Posted on Apr 6, 2013 in Blog |

I have accepted The Health Activist Writer’s Month Challenge to write daily about my disease. #HAWMC @wegohealth

Topic: How long does it take to get a Lyme diagnosis? What are other common misdiagnoses?

For me, it took 29 years to get the correct diagnosis. I went through some years of being in good health tempered with other years that weren’t so great. When I turned 40, my immune system weakened and that’s when I started deteriorating significantly. I kept seeing specialists for various disorders. They are very good within their specialties, but no one was looking at the big picture. No one was seeing how I seemed to be having numerous auto-immune disorders.

Note to the reader: if you have any auto-immune disorders, please consider being tested for Lyme and co-infections of Lyme.

Over the years, some of the diagnoses I received included: stomach ulcers, h.phylori, a tooth killed itself, pancreatic tumors, ideopathic hypersomnia, ideopathic intermittent right temporal waves, Lupus, bursitis, positive antinuclear antibody (ANA) test, viral meningitis, gallstones, incontinence, lipoma on spinal cord, Vitamin D deficiency, possible Epstein-Barr (Herpes complex type 4), Blurred Vision, stomach antrum atrophy, sun sensitivity, dry cough, elevated gastrin levels, peripheral neuropathy, hypo-thyroid, recurrent sinus infections, migraines, rashes.

Within ten minutes of asking how long it took others to get a Lyme diagnosis in a Facebook group, we received these replies of how long it took between onset of symptoms and the final Lyme diagnosis:

16+ years; 28 years; 25 yrs; 11 years; 25 years; 28; at least since college 10-15 years; extremely ill since 2007; 7 years; I know the exact date I was bitten, so it’s no mystery to me: 19 1/2 years. That being said, it still took 14 years for a doc to actually listen to me and diagnose it; 28+ years undiagnosed; in the process of being tested for Lyme….was diagnosed with ”fibro” around 7 years ago and now am wondering if it was really fibro! had a baby recently and the symptoms came 10fold after!

Other conditions that many Lyme patients have been diagnosed (and treated for) before finally finding the real cause of their symptoms: ALS, anxiety, ADD/ADHD, bursitis, chronic fatigue syndrome, Crohn’s disease, depression, dry eye, encephalitis, Epstein-Barr, eczema, fibromyalgia, gallstones, h.pylori, hashimoto, herpes simplex I, hypo-thyroidism, interstitial cystitis, irritable bowel syndrome, lupus, migraines, MS, peri-menopause, peripheral neuropathy, shingles, sinusitis, Vitamin D deficiency, viral meningitis.

If you have been diagnosed with one or more of the above conditions, please consider getting a Lyme test done from a specialty lab.