Posted on Jul 24, 2010 in Blog |

It was a year ago this month that I began the final leg of my journey to a Lyme diagnosis. It originated last July with a ‘Lupus’ diagnosis. As I walked out to my car, I called my sister, the nurse, to tell her the verdict and to find out more about this disease I had only vaguely heard of. A few days later, my uncle wrote me a relatively short email. The jist of it was, ‘You don’t have Lupus. You have Lyme. Go to a Lyme Literate Medical Doctor and get a Western Blot blood test from IGenex lab in San Diego, CA.’ That email and further conversations with my uncle are reminiscent of the scene from ‘The Matrix’ when Morpheus tells Neo that he has a choice. He can learn what the world really is, the reality of life. Or he can go back to being blissfully ignorant. He offers Neo two pills. ‘This is your last chance. After this, there is no turning back. You take the blue pill – the story ends, you wake up in your bed and believe whatever you want to believe.’ Pause. ‘You take the red pill – you stay in Wonderland and I show you how deep the rabbit-hole goes.’ Since last July, I have been going farther and farther down the rabbit-hole. In this Lymeland, I have learned the difficulties in finding a qualified physician to correctly diagnose and treat this insidious, invasive bacteria. I got the Western Blot blood test from IGenex lab and still had two physicians tell me I didn’t have Lyme. The first one said I had bursitis in my hip. He didn’t have an explanation for any of my back pain or other mysterious symptoms. The second physician told me unequivocally I did not have Lyme. He couldn’t tell me what I did have and he was refusing to test me any further to give me a diagnosis. ‘You mean you’re going to stop looking for what’s causing all these symptoms? All my pain?’ ‘Yes. We’ll just treat you symptomatically for a few years and then maybe the testing will improve and we...

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