Posted on Sep 26, 2012 in Blog |
Note from Sharon: I wrote this two weeks ago but didn’t post b/c I just wasn’t happy with it. But someone reminded me that sometimes it’s more important to hear something than to hear nothing. . . so here you go:
Three years ago today, I had my first appointment with my current Lyme Literate Medical Doctor. In our two hour appointment, I had the first reasonable explanation for 29 years of bizarre symptoms with a single diagnosis: Bartonella, a co-infection of Lyme disease.
I walked out of that appointment, got into my car and burst into tears of relief. I was so grateful to finally find a physician who not only knew what I had, but he knew how to successfully treat my disease.
Today, I took my dogs for a walk. I went to the farmers market with my hubby. I cooked A LOT of kale to use in my green smoothies for the next three weeks. I am going to a meditation class later this evening.
But getting to this point has taken every single day of those three years.
Three years ago, I could have managed only one task for the entire weekend. For months, I spent days in bed, in pain, unable to focus, to think. I couldn’t cook, do laundry. I couldn’t work full time. I had such poor balance that I often fell and hurt a knee or ankle.
My knowledge of Lyme disease and co-infections of Lyme has grown exponentially in the past three years. Learning about these diseases helped me heal, and it helped me educate others. I have seen the fads, the wives’ tales, the ‘miracle cures.’ I have seen protocols that work for some patients and be completely ineffective for others. I have seen patients refuse to help themselves. I have seen physicians with the best of intentions but not enough training.
And, I have seen patients heal and resume active, productive lives.
What worked for me may not work for everyone. But for me, I spent 21 months on three different oral antibiotics. I have also been on a boatload of supplements that have boosted my immune system. I also tried numerous complementary therapies including acupuncture, dry needling, infra-red sauna, cold fusion laser therapy, and much more. I have also had my adrenal and thyroid systems treated. Even after that, fatigue was a big issue for me. I spent nine months at a plateau.
Then a new protozoa was discovered in my system. At the end of February, I began an experimental protocol for that new protozoa. We’ve had a few bumps in the road, but I feel better now than I have in years. I think we are very close to the final cure.
I’m writing to say there is hope. There are effective treatments.