Posted on Apr 25, 2013 in Blog |

April 25th – I have accepted The Health Activist Writer’s Month Challenge to write daily about my disease. #HAWMC @wegohealth

If you could go back in time and talk to yourself on the day of diagnosis, what would you say?

The day I was diagnosed correctly, I spent two hours with Dr. M. I had filled out a 22 page form listing all my symptoms, medical history, etc. When I filled it out, I lied. I thought if I admitted to all of the symptoms I had experienced, I would be labeled a psych case.
When I went into Dr. M’s office, he took the form and then asked me all the questions again. The problem was, I couldn’t remember which symptoms I had lied about and which ones I was truthful about. So I just told the truth.
For the first time in decades, my symptoms were validated by a physician. In those two hours, Dr. M explained how one diagnosis was responsible for all those symptoms.
I walked out of that appointment, got into my car and sobbed with relief.
What would I say to myself knowing what I do now?
1. You are the luckiest woman; you just found the most brilliant physician ever.
2. Dr. M is going to HEAL you.
3. You are not going to die from this; you will not repeat what happened to Aunt Betty.
4. Be patient. This is going to take awhile.
5. It’s going to get worse before it gets better.
6. This is going to be the hardest thing you have ever done.
7. Start eating healthy NOW.
8. Start eating organic food NOW.
9. Start EMDR therapy for PTSD NOW.
10. Start meditating daily NOW.
11. Your anxiety is part of the disease. It will go away as you heal. Yes, really, it will.
12. Dr. M is going to explain A LOT of things to you that will take you forever to understand. You will retain only about 20% of everything he tells you and that’s ok.
13. Dr. M is your partner in treatment. Trust him.
14. Start searching for and bringing in puns for Dr. M now. He loves them.
15. Try to find SOMETHING to laugh about in every appointment.
16. It’s ok to hug Dr. M when you say hello and goodbye.
17. Do not be ashamed to ask for help.
18. Ask for help when you need it!
19. You are going to endure things you never thought you would have to endure.
20. Your husband and son are going to do amazing things for you that you will never be able to repay. Be grateful for them every day.
21. Don’t waste your time trying to convince the non-believers; they aren’t worth your time and energy.
22. Keep educating others about your journey and what you are learning. Many of them will need that information eventually. And many of them appreciate it.
23. Some of the best friends you ever have will be the ones you meet in that waiting room.
24. Never say never to some of the alternative treatments Dr. M is going to ask you to consider.
25. Don’t drink the wheatgrass. It’s terrible and you are never going to drink it again; not even in green smoothies.
26. You are going to get a puppy and that puppy will be a key part of your healing. Yes, you are going to fall in love with dogs and you will want more and you will get more puppies.
27. Remember you will always have to take care of yourself before you can help anyone else.
28. You cannot save everyone; you cannot help everyone.
29. Don’t waste your time and energy helping those who don’t really want to heal.
30. Your whole life is going to change and it’s going to be ok.
31. You are going to lose a lot of friends and it’s going to be ok.
32. Keep writing; keep sharing your journey; the good, the bad, and the ugly. Keep it real; keep it honest. That’s what people want. They want the truth.
33. Your son and your husband and other family members are going to be diagnosed with this disease as well; and they are going to be ok.
34. You WILL heal from this.
35. It’s going to be ok.
36. But be patient; it’s going to take awhile. . . .