Posted on Apr 17, 2013 in Blog |

April 17th – I have accepted The Health Activist Writer’s Month Challenge to write daily about my disease. #HAWMC @wegohealth

I believe that Lyme disease (and its co-infections) will be the next big epidemic in US History; similar to the AIDS epidemic.

I believe that up to 25% of our general population is already infected with Lyme, Bartonella, Babesia, Erlichiosis, etc.

But I also know I am in the minority.

There is great controversy even within the medical community about Lyme disease. Some physicians say there is no such thing as advanced Lyme disease. They say 30 days of antibiotics and you are cured. If you still have symptoms after that, it’s called Post Lyme Syndrome and there is nothing they can do for it.

So, as Lyme patients, we often encounter those who don’t really believe we are even sick.

A newly diagnosed friend asked me, “How do you learn to talk to doubting family members and friends about the other side of Lyme?”

I have learned through the years that everyone is going to think whatever they want to think. I have spent many hours trying to convince some to think more in alignment with my beliefs. I have convinced some; but not all. And that is now ok with me.

I think what is more important is what I know to be true. And as long as I know it to be true, and I surround myself with others who respect my beliefs, then I am in a place conducive to healing and progress. Please note everyone around me doesn’t have to agree with my beliefs, but they have to respect them and act accordingly.

Any time or energy that I spend trying to tell someone they should believe what I believe is time and energy taken away from my own healing.

There are many Lymies who are fighting for us; politically, in the news, in the forums, online, behind closed doors. For me, I cannot afford the energy it takes to do that. I have found my own way of “fighting back.” But it took me years to do so. First, I had to heal.

And I just can’t say this enough: if you have Lyme disease (or a co-infection of Lyme), YOUR NUMBER ONE JOB IS TO HEAL. That’s it. That’s all. Your job is to heal. It’s the most important thing you can do.

It’s like putting on your own oxygen mask before helping the person beside you. If you can’t breathe, you can’t help the others breathe. If you don’t heal, you can’t help anyone else heal.

Well meaning people will tell me, “You need to get out there more, Sharon. You need to attend these meetings. You need to go to support group meetings. You need to go to this seminar.” Yes, I probably should. But if I go and my health deteriorates because of that added activity, then we all lose. So I pick and choose very carefully. I cannot do it all. I have no intention of going back to the lifestyle I had before. That’s part of how I got so sick. I didn’t listen to my body and what it needed.

So, I do what I can. And I do what I am good at. I write, I email, I post, I have coffee with other Lymies. I connect in ways that mean the most to me, that feed me spiritually and emotionally, that don’t drain me. I do what I can and I don’t feel guilty about what I cannot do.

And that’s another point: don’t feel guilty. Guilty is negative energy and does not offer any bit of healing to your body or your soul. You cannot afford guilt. You need to do everything you can to heal. So, learn to let go . . . . do what you can and the rest will work itself out.

I lost a lot of “friends” in the process of my healing. And I have had some bumps in the road with some of my family members. And that’s ok. I know I have done what I need to do to heal. I am happier today than I was five years ago. I am surrounded by people whom I know care for me deeply and love me and would do anything for me. I don’t waste my time or energy on the ones who will never get it. Instead, I focus on the positive, the energy that will continue to heal me.