Posted on Oct 21, 2009 in Blog |

Originally posted October 21, 2009 – Note from Sharon:  By verge of reading this page, you know that I have been diagnosed with Late Stage Chronic Lyme Disease and not Lupus.  But the initial Lupus diagnosis is part of my story, so if you want to know the story from the beginning, we have to start with Lupus this past July. . . . . July 17, 2009 Two days ago I was diagnosed with Lupus.  Auto-immune is about all I knew about then.  I left the endocrinologist’s office with strict instructions to see a rheumatologist as soon as possible. When I walked out of the office, the sun was beaming down, humidity was low, so the warmth wasn’t suffocating.  I called my sister, the nurse, and told her. “I am so sorry, Sharon,” she offered to me. “What’s your ANA ratio?” followed quickly afterward.  Yep, she’s a nurse.  She needs facts, details. “1:340 with a speckled pattern.  It means I’m in an active phase of Lupus,” I answered, simply regurgitating what I was told.  I gave Gayle the other data I had and I answered a lot of her questions with “I don’t know.”  It was a starting point. I called the rest of my immediate family and gave them the information.  It’s still not sinking in. I find myself smiling.  This means I don’t need back surgery!!  I think this may be the best news I have had in weeks.  It’s strange to think that Lupus is a better reply.  But I will take it for now. So God, what’s my lesson with Lupus? Silence July 18th, 2009 I went to a meeting this morning and shared my diagnosis with the group.  When I say, “I just found out a few days ago that I have Lupus,” it feels as though the dis-ease is out there, separate from me.  I keep thinking it hasn’t sunk in yet. Many of my friends have responded with, “I am so sorry.”  And I just emotionally disconnect from them.  I don’t want to be in that sorry category.  I want to Live with Lupus, not Suffer from it.  By God’s...

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