Posted on Apr 1, 2013 in Blog |
As part of a task to get myself writing more regularly, I have accepted The Health Activtist Writer’s Month Challenge #HAWMC. Some of the prompts they have provided I will use. Some, I will improvise upon. I also think this will help me with complete more sections of my book Lyme Savvy.
This is probably the easiest question of the entire challenge: Why do I write about my health online and what got me started.
When I was first diagnosed with Lyme in September 2009, the only other person I knew (my aunt) had died from the disease seven years prior. I felt very alone. My uncle was guiding me through the process of getting the RIGHT testing and finding a Lyme Literate medical Doctor (LLMD), but I didn’t have anyone to share my experience with.
Someone in our community told me about a neighbor who also had Lyme, so I contacted that person. It was not the experience I had wanted or needed. This person was almost elusive, offering me no physician suggestions, no real hope. It was WEIRD. And very isolating.
Then, a phone call from a previous employee of mine (who remains a very close friend).
‘You have to meet my boss,’ she urged. ‘He has Lyme too and he has a phenomenal doctor that I think you need to meet.’ And so Dan and I met for coffee and we immediately clicked. Dan validated my entire experience both from symptoms over the years to the horrible mess of finding a good physician and appropriate treatment. Dan and I still meet for coffee about once a month to keep tabs on each other.
Dan’s physician is now my physician. And I feel very, very lucky.
I write about my health online because I had already started my blog, but I wanted to make sure that no one else ever experienced the loneliness and isolation that I experienced with that first individual. I want other lyme patients to know they can call, email, facebook, anything to reach me. That connection with one other person was critical to my sense of hope and my determination for healing. In a disease where so many are suffering for years, I needed to see hope and healing.
ABC’s Good Morning America’s co-host Robin Roberts’ mother used to say, ‘Make your mess your message.’ I agree with that. I’m not the type to have secrets and keep things in. Part of my healing is to share the journey with others. I hope that in turn will help others on their healing journey.