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Recap of the Month

Posted on Apr 30, 2013 in Blog |

April 30th – I have accepted The Health Activist Writer’s Month Challenge to write daily about my disease. #HAWMC @wegohealth Write a recap of my experience. What have I learned? I wasn’t sure I would be able to write about Lyme disease for 30 days in a row. I’m glad I did this. I know more than I realized I know. I have appreciated the feedback as well. Sometimes when I write things and no one writes back, I wonder . . . . I’ve learned that there is a lot of educating to do in the general population about Lyme disease and its co-infections. Most people have heard about it and that’s about it. They don’t realize the severity of it, the complications it causes, or the fact that it can be fatal. May is Lyme Disease Awareness Month in the Commonwealth of Virginia (thank you Barbara Comstock!). I have decided to continue this blog for the next month (but taking weekends off) in hopes of giving more educational information about Lyme disease and its co-infections. I hope you have enjoyed this and have benefited from the postings. Share...

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Lyme Savvy

Posted on Apr 29, 2013 in Blog |

April 29th – I have accepted The Health Activist Writer’s Month Challenge to write daily about my disease. #HAWMC @wegohealth Some of you that I have been writing a book on Lyme disease. I am writing it with my physician! We expect it to be published in 2015. The title is Lyme Savvy: New Approaches for Better Results. Some of the topics we plan to include are: Basics of Lyme Disease, problems and challenges with diagnosis and treatment, what physician and patients are doing and can do, the importance of testing and treating co-infection, small vessel disease, functional medicine (including adrenals, thyroid, toxins, diet), old and new treatment modalities, traditional and non-traditional treatments, ancillary therapies (acupuncture, chiropractic care, massage, reflexology, physical therapy, yoga, pilates), dietary changes, psychological aids to healing, what to look for in a physician, how to be a good patient, the various aspects of healing, and finally, numerous case studies. If you are interested in pre-ordering a copy of the book, go to and you can order it online. Share...

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What I have Learned That Surprised Me the Most

Posted on Apr 28, 2013 in Blog |

April 28th – I have accepted The Health Activist Writer’s Month Challenge to write daily about my disease. #HAWMC @wegohealth What have I learned about being a patient that surprised me the most? I was flabbergasted as I went through the initial process of getting the Lyme diagnosis and how many medical professionals chastised, degraded, ignored, and negated me as I asked questions to the get to the bottom of the issue. I was shocked by how many physicians threw prescriptions at me and even admitted that they would not look for the source of my pain. Rather, they would only treat me symptomatically. I have learned to: – listen to and trust my gut – advocate for my own health (and my family’s) – always ask questions – approach any medical professional as a team member; they don’t view it that way, I change physicians. – Once I find the right physician, trust him and work WITH him. Share...

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Role of Food in Healing – Part 2

Posted on Apr 27, 2013 in Blog |

April 27th – I have accepted The Health Activist Writer’s Month Challenge to write daily about my disease. #HAWMC @wegohealth Role of Food in Healing – Part 2 There is a saying in Alcoholics Anonymous that is a semi-joke when newcomers enter and worry about trying not to drink. The ones with more sobriety will say something to the effect of, ‘Don’t worry; all you have to do is stop drinking and change everything about yourself.’ In some respects, that happens with a Lyme disease diagnosis too. My physician was really nice about it, though. He gives it to his patients in stages. But I’m going to give you the one shot deal here: In an IDEAL world, a person diagnosed with Lyme would eat a diet that is: – Organic foods only – dairy free – gluten free – soy free – sugar free and – anti-microbial – alkaline in nature – focusing on foods that eliminate inflammation In MY world, my diet is: – mostly organic – low dairy – low gluten – low soy – some antimicrobial – leaning towards alkaline – focused on foods that eliminate inflammation – and sugar is a challenge for me . . . Changing my diet has helped many of my symptoms lessen or disappear. When I went off the green smoothies this past month, I went CRAZY with sugar. I craved it insatiably. And I ate it. This past week was the height of my inflammation at which I finally surrendered back to my appropriate diet. Here is what it took me to get to the point of surrendering again: My gut was giving me hell. I dropped my toothbrush because my peripheral neuropathy had returned (vascular inflammation) I was tripping over my feet because of the neuropathy. I was having wild nightmares. My back pain increased. Swelling in my knees and ankles increased. For me, green smoothies is my transition food. When I go back on green smoothies, I don’t crave sugar. When I don’t crave sugar, I make better choices overall and I start eating more toward the ideal Lymie diet . . . Today’s green smoothie...

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Role of Food in Healing – Part 1

Posted on Apr 26, 2013 in Blog |

April 26th – I have accepted The Health Activist Writer’s Month Challenge to write daily about my disease. #HAWMC @wegohealth The Role of Food in Healing from Lyme Disease – Part 1: Green Smoothies At 10 pm last night, I was loading my Vitamix with spinach, blueberries, strawberries, avocado, and coconut water. I hadn’t made a green smoothie in a month. But after two days of intestinal torment, I decided that maybe they really do help and I should go back to what was working for me. How did I get to this point? For most of my life, I have endured intestinal issues starting with a stomach ulcer at age four. Another ulcer at age 13. Gas, bloating, pain, and diarrhea throughout my life. Back then, the medical community believed that milk cured ulcers. I drank 8 ounces of milk every two hours for years. Two years ago, Dr. M suggested I try green smoothies to help reduce my intestinal issues, also mentioning the anti-inflammatory benefits of green smoothies. My response was quick: ‘Next topic, because there is no way I am drinking that nasty stuff.’ A month later, the friend who directed me to Dr. M encouraged me to try green smoothies, raving about how they have helped him tremendously. I was suspicious to say the least. ‘If it doesn’t taste good, I am NOT drinking it,’ I declared. Dan gave me his recipe. I tried it. It tasted good. I drank one the next day. It still tasted good. AND, for the first time since I can remember, I wasn’t in pain. I drank one the next day and the next day and the next day. No pain. Miraculous. One day, I was a little too busy and didn’t make my green smoothie. No biggie. I was ok. The next day, I didn’t feel like making it. That night, I was in misery again. So, I was hooked. I have been drinking green smoothies fairly consistently ever since. And every time I go multiple days without, my symptoms return. I don’t know exactly why green smoothies are so effective for me; I just know they work....

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