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5 Things I Want Everyone to Know About Lyme

Posted on Apr 1, 2013 in Blog |

April 2nd – As part of a task to get myself writing more regularly, I have accepted The Health Activist Writer’s Month Challenge #HAWMC. What are five things I want them to know about my condition? 1. Lyme is called the masquerader because it imitates so many other diseases. It attacks the weakest part of a person’s immune system. In my family alone, our symptoms were all different. It was hard to believe we all suffered from the same infection. 2. ‘Lyme’ is not the only disease in this category. There is Lyme and then there is also: Bartonella, Babesia, Erlichiosis, Rocky Mountain Spotted Fever, Protomyzoa Rheumatica . . . and the list goes on. It’s NUMEROUS diseases that tend to fall under the ‘Lyme’ category. 3. The Lyme test from LabCorp and Quest is up to 60% INNACURATE. If you test negative to the test from these two labs, you may very well still have Lyme or a co-infection of Lyme Disease. 4. Ticks are not the only carrier of Lyme and its co-infections. You can catch it from cats (‘cat scratch fever’ is a form of Bartonella), mosquitos, flies, fleas, any type of blood sucking insect. 5. If your family pet has been diagnosed or treated for Lyme disease, your entire family should be tested for Lyme disease. Share...

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Why I Write About My Health

Posted on Apr 1, 2013 in Blog |

As part of a task to get myself writing more regularly, I have accepted The Health Activtist Writer’s Month Challenge #HAWMC. Some of the prompts they have provided I will use. Some, I will improvise upon. I also think this will help me with complete more sections of my book Lyme Savvy. This is probably the easiest question of the entire challenge: Why do I write about my health online and what got me started. When I was first diagnosed with Lyme in September 2009, the only other person I knew (my aunt) had died from the disease seven years prior. I felt very alone. My uncle was guiding me through the process of getting the RIGHT testing and finding a Lyme Literate medical Doctor (LLMD), but I didn’t have anyone to share my experience with. Someone in our community told me about a neighbor who also had Lyme, so I contacted that person. It was not the experience I had wanted or needed. This person was almost elusive, offering me no physician suggestions, no real hope. It was WEIRD. And very isolating. Then, a phone call from a previous employee of mine (who remains a very close friend). ‘You have to meet my boss,’ she urged. ‘He has Lyme too and he has a phenomenal doctor that I think you need to meet.’ And so Dan and I met for coffee and we immediately clicked. Dan validated my entire experience both from symptoms over the years to the horrible mess of finding a good physician and appropriate treatment. Dan and I still meet for coffee about once a month to keep tabs on each other. Dan’s physician is now my physician. And I feel very, very lucky. I write about my health online because I had already started my blog, but I wanted to make sure that no one else ever experienced the loneliness and isolation that I experienced with that first individual. I want other lyme patients to know they can call, email, facebook, anything to reach me. That connection with one other person was critical to my sense of hope and my determination for healing. In...

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