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I’ve Already Been Tested for That

Posted on Nov 23, 2009 in Blog |

”I’ve already been tested for that.” I have heard this statement almost as many times as I have suggested to individuals that they be PROPERLY tested for Lyme disease throughout the past two months since my own diagnosis. I feel like Lucy from the Peanuts cartoon, standing with my arms outstretched, yelling to the sky, ‘YES, BUT WERE YOU PROBABLY PROPERLY TESTED???’ Can you hear me now? Every single person that I know of, who has made an appointment with a Lyme Literate MD in the past two months, and has been properly tested for Lyme, has tested positive for Lyme and/or one of its co-infections. When searching back through my own medical records, I found that I had been tested for Lyme numerous times since 2003. But not a single one was the correct test with the correct instructions sent to the best lab. If I had been properly tested in 2003, I could have avoided: – clumsiness – knee injuries – pelvic pain – back injuries – balance issues – headaches – memory loss – urinary incontinence – joint pain – loss of executive functioning skills – noise sensitivity – more joint pain – multiple test procedures in search of pancreatic tumors – blurred vision – fatigue – inability to concentrate – word searching in conversations and in writing – fear of dementia – sun and or heat sensitivity – unexplained rashes – tooth problems – joint swelling – more than two sinus infections – thyroid problems – weakened auditory processing skills – h.pylori infection – feeling of stiffness or restricted joint flexibility – stomach or antrum atrophy – heart palpitations – persistent, non-productive cough – diseased gallbladder – unexplained fever, even low grade – adrenal gland problems – numbness, tingling, itching, or burning sensations in the feet and/or hands – sleep disturbance or insomnia issues – loss of fine motor skills – and so much more So I ask you, if you have ever experienced any one of the above-mentioned items, please see your doctor and ask for the following: Request the ELISA test for Lyme Disease. Have the physician to write on the order that...

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Patient Empowerment

Posted on Nov 11, 2009 in Blog |

Today, my mom came with me to my appointment with the physician treating my Lyme disease.  Mom is a stroke survivor; it is not easy for her to get around.  I explained to Dr. M that I will probably bring a different family member each time because he (Dr. M) has become a star in my clan.  Everyone wants to meet the man who gave me hope; the man I trust with my life. “Do you feel anxious when you go these appointments with Dr. M?” a friend asked. “Oh no,” I replied.  “I get stoked!  I know that all of my questions will be answered honestly and frankly.  I get pumped up because I know we are going to work on the next plan of attack; the next phase of my treatment protocol.” True to form, I left Dr. M’s office today totally excited, relieved, comforted that all my questions were answered.  Of course, the B12 shot I got might have added to my temporary “high.” So what did I learn today? I learned that Dr. M can find the exact place in my DNA strand that has the Bartonella infection and that I have a minimum of two types of Bartonella infection. I have been one antibiotic and in another week, will add another medication to battle the Bartonella.  After a few months, I will get another medication.  By that time, we will know what other infections of Lyme disease that I do or don’t have and will start treating them respectively. I learned that yes, indeed, I can herx from just 100 mg of Minocycline AND that it is not unusual to develop new symptoms while herxing. Herxing?  What’s that you ask?  Short definition:  it is the reaction one’s body has to a large dosage of antibiotics, usually an increase in painful symptoms.  For me, I had increased joint pain and loss of flexibility, increased headaches, twitching, cramping, and muscle pain.  I also developed new symptoms. So why would a person be GLAD that she is herxing?  Because it means that the meds are killing those damn bacteria.  It means the infection is dying; slowly, but surely. ...

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Isn’t it all the Same?

Posted on Nov 6, 2009 in Blog |

Shopping today in the local Giant supermarket. . . . in the checkout line . . . . ”Did you find everything you were looking for?” ”Actually, no. Do you have a Gluten-free section?” ”Oh, yes! Aisle 25.” ”Yes, I saw that. Your organic food aisle. But do you have a gluten free section? I didn’t see much in there that was gluten free.” ”Isn’t it all the same?” Oh boy . . . . . Share...

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