I have accepted The Health Activist Writer’s Month Challenge to write daily about my disease. #HAWMC @wegohealth Topic: How long does it take to get a Lyme diagnosis? What are other common misdiagnoses? For me, it took 29 years to get the correct diagnosis. I went through some years of being in good health tempered with other years that weren’t so great. When I turned 40, my immune system weakened and that’s when I started deteriorating significantly. I kept seeing specialists for various disorders. They are very good within their specialties, but no one was looking at the big picture. No one was seeing how I seemed to be having numerous auto-immune disorders. Note to the reader: if you have any auto-immune disorders, please consider being tested for Lyme and co-infections of Lyme. Over the years, some of the diagnoses I received included: stomach ulcers, h.phylori, a tooth killed itself, pancreatic tumors, ideopathic hypersomnia, ideopathic intermittent right temporal waves, Lupus, bursitis, positive antinuclear antibody (ANA) test, viral meningitis, gallstones, incontinence, lipoma on spinal cord, Vitamin D deficiency, possible Epstein-Barr (Herpes complex type 4), Blurred Vision, stomach antrum atrophy, sun sensitivity, dry cough, elevated gastrin levels, peripheral neuropathy, hypo-thyroid, recurrent sinus infections, migraines, rashes. Within ten minutes of asking how long it took others to get a Lyme diagnosis in a Facebook group, we received these replies of how long it took between onset of symptoms and the final Lyme diagnosis: 16+ years; 28 years; 25 yrs; 11 years; 25 years; 28; at least since college 10-15 years; extremely ill since 2007; 7 years; I know the exact date I was bitten, so it’s no mystery to me: 19 1/2 years. That being said, it still took 14 years for a doc to actually listen to me and diagnose it; 28+ years undiagnosed; in the process of being tested for Lyme….was diagnosed with ”fibro” around 7 years ago and now am wondering if it was really fibro! had a baby recently and the symptoms came 10fold after! Other conditions that many Lyme patients have been diagnosed (and treated for) before finally finding the real cause of their symptoms: ALS, anxiety,...
Read More
Home »
Posts made in April 6th, 2013
Subscribe to Blog via Email
Recent Posts
Tags
babesia
bartonella
borrelia
chronic illness
chronic infection
co-infections
community
connecting
death
depression
Diagnosis
ELISA
erlichiosis
family
fatigue
galaxy diagnostics
green smoothies
grief
Healing
igenex
laughter
llmd
love
lupus
lyme
lyme disease
lyme savvy
mozayeni
mycoplasma
organic
pain
physician
protomyxzoa
protozoa
qfever
rest
sharing
suicide
symptoms
tick
ticks
tick testing
treatment
western blot
writing
Archives
- January 2018
- December 2017
- November 2017
- October 2017
- September 2017
- June 2017
- May 2017
- April 2017
- February 2017
- January 2017
- December 2016
- November 2016
- October 2016
- September 2016
- August 2016
- July 2016
- June 2016
- May 2016
- April 2016
- March 2016
- February 2016
- January 2016
- December 2015
- November 2015
- September 2015
- August 2015
- July 2015
- June 2015
- March 2015
- January 2015
- November 2014
- October 2014
- September 2014
- August 2014
- May 2014
- April 2014
- February 2014
- January 2014
- November 2013
- May 2013
- April 2013
- March 2013
- February 2013
- December 2012
- September 2012
- May 2012
- December 2011
- June 2011
- May 2011
- March 2011
- February 2011
- January 2011
- December 2010
- November 2010
- October 2010
- August 2010
- July 2010
- June 2010
- April 2010
- March 2010
- February 2010
- January 2010
- December 2009
- November 2009
- October 2009
Recent Comments