pills a day and being grateful for every single one, knowing each has a specific healing task going low gluten, low dairy, low soy, low sugar; willingly inviting 100 people with Lyme disease to my house to celebrate our healing adamantly encouraging people to challenge their physicians and demand the correct testing for Lyme disease and co-infections Wearing lime green clothing Co-infections of Lyme: Erlichiosis, Mycoplasma, Bartonella, Babesia,Protomyxzoa Rheumatica, Colorado Tick Fever, Rocky Mountain Spotted Fever,QFever Share...

Read More
css.php